Posts Tagged ‘surgery’

Sick and Tired of Being Sick and Tired

I have struggled since surgery, both physically and emotionally. This journey that I’m on, though abundant in blessings, is a difficult one. There are great achievements and considerable disappointments.

Ready to head into surgery. (6/14)

Ready to head into surgery. (6/2014)

Surgery last week went well. The doctor was able to remove the entirety of the left adrenal gland and the tumor with good margins. