Posts Tagged ‘update’

19
Jan
2013

On the Air

Enjoying a fun date night with my husband! (January 2013)

Enjoying a fun date night with my husband! (Jan. 2013)

The time has finally arrived… I have been asked to be interviewed on a radio show…And it airs next week!

As you know, from diagnosis I have felt called to spread hope in my journey through cancer. My desire and passion is to allow those immediately affected by this disease and those surrounding their circumstance, to know that there is hope in the midst. I haven’t hidden the fact that cancer plays hard, but as a person diagnosed, you must fight with everything you’ve got. There will be days you feel like giving up, however, staying focused on the good days to come and choosing to let God carry you will drastically change your battle. Though you will experience tremendous life changes, including grief and loss, your story can continue to be brimming with joy. Happiness is a choice. And I consciously choose to be happy every single day.

I am continually amazed at how widespread my blog has become. I have regular readers on multiple continents, and I am in awe that each of you have chosen to follow my journey through life. While I understand this story that God has chosen for me is bigger than I must realize, I’m still just the same Stephanie. I’m a woman. I’m a wife. I’m a believer. I’m a friend. I’m a daughter and a sister. I’m a cook. I’m a reader. I’m a puppy mom. And now, I’m a blogger. I am just a human placed on Earth to glorify His name. While we know that I disregard most diagnostic medical statistics, many of you have asked for the factual statistics of my blog. So, here they are…

  • To date, I have had nearly 45,000 views to my blog. (Those views have been within one year of launch.)
  • My highest viewed post recorded around 1,700 hits. (Those views were recorded in one single day.)

To say I am thankful would be a dramatic understatement. I can not put into words how grateful I am for those who continue to follow my story, support and pray for my husband and I, and encourage our fight through this diagnosis. I am in awe at the great lengths and depths that God has used this testimony. We do know that He works everything together for our good, and we are continuing to love and follow Him believing in the purpose He has for us.

Because my blog is spreading, various news stations and PR/Marketing persons have begun to follow as well. While I never intended to be “in the spotlight,” I do believe that I am called to share hope through diagnosis. And while I’m nervous, considering I royally sucked at public speaking in high school, I will walk on this path. In fact, there have been opportunities brewing that I haven’t been able to announce, but I can finally share one with you today! I have the opportunity and great honor to be interviewed by Angie Austin on her radio show “The Good News.” The interview will be taking place this coming Tuesday, January 22nd. Please tune in to hear me try not to screw it up chat with Angie! Her show focuses on good news and inspirational stories of hope and healing… with a few laughs thrown in. I am extremely excited to meet her, and am elated to finally have a bigger platform to reach those in need. Everyone needs encouragement, and I am humbled to join the conversation. I will list details and links below for those wanting to tune in. From what I understand, she also has a podcast, so if you miss it, you’ll get another chance to hear our interview.

Now, let’s dive into the deep end… I won’t lie; I’m very nervous! For those who personally know me, I am a chatterbox. I have no problems speaking with individuals or small groups of people. However, since my school days of being required to stand in front of several people (many whom I did not know personally), and give a presentation (on who knows what), I have had stage fright. Never to the severity of not being able to finish a speech, but it took everything in me to get through it. There’s something about being put on the spot that makes me weak in the knees, sweat profusely, and forget what even my own name is. Many of you have told me that I will do just fine, and while most some of the time I believe you, I’m still anxious! I do believe sharing MY story will be vastly different than sharing a presentation on say, the evolution of the railways locomotive headlamp…or at least I’m hoping so. I ask for prayer frequently, and today is no different. I am in desperate need of steady words, confidence, and personality. Yes, you read that last one correctly. Please pray that my nerves don’t overwhelm my system to the point that I lose who I am, and the fun side I possess. I would hate for people to think that I’m some boring bump on a log. I know that God is going to piece together every minute detail of this process, as He already has done, and I trust that there will be listeners who personally need to hear to be encouraged and inspired through hope.

Below are the details for my appearance on Tuesday:

  • Radio interview with Angie Austin of “The Good News” on 810AM KLVZ. Tuesday, January 22nd. Show will air from 4pm-5pm that day.
  • Listen to the radio, or tune in online or on your smart phone with the “tune in radio” app.

If you have any questions, please feel free to email me at derailingmydiagnosis@gmail.com. Happy listening!

Mark 16:15 (MSG Version)

“Then he said, ‘Go into the world. Go everywhere and announce the Message of God’s good news to one and all.'”

10
Jan
2013

The Why

Many people initially respond to trauma or heartache by asking “Why!?” Whether someone you love passes away, you didn’t get that dream job, or things just didn’t work out…more common than not, it’s “Why me?!” I challenge you to be open to hearing the answer. In some moments, God may never reveal it to us; However, if you pay close attention to what He is doing in your life and around you, you may get a sneak peek inside His purpose.

It would be easy for me to ask, “Why?”, throughout the ups and downs in my current adventure. I am human and the fact is, I hate that I have cancer. I hate that I have to endure months and months of grueling treatment. It would be easy for me to ask, “Why did you allow this to happen to me!? I’m young! I have so much going for me.” And more often than not, we are faced with that thought, “Why?” While I have only once let that word slip from my mouth, it’s hard to not have that lingering thought bury itself in my subconscious as a cancer patient.

I am learning that the less I feel, “Why me?!”, the more I learn the reasons for my story. A wise woman once said, “Don’t focus on the problem, fix your eyes on the promise.” Let that sink in. It’s powerful.

There have been several moments in my journey that God has taken me behind the scenes to see what’s really going on. It’s as if He’s saying, “Stephanie, you want to know why? Check this out. You’ll be amazed.” And it’s true. In all things God wants the glory, and I believe my story is no different. No matter what, God will be glorified. And it’s an honor to carry this torch and spread hope for Him.

Today specifically has been a day where I got to peek behind the curtain. In fact, I pulled up a [chemo] chair and watched it unfold before my eyes. This morning, Matt and I woke up bright and early to prepare for another chemotherapy day. As we were on our way to the hospital, my anxieties slowly dissolved. And once I walked into the room where all of us cool kids get treatment, I noticed one lady. Only one. This is extremely unusual, as there are at least eight chairs for patients. Any lingering discomfort fell aside, and I sat down in my usual chair which happened to be next to this beautiful woman. Soon, we discovered it was her first time receiving chemo. After introducing ourselves, we began to talk…and talk…and talk. Divine appointment? I emphatically say “YES!”

I believe that we are each given a story for bigger reasons than ourselves. We interact with others on a daily basis and encounter people who need to hear hope through every situation. I still hunger for hope, and have learned that my true hope comes from Him alone. But for those of us undergoing trials, be aware that you are a vessel. You are being used to share and help others through similar storms. Today, I was able to speak truth, life, and hope to someone very vulnerable and new in her journey. In speaking with her, I saw strength, determination, courage, and bravery in her eyes. She has a genuine spirit full of joy. We bonded immediately, and I look forward to where our journeys will take us in our friendship. As we left, I gave her a hug and shared my perspective of a cancer diagnosis and the battle to victory. “It’s going to suck. I will not lie to you. It’s going to be extremely hard and you’re going to have horrible days. But, be encouraged. Along with those bad days, there will be great ones. You can and will do this. Allow yourself to grieve, but focus on the positive and on overcoming this thing. It’s going to happen.” And she responded with tears in her eyes, “You are amazing. You have made this whole mess seem a lot less scary and much more hopeful. Thank you.” <–THAT, my friends, is the “Why.”

While leaving treatment, I was overwhelmed by the sense of joy and fulfillment in my spirit. Sometimes I yearn to know the bigger picture. I yearn to see the path that God has put forth for me. But, I am thankful that I do not know it all. I am thankful that He gives me blessings along the way. I am thankful for the unexpected surprises. I am thankful for a five-hour conversation with a stranger, who is transforming into a friend. We are going to be “chemo buddies,” we both agreed. I am thankful that she is extremely well-versed on all things baseball (Matt’s favorite sport), for she kept my husband entertained and captivated the whole time. I am thankful that God answers the “Why.” Who knew that you could discover another piece of the bigger picture whilst walking out of chemotherapy treatment!? (Proof that He shows up anywhere!)

It’s so empowering and fulfilling to know that my story is making a difference. I thank each and every one of my readers and dedicated followers for supporting my journey and rallying beside me to kick cancer’s ass. I am encouraged and deeply humbled.

The truth is, cancer sucks. There’s no way around it. If you read my blog, you know I am transparent in sharing my rough days. But those who read, also discover that I make a conscious decision to choose joy. I choose happiness. I choose life. I choose to be above my circumstance. I choose to fight. I choose to be a cancer survivor.

1 Corinthians 2:10-13 (MSG Version)

“The Spirit, not content to flit around on the surface, dives into the depths of God, and brings out what God planned all along. Who ever knows what you’re thinking and planning except you yourself? The same with God—except that He not only knows what He’s thinking, but He lets us in on it. God offers a full report on the gifts of life and salvation that He is giving us. We don’t have to rely on the world’s guesses and opinions. We didn’t learn this by reading books or going to school; we learned it from God, who taught us person-to-person through Jesus, and we’re passing it on to you in the same firsthand, personal way.”

03
Jan
2013

Third Time is NOT a Charm

Who ever said, “Third time’s a charm!”? What a load of crap. Okay, okay…maybe it’s just my situation. Losing my hair for the third time is so not charming. At least not to me. My husband has a different perspective, and while I understand and am grateful for his outlook, I still hate that I have to lose my locks again. In his words, “Seeing your hair fall out is a sign that the chemo is working in your body!” True, babe. Very true. Although I was liking loving my short locks, I can’t argue with my husband’s perspective. It’s true. And it’s right. And yes, I am extremely thankful that my chemotherapy treatments are doing something.

Photos courtesy my husband, right before he shaved it off. Check out how long it got!

Photos courtesy my husband, right before he shaved it off. Check out how long it got!

Rewind…Happy New Year and belated Merry Christmas! What a fabulous holiday it was. Following my first treatment, I prayed each day that I would feel good on Christmas, and lo and behold…I did; Hallelujah! Matt and I were able to fully enjoy time spent with each other and our family and friends, and cancer was not invited to any of the parties!

Last time I posted was a few days before Christmas, on my first day of this season of treatments. I was unsure what to expect with these new drugs and regimen, and was a little nervous on what side effects I would experience. Oh boy, did I experience the gamut! Before I get to the enticing details of rashes, nausea, and flu-like symptoms, let me update you on my proposed treatment schedule. This round of treatment will consist of a few different drugs. One type of chemotherapy combined with a “booster,” and a shot the following day. By “booster,” I’m referring to a drug that coincides and works well in promoting the effects of chemotherapy. In essence, it cuts off the blood vessels that cancer needs to survive. While I’m on board for that idea, I am apprehensive about the possible and rare side effects that this booster causes. “Rare” doesn’t mean much to me anymore… I have a “rare” cancer with a “rare” recurrence, and have already experienced “rare” side effects. Booya! In yo face, statistics.

I will receive chemo once every three weeks about six times. That is very different than my last schedule of three days in a row every three weeks surrounding six weeks of weekly chemo combined with daily radiation. (That was a mouthful and a LOT of treatments!) I am thankful that this regimen is so different. It allows me more time to recover and to have more good days. In fact, this first time on the new drugs, I only had one week of feeling awful, which has left me two weeks of feeling pretty great. Feeling good for two weeks is a blessing, folks.

Besides simply having to continue treatment, the biggest things I loathe are the shots I have to take after each and every chemotherapy session. These shots are similar to what I had to self-inject last time around. They help stimulate my white blood cell growth, however, they are slow-releasing. Therefore, I feel sick and gross for a longer period of time. I have developed a love/hate relationship with these injections. While they help increase my white blood cells, they really put a damper on my body and mood. I, however, am thankful that they exist, because without them I could not continue to receive chemotherapy.

Curls for days.

Curls for days. January 2013.

If you haven’t already, buckle up. Here comes some truth. And it’s not going to be sugar-coated. I mean, come on… you know me by now, right?! I felt like utter shit after my first round of this new treatment. Ugh. Horrendous. Chemo itself already makes me feel awful, but combined with this new injection, I was bed-ridden for about four days. Most people enduring cancer treatments often find it hard to describe what they feel like after each cocktail, and I am no different. My best description is this: Imagine having the worst case of the flu. Complete with fever, stomach ache, diarrhea, and constipation (believe me, it’s possible). Add to that a grueling headache that won’t go away, severe body aches, and skin sensitivity. Mix in a weird and itchy rash on the tops of your hands. And, to top it off, throw in a semi-truck running over your hips, pelvis, and lower back. All that makes for a wonderful chemo-filled sundae topped with some Neulasta sprinkles. And no, I did not get run over by a semi, I was being descriptive. My husband will argue that it’s exaggerative, but I stick to “descriptive.” Needless to say, I felt dreadful, filthy, exhausted, lousy, horrendous, and gross. And like I’ve mentioned before, when I’m not feeling great physically, it takes everything in me to stay positive mentally. That first week, I truly felt defeated. There’s no other way to say it. My dad always tells me, “You’ve got to remind yourself that it will get better. You know that by now. If you can get through this week of feeling crappy, you will eventually feel good again!” He’s right, but damn, it’s hard to accept in the midst.

The good news is, Dad is right. It does get better, and it did. I began to feel better Christmas morning, and it has continued through today. Having good days really is a blessing. I have been able to cook, clean, and take care of my husband and our home. In addition, we’ve been able to enjoy time together and with family and friends. I am thankful for every good day that God gives me. Each good day allows me to fully enjoy the life that God has breathed into my body.

As we are all familiar with, my hair falls out when I receive chemotherapy. The fact that I am receiving a different drug does not change that. In fact, this time around, my hair began to fall out sooner than expected. Usually it takes two weeks (to the day) to fall out. This time it began to fall out a day before expected. I chose to take my husband’s perspective on this one and say, “Chemo must really be working!”  Nevertheless, losing hair still sucks. For some reason I thought maybe this time would be no problem, but I was wrong. This is the third time that I have lost my hair, and again, third time is NOT a charm. It was almost harder this time than previously. Losing my hair is a visual reminder for me that I am actually fighting cancer again. When I had my new hair regrowth and was going through my first chemo session this time, I was still able to style my curls and was subconsciously fooling myself into believing, “I just go into the doctors every now and then.” Now that I am losing my hair I think, “I just go into the doctors every now and then… for chemotherapy to fight cancer.”

Check out that texture!

Check out that texture!

Frankly, I really began to love my short hair. I’ve heard many times that chemo can cause a person’s hair to grow back differently- texture, color, thickness. I can attest, this is true! Mine grew back extremely curly! Before I first lost my hair in March, it was slightly wavy. It could be straight, and would also hold a curl very well. However, it was processed (I wasn’t a natural blonde, believe it or not) and therefore most of the natural wave had been reduced. The hair that had begun to grow back since my last treatments in August was extremely thick and full of tight curls. It resembled the texture my hair was when I was a toddler, before hair color, flat irons, and blow dryers. Losing the locks that I loved was hard. Hair regrowth helped me see that I was really done with treatment, that I was cancer-free. Hair loss forces me to see that I am back in the game. While it’s easy to host a pity-party (which I’ve already done some), I am confident in beating this thing again. I’ve said it before, and I’ll say it again: I’d rather be alive and bald, than dead with incredible hair. And while we’re being Positive Polly, I’ll add… I truly adore my new blonde wig. It’s the first time that I’ve felt like me in a long time. It’s nice to look in the mirror and see my hot blonde self smiling back.

Ultimately, my hair will grow back. For now, I’m going to embrace being baldalicious and kick cancer’s ass for the second time. Pretty soon, this stupid, little, annoying bug called cancer is going to run away, begging me to stop torturing it.

Joshua 1:9 (MSG)

“Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”

11
Dec
2012

Wigs and Warfare

It’s me again! Stephanie is back and ready to update y’all! But before going further, let me first take a minute to applaud my incredible husband for keeping my readers informed through the entire surgery process. Doesn’t he write wonderfully? I’m pretty proud of this man who I get to call my husband. He’s a total stud. He continues to be by my side through the highs and extreme lows of this adventure…and all the while, keeping you in the loop! I’ll save all the details about him for another blog post, but for now, let me get you up to date.

My stay in the hospital was exhausting. Physically. Emotionally. Spiritually. It’s been about eight days since I was discharged, and I just now feel like I’m settling into the groove. I was discharged the day after Matt last posted. Like he mentioned, my medical team discovered an alarmingly low heart rate and irregular heart beat, and wanted to dig deeper. Easy enough for them…they didn’t have to undergo those insane tests. Once we changed floors and got comfortable in our new room, I was immediately hooked up to a heart rate monitor. This allowed the nurses to watch exactly what my heart was doing at all times. In addition, the following day, an Echocardiogram was ordered. This test is a Sonogram for the heart and monitors the natural rhythm to determine if my organ is functioning properly. Once that was complete, I was transported to the radiology department to receive a PET Rubidium scan and another CT scan. Long story short, I hope I never have to receive another Rubidium scan. Ever heard of a stress test? That’s exactly what it is. Except, nowadays, instead of having a patient who recently had surgery walk on a treadmill, we are placed in a PET scan bed and injected with a special medicine that acts as stress. Oh. My. Stressed is an understatement. I’m always timid to put exact details of scans, tests, and procedures on here for everyone to see, because my intentions are not to scare you. My intentions are truly just to inform. If you get scared, I’m sorry.

To be honest, once this “stress medicine” was injected, I rapidly felt my heart rate skyrocket. I tried not to panic. I took deep breaths and prayed the entire time. For about five to seven minutes, I experienced what I think most heart attack patients may experience. My chest hurt. I felt as though my heart would beat out of my eyeballs and right into my lap. I was sweating. And all I could do was pray that it would be over soon. I’m not a drama queen folks, but I can admit, I did pray… “Lord, please don’t let me die.” Yes, it was that bad. I had tears streaming from my eyes when I was placed back in the wheelchair to be taken to my room again. Once the doors opened and my husband laid eyes on his obviously distraught wife, I could see the anger begin to overflow. I could imagine exactly what was going through his head, and picture it to be something like this: “What the hell did you do to my wife? Why is she crying? I’m going to make you pay!” Once he understood that I was alright and would give him the details when we arrived back at our room, he calmed down. While he has a tendency of being over protective, I am so grateful that I have a husband who cares so deeply about my welfare.

All that to say, my test results came back fine. They did notice the irregular beat and low rate at which my heart was functioning, but it wasn’t alarming. They ordered these tests to rule out blood clots, and that’s exactly what they did. I was free of any clots, and frankly, free of all tears as well. Because I was unable to ingest any solid food or liquids the day of my tests, I was starving when I got back to my room. It was already around four o’clock, and I had nothing in my system since the previous night. All I wanted was some french toast, fresh fruit, and a big piece of cake. And, because of my sweet nurse, I got exactly that! She quickly dialed the cafeteria, and might as well had said, “You better get that food here in two minutes, or else!” Again, I am very grateful for the strong team God continues to place in this game. To add, all of my nurses during my four-day stay were amazing. God placed each and every one of them on my path, and they were each perfect for the job. I really like to form relationships with my caretakers in the hospital, and did just that. I’ve left wondering how they are doing, and look forward to possibly seeing them again someday…Under different circumstances, of course!

Currently, I am still very sore, bruised, and swollen from surgery. I have a total muffin top beginning at my scar line. My belly just hangs there, and it’s extremely unappealing. Good thing my husband loves me regardless! I am finally able to move around without excruciating pain, and am starting to function a little more typically. Matt no longer has to physically help me in and out of bed, and that is a huge victory! I visited my General Oncologist today and after checking out my scar, he was shocked at how quickly I’m healing. I’m young, fit, and strong…what can I say? I also have an army praying for a fast recovery. God’s got me on lock-down. At my appointment today, we discussed the next phase of treatment. Chemotherapy. We talked about which specific chemo drug all my doctors agree on administering, and the schedule at which I will receive it. Before posting concrete plans, I need to confirm with my Gynecologic Oncologist that this is what she would like to do. Most likely she is on the same page, and in which case, I will begin chemo next week. Again, until everything is solidified I can’t be specific as far as how often I will receive doses or how long this next phase will last. However, I am so ready to get this train rollin’! Chemo cocktails never sounded so good until right about now. The waiting and in-between is really the hardest part.

For those who have followed my story, you know that God is the One for big blessings. He hasn’t ceased dropping down those gifts from above. Some, Matt has included in his previous post, and I’d like to reiterate that God is good. Here is why:

  1. When my Gyn Oncologist/surgeon opened me up in surgery, the tumor popped right up. It was completely encased in a mucus lining, therefore it was all intact. This is not the case for some cancers. Some tumors are not circular and are rather jagged, which makes it nearly impossible to remove the entire mass.
  2. Because of its mucus lining, my surgeon was able to remove the entirety of the mass.
  3. The tumor was not connected to my colon, and therefore I did not need any form of a colostomy.
  4. The PET scan immediately following surgery showed no signs of carcinoma anywhere else in my body.
  5. My surgeon was able to create an incision at my original hysterectomy scar line. In fact, she removed my previous scar, so now I only have one scar right above my pubic area.
  6. I am still alive and breathing. God continues to bless me with more days to glorify Him. Hallelujah!

This past week I have been recovering and taking it easy. My body is beginning to function normally again, which I am grateful. We continue to have wonderful support from friends and family, and at a time like this, it’s been extremely helpful. Like I mentioned, I’m finally able to be a little more up and active, and I even felt well enough to make it to church yesterday. I’ve learned that through the storm, instead of hiding out and suffering alone, it is better to surround yourself with joyful people. The most joyous place we enjoy is our church, in the presence of God and surrounded by friends. Needless to say, my spirits were lifted greatly by being in that environment yesterday. In addition, I’ve picked out a new wig! And let me tell you, she is gorgeous! Most know that when I first began this journey, before I lost my hair, I was blonde. Not naturally, but shhh. This time, I decided to go back blonde, and I have been gifted a stunning wig of human hair. Although I’ve been loving my short curly and wavy hair that has grown, I won’t miss it so much now that I have some blonde to rock!

Back to Blonde! Stephanie wearing her new wig. (December 2012)

Back to Blonde! Stephanie wearing her new wig. (December 2012)

At the bottom of this entry, I am including a link. A link in order for you to make a choice. As you know, I don’t like to sugarcoat anything, and have always remained open and honest. However, I do understand that some of my readers have sensitive stomachs, and for that I have chosen to create a clickable link so you are able to make the choice to view this image or not. This link is graphic. This link will show you exactly what is trying to take my life. This link might frighten you. Please don’t let it. This link is to a medical picture of the cancerous tumor my surgeon removed last week. You may wonder why I have a photograph of it. I want to see what is trying to ruin me. I want to see exactly what I am fighting so hard to defeat. I need to have a visual of the enemy; The enemy that is getting kicked around, poisoned, stomped on… and ultimately defeated. I feel the need to share this with you, so that you are able to see what you are praying against. I understand if you have a sensitive stomach and can not handle a medical picture of this nature. Whether you choose to view my tumor or not, I thank you for allowing me to be transparent and share the entirety of my journey through cancer with you.

Click HERE to see a picture of the cancerous tumor. (Graphic medical image)

John 10:6-10 (MSG Version)

“Jesus told this simple story, but they had no idea what he was talking about. So he tried again. ‘I’ll be explicit, then. I am the Gate for the sheep. All those others are up to no good—sheep stealers, every one of them. But the sheep didn’t listen to them. I am the Gate. Anyone who goes through me will be cared for—will freely go in and out, and find pasture. A thief is only there to steal and kill and destroy. I came so they can have real and eternal life, more and better life than they ever dreamed of.'”

29
Nov
2012

He Answers

Let me begin by saying that I am completely and utterly overwhelmed at the amount of support I have on my team. Thank you to those who have sent encouraging messages, comments, phone calls, and texts. Thank you to my loyal readers who have followed me from my initial diagnosis and continue to stand by me through this next journey by uplifting me in prayer. Also, a big thanks to my new followers who found me through an internet search or word of mouth. I have a whole army of prayer warriors, and I am humbled that you each care so deeply about my victory. In fact, from yesterday’s posts until now, I have had well over 2,000 views on my blog. Thank you for sharing my story and spreading the hope!

My sweet husband and I went to bed last night with a huge prayer request on our hearts. We desperately wanted to hear back from this doctor at MD Anderson, and fervently asked God that we would hear from him personally in the morning. Bright and early, my phone rang. It was a Houston number. In fact, it was the physician. I immediately answered and was able to speak directly to the doctor I so desperately needed. Long story short, he completely agreed that I need immediate surgery to remove the mass. Chemotherapy before surgery just won’t cut it. We’ve got to get this beast out of me as soon as possible. In addition, he encouraged me to remain positive and believe that with this surgery, there will be no more signs of cancer in my body, and that I will beat this. I told him, “Doc, I’ve got this…I’m very confident that I’ll beat cancer!” Not only did he confirm our beliefs for immediate action, he doesn’t find it necessary for us to travel to Houston just yet. He believes that everything my doctors are doing here, is what he himself would do there. Praise God! Now we don’t have to worry about traveling and all of the insurance hoopla! With all that being said, it’s true…God answers prayer. Not that we have ever doubted that for a second, however, while we’ve known that for most of our lives, we can’t recall such a big prayer being answered so quickly. Right when I’m not sure, God shows up. He’s right here, and while I can’t see Him, I know His hand is all over this situation.

Now that that prayer has been answered, we would like to share another one. After further speaking with my Gynecologic Oncologist, who happens to be my previous surgeon and will be this time as well, she informed me of the exact location of my tumor. It is hanging out right next to my sigmoid colon. In easier terms, it’s partying right around my lower colon/bowels. Because of its location, she won’t be able to know for a fact if it’s actually connected to that organ or not until she opens me up. There are three possibilities we are facing. One: She begins surgery and sees that the mass is not connected to my colon, and can therefore, easily remove the tumor without anything else. Two: My tumor appears to be slightly attached or embedded in my colon, in which case she would need to remove part of my colon, and perform a temporary colostomy. Temporary meaning, I would receive a colostomy until my chemotherapy was finished and as long as there is not another recurrence, she will later repair my colon. Three: The monster is too deeply attached or embedded in the colon, and she will need to remove the organ and perform a permanent colostomy. For those who are unaware of the medical procedure I’m referring to, feel free to look it up here. To be frank, while I know that a colostomy is not the end of the world, and will allow me to live a fairly normal life, I’d really prefer not to have to go down this path. Please pray and believe with us that the tumor is not attached to my colon and that my surgeon will easily be able to remove it without having to remove the organ as well. We know that God answers prayer, and are standing firm in our faith.

As I have mentioned, surgery is a priority. It needs to happen immediately, and now that all of my doctors are on the same page, we can proceed. Buckle up friends…My procedure has been scheduled for tomorrow morning. Yes…tomorrow, Friday the 29th, as in less than fifteen hours from now. We are more than okay with this, and in fact, are welcoming it. We understand that in order to ensure the best possible outcome, this mass needs to be removed. I’m ready to have this thing out of me. While we know and appreciate that many of you will want to stop by beforehand to pray with us, we politely ask that you pray from where you’re at in order to ensure that the waiting room does not overflow. Plus, if I didn’t have to be up and around before 6am, I wouldn’t. Therefore, you shouldn’t have to! Surgery will begin around 7:30am. For those out-of-state, we are on mountain time. Matt will be taking the reins and doing guest posts to update everyone on my progress. The surgery should take two hours, and I will be in recovery for a couple of hours as well. By noon, I should be in my room highly medicated for the expected pain that I will be experiencing. Is it wrong to say that I’m looking forward to that part? No, not the pain…the medicine! By Saturday I am sure I will be comfortably settled in and more than willing to have visitors. For those wanting to visit, please text myself or Matt.

To recap: Tomorrow morning I’m getting cut open. Pray that the tumor is not attached to my colon, or any other organs for that matter. Pray for wisdom and guidance for my surgical team. Pray for a smooth surgery and a speedy recovery. Pray for my dear husband, that he will feel the supernatural hand of God and that he will experience peace, calm, and assurance. And please pray for me, that God will give me strength, peace, and confidence. Neither of us are very nervous now, but it might be a different story in the morning.

For those who might be anxious about this procedure and the trial we face… know that we are confident in a complete healing. We rely on our Savior to direct our steps. He has gone before us and has prepared the way.

I’ve beat cancer once, and I’ll beat it again.

Psalm 18:32-42 (The Message)

“Is there any god like God? Are we not at bedrock? Is not this the God who armed me, then aimed me in the right direction? Now I run like a deer; I’m king of the mountain. He shows me how to fight; I can bend a bronze bow! You protect me with salvation-armor; you hold me up with a firm hand, caress me with your gentle ways. You cleared the ground under me so my footing was firm. When I chased my enemies I caught them; I didn’t let go till they were dead men. I nailed them; they were down for good; then I walked all over them. You armed me well for this fight, you smashed the upstarts. You made my enemies turn tail, and I wiped out the haters. They cried “uncle” but Uncle didn’t come; They yelled for God and got no for an answer. I ground them to dust; they gusted in the wind. I threw them out, like garbage in the gutter.”

28
Nov
2012

It Won’t Win, Because I Won’t Lose

Last Tuesday, November 20th, I received a regular three-month follow-up scan. Typically I would have received a PET (full body) scan, however, our insurance is not cancer-patient friendly. Apparently, because my last PET scan in August came back clear of cancer, they deemed it unnecessary to cover any further PET scans unless a CT (localized) scan came back showing anything. Ridiculous, I know. Don’t get me started…frankly that’s beside the point.

I got a call from my Gynecologic Oncologist just two days ago, on the 26th. She immediately asked where I was, which in my heart, I knew was a bad sign. I was right. She informed me that my cancer has recurred. Dammit.

While we aren’t sure of the exact blueprints of this next treatment journey, I will give you as much information as we currently know. The mass that appeared in the CT scan is exactly the size of a softball. Yes, you read that correctly…a softball. Honestly, it’s one centimeter bigger than an adult softball. But that’s semantics. At it’s widest, it’s nearly four inches (9.8cm) in diameter. Shocking, I know. Clearly, this type of cancer is proving to be as aggressive as we were initially told. In August there were no signs of cancer, and only three months later, there is a beastly tumor the size of a softball growing inside my body. This circular mass has been located in the same general vicinity as my original golf-ball sized tumor. It is near my pelvic region, and close to my mid abdomen around my belly button.  It’s closer to my left side, and I can actually feel it.

About one month ago, I began experiencing pain in this exact location of my lower abdomen. Because the doctors usually push around my stomach when I get any check-ups, I thought I’d give it a go. I definitely didn’t expect to feel anything. But I did. I felt a hard mass. Because having already battled cancer often tends to making us survivors paranoid and hyper sensitive to any changes in our bodies, I tried to brush it off as nothing. Three weeks ago, I had a regular three-month follow-up with my doctor and informed her about this sudden change in my body. She explained that based on how our intestinal tract works, it most likely was just a back up of stool and that she couldn’t feel anything during her internal exam. In fact, my pap smear results were normal. However, the pain continued and progressed. Days went by and the mass remained. I chalked it up to being constipated. Maybe I was just more backed up than I thought.

Now that the CT results are in, we can most definitely connect the pain and hardness to this mass that has been discovered. My constipation is also a symptom. While, we don’t know exactly where this monster is thriving, my doctors believe it’s getting it’s blood supply from my bowels. That means lower intestinal tract. Hence the constipation. This beast is sucking the life out of my lower organs. And, have I mentioned how huge it is? I’m still shocked.

Where we go from here is a little up in the air right now. Surgery, radiation, and chemo are all on the table again. It’s a matter of the sequence of these treatments in determining the effectiveness. Late yesterday afternoon we met with a General Oncologist that my Gyn Oncologist recommended we see. Once we met this doctor, we immediately adored him. God has sent us another key player for our team. He is a genius when it comes to chemotherapy. He knows all the different types of drugs and their side effects. His knowledge immediately put us at ease. In addition, he treats a lot of lung cancer patients. Most lung carcinomas are similar to my Neuroendrocrine cancer. He knows his stuff. All of my doctors do, and we are so grateful for that. After explaining to us what we were dealing with, he began to talk about treatment options. Surgery first, then chemo? Chemo to shrink it and then surgery to remove it? While my current three Oncologists (Radiation Onc, Gynecologic Onc, and General Onc) are well versed, they really want the opinion of another expert.

As most know, MD Anderson is the biggest and best cancer center in America. Through word of mouth and recommendations, we have learned of a special doctor in Houston who is the lead researcher for my exact type of cancer. He is continually studying how my carcinoma works and what the most effective treatments are. Therefore, we need to get to Houston to see this expert immediately. My Oncologists here agree that I need to get out there as soon as possible… Like yesterday. However, remember the hoopla with our insurance? Again, they deem it unnecessary for me to travel outside of our basic providers to receive a consultation or treatment out-of-state. Completely asinine.  Essentially, they require that my doctors here call the authorization department of our insurance company and explain the urgency and necessity of this MD Anderson visit. Being fed up, I asked what it would cost to get an appointment without using our insurance and the receptionist answered, “$27,000.” Needless to say, we need insurance to agree to cover this out-of-state doctor’s visit. That’s a huge prayer request of ours right now.

Long story short, we need to get this ball rolling. This cancer is fast-growing and more aggressive than I ever imagined. I’m desperate to get this monster out of me. I want it gone, and I will do whatever it takes. I’ll go to Zimbabwe to receive a shot made from monkey saliva if I need to. Whatever it takes. And not to mention, this sucker hurts. We knew cancer was mean, but this is at a whole different level. My stomach throbs, and any time I touch it, it fires back… Umm, no sir. You will not win. We are going to poke, prod, cut, poison, and demolish you. Get the hell out of me.

It is imperative that I receive a PET scan in the next few days. Our team and I want to make sure it hasn’t grown anywhere else. They definitely want to check my lungs and my brain for any traces of malignancy. My team of doctors is having my case meeting today to discuss my situation and what the best course of action they believe will be. They are also going to conference call the doctor in Houston to try and see if any strings can be pulled for us to get in to see him. We could be going to Houston as early as tonight or the beginning of next week. I could also be in surgery as early as next week. And chemo might or might not start before then. Everything is dependent on my local doctors communicating with this Oncologist in Houston and getting on the same page. They understand the urgency of my situation, and are willing to do whatever it takes as well. We are all in agreement as far as getting this ball rolling as quickly and effectively as we can. We will continue to keep you updated as soon as we have a more solid plan.

Initially the news rocked us. I was deeply saddened and frustrated that we would have to go through all of this again. My husband was pissed. His anger was directed at God. “How could you allow this to happen again!?” But after a night of grieving, we woke up yesterday with a fire under our asses. My strong guardian of a husband, wrapped his arms around me and said, “It may sound weird, but I’m not scared at all.” And I feel the same. We aren’t scared because we are confident that with God on our side, we can beat this. We will beat this. I will be cancer-free again. And for more than a few weeks this time. I am determined to fight this battle and stomp on the enemy’s intentions. The enemy wants to defeat me, and there is no way we are going to let that happen. I’ve already told God that he’s going to have to drag me kicking and screaming out of this world. As incredible as Heaven sounds, I’m definitely not ready to make it my home yet. I’ve got way too many things to do on Earth. We’ve got babies to be had, memories to be made, and many more years to experience. Our faith is strong and our fire is burning. We know we are about to endure another intense and difficult battle, but there is nothing to fear. After all, “God has overcome the world.” Our victory is in Him.

Cancer will not win, because I will not lose.

Mark 4:35-40 (The Message)

“Late that day he said to them, ‘Let’s go across to the other side.’ They took him in the boat as he was. Other boats came along. A huge storm came up. Waves poured into the boat, threatening to sink it. And Jesus was in the stern, head on a pillow, sleeping! They roused him, saying, ‘Teacher, is it nothing to you that we’re going down?’ Awake now, he told the wind to pipe down and said to the sea, ‘Quiet! Settle down!’ The wind ran out of breath; the sea became smooth as glass. Jesus reprimanded the disciples: ‘Why are you such cowards? Don’t you have any faith at all?'”

08
Nov
2012

Bittersweet and Thankful

Matt and Stephanie. (May 2010)

We’ve been waiting for nearly a year to hear the news. Are biological children a part of our story?

You can read about when we first had to make the difficult decision to either proceed with my hysterectomy, or to hold off and harvest my eggs here . Thankfully, we proceeded with the surgery and I am still alive today. Cancer-free, mind you. Because my Oncologist understood our desire for biological children, and because my ovaries had not been touched by this disease, she decided to transpose them to a higher location in my abdomen; she moved them with hopes that they could be protected from the harmful radiation procedures. Three months after my last cancer treatment, we were told I could take a blood test that would determine if my ovaries were still in working condition. I took the FSH/LH/Estrogen test last week and we received the results a couple of days ago.

“Your current FSH (Follicle Stimulating Hormone) is at a 48.8. A normal FSH is less than 10, and an FSH greater than 20 is generally not recommended to use your own eggs to try to get pregnant. At a 48, it’s unfortunately pretty bad news. It looks like your cancer treatments had a very bad effect on your ovaries, which is pretty common. It looks like that is probably not an option now.”

For those who have been close to us through this journey, you know that we just wanted an answer. Is it a yes or a no for “bio-kids?” Regardless of the outcome, we wanted to know what path we needed to further investigate. Although it’s bittersweet, we are very thankful to finally have an answer. And God is still good. We now can focus more on the process of finding our children, and not on the process of personally conceiving our own. Adoption is a life-changing journey for all involved, and we have spoken about this option before we even got married. Adoption has always been on the table. To be honest, we thought it would be just that… an option. However, we have now discovered that God has intentionally called us to this form of parenting. Although our fertility nurse has told us that it’s bad news, we are choosing to see it as a blessing. Our story continues to have chapters that few people experience, and for that not only are we grateful, but we think it’s pretty cool, too.

Being grateful is a powerful thing. When you can look beyond your circumstances and see the gifts you’ve been blessed with, your life will transform. My husband and I are thankful that I am still here on this earth. Because of that, I can continue to be a loving wife and will still have the chance to be a mother someday. We are thankful that God continues to reign over our story and direct our path. We are thankful that we have each other and are confident that our journey to adoption is going to be full of joy. We continue to look forward to uncovering God’s plan for our lives, and we will never cease our praise for the wonderful things He has done and will continue to do. Even though our hearts were set, God knows ultimately what is best for us. And frankly, how awesome is it that we get to go down the road less traveled?!

Alongside our grateful hearts, we are still grieving. Through marriage you learn the differences between men and women, and this adventure has continued to shine light on that. As a woman, I think we generally process things a lot quicker. I have been grieving since the day my reproductive organs were removed. It’s gotten easier as the days and months have gone by, but there are still moments where I am sad that I will never be able to feel my child from inside my womb. Men take a little longer to process change. Matt has held on and believed with great faith that my eggs would still be alive and well. With this news, it has brought a finality to the hope he carried. For him, it’s almost as if the grieving has just begun. We ask that you continue to pray for peace and understanding in this time. We are in this together, and continue to cling to each other on this roller coaster through life. The fact still remains: Matt will be a daddy, and I a mommy; We WILL be parents. No matter if our children come from our bodies or from someone else’s they will still be our own. It’ll be a momentous occasion when we can tell our children how truly hard we fought for them.

Now that we know how we will have children, many are probably wondering when we will begin “trying” for kids. We are blessed to have several friends who have chosen adoption, or who themselves are adopted; therefore, we have many close resources to turn to. We will begin researching, learning, and gathering as much information about adoption that we possibly can. However, we have decided that until I reach my two-year mark clean and clear of cancer, children are going to have to wait a little while. After all, we want to make sure that our children get a healthy mom and not a sick one. Until we decide to be open for placement, we will continue to fill our brains with as much knowledge that can fit. We will attend seminars, information meetings, and read as many articles on adoption that is available to us. We believe that the more knowledge we obtain, the better the journey will be.

We have been praying for our children for years, and look forward to when God chooses to place them into our life. For now, He’s got them…And I feel confident knowing, He’s the best babysitter out there.

Psalm 113:4-9 (The Message)

“God is higher than anything and anyone, outshining everything you can see in the skies. Who can compare with God, our God, so majestically enthroned, surveying his magnificent heavens and earth? He picks up the poor from out of the dirt, rescues the wretched who’ve been thrown out with the trash, seats them among the honored guests, a place of honor among the brightest and best. He gives childless couples a family, gives them joy as the parents of children. Hallelujah!”

25
Sep
2012

Confessions of a Planaholic

Things are changing. And surprisingly enough, I’m okay with it.

Those who know me can testify that I am an organizer. Not only did I have to search for years to find the perfect planner, but now that I have, I write absolutely everything in it. Everything. Seriously. Since I’ve started my weight loss regimen, I even include what I eat every single day. I plan weeks and sometimes even months in advance. I take my planner seriously. I carry it with me everywhere. I jot down thoughts, brainstorms, grocery lists, workouts, and of course, the vast list of tasks I need to complete. I have several friends who are free birds, who go with the flow and don’t need to write anything on their calendars. That’s simply not me. I’m afraid that if I tried that, I would most likely forget to do anything. In other words, I’m a planaholic.

I’ve learned quite a lot this past year. One of the more obvious being, planning and cancer don’t always mix. I laugh looking through the months that I was going through treatment, because the only things I ever wrote were “surgery,” “radiation,” “chemotherapy,” “blood draw,” and “doctor’s appointment.” Grocery lists, workouts, weekly meal plans, and errands no longer mattered. Fact is, my only plan was to fight and beat cancer. In fact, in the “to-do” section of each month I wrote, “fight cancer.” In the “goals” section I wrote, “cancer-free.” I laugh because I like to organize every step of my life. Prior to my diagnosis, my husband and I had the following few years set in stone. Well, at least in our minds. We had plans to move, have children, and buy a home. Exactly eight months ago everything changed.

God’s plans don’t always align with ours. While at first I was shocked that our designs for the future might come crashing down, I now understand that God has bigger and better plans for us. Our dreams remain, but the timing is no longer ours. We will definitely move. We will definitely have children. And we will definitely buy a home. I believe that God still has those in mind for us, however they just won’t happen when or how we originally thought they would. Although it’s taken me a while to come to grips with that, I am extremely thankful that we are walking the path that is paved by Him and not by us. His plan is perfect. Ours is not. And being flexible allows you to genuinely live a life for Him.

Besides the obvious changes, other facts are changing as well. I’m no longer bald… anywhere. I am currently sporting a very short buzz-cut. My hair is coming in splotchy and irregular, but it’s there nonetheless. Once my camera can capture my G.I. Jane style, I’ll post pictures. As for now, you’ll just have to imagine it. Unfortunately, the hair on my head isn’t the only thing coming back. I forgot how much I had to shave my legs. I also forgot how annoying it would be to leave the house forgetting to shave my underarms. My showers are significantly longer nowadays. Whereas before I could get away with five minutes, it’s now doubled, if not tripled. I definitely got used to the jump-in-and-out method.

I’m also going back to work. Due to the rigid schedule of treatment, and my lack of health and energy, I haven’t been able to work. However, now that I have received my first clean bill of health and have regained a lot of my strength, I have chosen to start my job again. To say I am excited is an understatement. Once we get back from our cancer-free celebration in California, I will return to the family I was nannying prior to diagnosis.

My body changed drastically over the course of treatment. Like I’ve mentioned in previous posts, I gained about twenty-five to thirty pounds. Thankfully, that is changing as well. In fact, since I began working out five days a week and eating super clean, I have lost a total of fifteen pounds. Fifteen in thirty-five days. I’m pretty proud of myself. To say it’s easy would be laughable. I’ve been kicking my own ass for some time now, and it doesn’t get easier. What keeps me going is seeing my body change and the numbers on the scale continue to drop. My face is starting to look like my own again, and not that of a blown up character in the Macy’s Day Parade.

I always used to think that I embraced change. After all, I did like to rearrange the furniture in our house every now and then. I used to think that I was flexible; I wouldn’t mind if plans with friends got rescheduled. But change and flexibility have taken on new meanings for me. While I was flexible with details changing in the past, I never considered the whole picture changing. I’m talking about LIFE changes… Big, scary, unknown, and unplanned modifications. Shifts to the entire picture my husband and I had painted for ourselves. Our life canvas has been completely erased, and now we are looking forward to what God wants to create for us. Our life has been directed down a different road. One that we couldn’t see with a telescope. But, you know what? I’m grateful. Now that I get a glimpse into what His plans are, our previous plans seem so minuscule and boring. We can try our hardest to plan out every area of our lives, but if it’s not what He wants, it simply won’t happen.

I can and will continue to plan my life. I will continue to jot down every last bit of information in my brain, in hopes that I won’t forget it. I’ll continue to make plans with friends. My husband and I will continue to plan our future. But now, we have a much larger perspective on embracing change and being flexible. Just as often as we make plans, God will readjust them.

If God wants to change your plans, will you be flexible?

Proverbs 16:9 (ESV)

“The heart of man plans his way, but the Lord establishes his steps.”

11
Sep
2012

Making a Difference


It’s official. I’m in a magazine. And it’s exciting, weird, mind-blowing, and purely awesome.

With every blog I post, and every email I receive from readers who have been touched by my story, the more I want to share it. Thanks to a great friend of mine who works at the hospital I frequent, my story has been publicized. I can’t help but feel proud and happy that my battle has not gone unnoticed. That may sound boastful, but I truly mean it without any ego. It touches my heart to know that God didn’t just get bored one day and think, “I think I’ll spice up their lives by allowing her to get cancer!” (although, sometimes it does feel like the divine version of Emeril Legasse just went “BAM” with my life’s recipe). On the contrary, He allowed this diagnosis as a way of not only helping me grow and learn new perspectives, but to help others through their life’s diagnosis’. For those who have written me with similar stories of cancer, inability to carry your own child, and the many other struggles, I want you to know that I deeply appreciate it. It encourages me to know that through my story, you are receiving hope as well. If that’s all I gain through this adventure, I am satisfied.

I want to share my journey. I know I already have and will continue to through this blog, however, I feel called to something bigger than this. The fire is burning inside of me and my passion for helping others find hope and strength in their journeys is reaching new heights. I’ve mentioned it to a few close friends and family recently, and now seems like the right time to share it with the rest of you. Truth is, I feel called to speak. At small and/or big events and one on one settings- regardless, I feel like God has given me this story for a reason. I have said that since the beginning, and I still strongly believe it. God has given me this story to share, and my job is to read the pages.

Little tid-bit: I’m frightened of public speaking. I speak in public daily and I definitely can talk a lot (my husband will nod his head in agreement while reading this). Yet, standing alone in front of a group of people with all eyes on me is slightly intimidating. Granted, I haven’t spoken in front of a large group of people since high school. And, it’s not as if I’m sharing a story I know nothing about. This speech I know. This journey I’ve walked. This book I’ve read. There is no memorizing the dates and events that happened. It’s written in my brain permanently. And lately, when I think I can’t possibly do something, I always remind myself, “Chick, you freakin’ beat cancer. Of course you can do ____!” When it comes down to it, yes I CAN share the good news with people. Yes I CAN spread hope and shine light in the darkness. Yes I CAN tell people that no matter how shitty (no better word, folks) things get, you WILL fight your hardest and you are stronger and braver than you think. At the end of the day, it’s not about public speaking. It’s about sharing hope, spreading strength, and inspiring courage. Now, that I can do.

When everything is stripped away, it’s not about me, it’s about Him.

John 15:16-17 (ESV)

“‘You did not choose me, but I chose you and appointed you that you should go and bear fruit and that your fruit should abide, so that whatever you ask the Father in my name, he may give it to you. These things I command you, so that you will love one another.'”

09
Sep
2012

Obsessing Over Hair

Tonight, instead of watching the Broncos game (shame on me), I find myself obsessing over my hair. Let’s rephrase…my lack of hair. To be honest, it started coming back a few days ago. For those who are unfamiliar with hair re-growth after chemotherapy, let me use this time to inform you. When I say “it’s growing back”, in no way do I mean, “I have a full head of hair”. I’m not even sure I can legitimately call it “hair”, as it resembles peach fuzz more or less. When hair grows back after falling out from chemo, it comes in very soft and thin. Think: newborn hair. And although mine has started coming in, which I am grateful for, it’s still so very soft and fine. I really miss having a full head of thick, beautiful, long locks.

I realize I haven’t done a detailed post about hair, and haven’t shared many (if any) pictures about my hair loss process. To give you a better idea about my journey losing, regrowing, losing again, and now regrowing my mane, I’ll need to start at the beginning. For those who love pictures: buckle up, you’re in for a full-on illustrated story.

My locks in February 2012

Prior to my chemotherapy treatments, I had been growing my hair out. It was actually the longest it has ever been in my life. Ha! Kind of funny that when it was at it’s longest, it fell out. Let’s just say, I was totally diggin’ my hair seven months ago.

Volume…Glorious! February 2012

And then, two weeks to the day of starting chemotherapy treatments, my mop began to drop…literally. To the floor, and all over my pillow, and somehow my strands even found their way into my socks. True story. Hair loss from chemo doesn’t hurt. In fact, when it first happened, it was comical. I could run my hands through my hair, and chunks of it would come out. I even asked my husband to take a turn and pull some out. He was shocked that he could literally rip a fist-full of blonde right out of my head. Hilarious! (I guess you had to be there.) Washing my hair became pointless. In the midst of shampooing, the strands that fell out would mix themselves up in the suds and “left-behinds”, and turn into a knotted, gnarly mess. Check out how much hair I would lose in the shower…

No, that’s not a joke. Hair loss from ONE shower. March 2012

People who lose their locks due to chemotherapy deal with the loss differently. Some shave it off before it begins to fall out, while others wait until they only have a few strands on their head. As for me, I waited until I could no longer deal with having hair all over everything. It became so annoying. Hair on my clothes, in the sheets, on my pillow, in the car, and on my husband. I was very ready to just get rid of it. However, strange as it may sound, I saved all of it. Well, all the strands I could find. Yes, that means I went through the sheets, pillow, and clothes on a daily basis and picked all the hair off to place them into ziploc bags. That sounds so weird, but I really did it. And just to creep you out a little more… I have four bags full of my hair in one of my dresser drawers. Check out Exhibit A-

Smallest bag o’ hair. March 2012

When I had finally had enough, my husband and I had a head-shaving party. He shaved mine, I shaved his. It was one of the most intimate parties I have ever been to. Besides our dear friend (and photographer), it was just the two of us. I was scared, excited, sad, and nervous. Scared, because shaving my head forced me to have a visual reminder every day that I was fighting cancer. Excited, because I couldn’t wait to get rid of my worthless mane. Sad, because deep inside, I really didn’t want to give up my locks. And nervous, because I had never been bald before.

Sadness and grief. March 2012

Shaving my head symbolized me taking control over my situation. I was not going to let cancer continue to take pieces away from me daily. I would grab this ruthless monster by the throat and do things on my terms. When I passed the grief and tears, I became elated. I had conquered my hair loss by taking matters into my own hands, and I would conquer cancer.

Take that, cancer. March 2012

Pretty soon, I was baldalicious. And, frankly, I didn’t mind it. Having no hair meant that many minutes were knocked off my morning regimen. No hair to blow dry, flat iron, or curl. There is a bright side! Plus, I’m sure my husband appreciated that I was spending less time in front of the mirror each day.

First time seeing myself bald. March 2012

Once I completed my first three rounds of chemo and began my radiation adventure, I was put on a different type of chemotherapy. This specific type of chemo didn’t promote hair loss, so during the six-plus weeks of my radiation/chemo regimen, I actually grew hair back. Many of my family and friends were excited for me, however, I knew it wouldn’t be there to stay. As odd as it may sound, I would have preferred to have no hair throughout the entirety of treatment, as opposed to losing it, regaining it, and losing it once more. It sucked seeing my hair grow back, only to know that it would fall out again in a matter of weeks. I did enjoy being able to run my hands through my hair again, though.

Hair regrowth during radiation. July 2012

Again, after ending radiation and beginning my last three rounds of (hair loss inducing) chemotherapy, it was time to shave my head. My husband viewed himself as a head-shaving professional at this point. And I must admit, I agreed with him.

Head shaving party #2. July 2012

Since I ended my treatment last month in August, I have been extremely excited for my hair to come back. This time, I know it’s for real. This time, I know I’ll be able to keep it and not have to give it up again. Compared to how quickly my hair grew back in May, April, and June, it seems to be coming back slower this time around. Maybe I’m wrong. I could just be overly anxious to start growing my locks again. Let’s see. I’ve gotta do some math…It took thirteen weeks for my hair to get to the length it was in the above pictures. I am currently at almost five weeks since my last treatment. Damn. I guess it’s not coming in slower, I am just overly anxious. Can you blame me, though?! Although many would still view me as bald, I know my hair is growing back. Like I said, it’s not much hair right now, more so just peach fuzz, but it still counts. This gorgeous mane has to start somewhere!

The truth is, tonight I’ve been obsessing over my do, or lack thereof. I’m tired of being bald. I’ve spent the majority of my life obsessing over my hair, making sure it was just the right style and color. Now, I’m just obsessing over the fact that there is no do. I even searched “hair growth after chemo” to get some insight as to what my various “hairstyles” will look like as my mane grows out. I’ve watched time-lapse YouTube videos of hair growth. I’ve read other women’s blogs. But, the more I obsess, the more I realize I need to be patient. Not only patient, but proud. I am cancer-free, and my lack of hair is a visual reminder of the battle I have fought to rid my body of the monster. I am proud. Very proud. Just not so patient. Shoot.

It comes down to this: I’d much rather be alive and bald, than dead with a lot of hair. I’m so ready for what He has planned for me next.

Isaiah 43:18-19 (MSG version)

“’Forget about what’s happened; don’t keep going over old history. Be alert, be present. I’m about to do something brand-new. It’s bursting out! Don’t you see it? There it is! I’m making a road through the desert, rivers in the badlands.'”

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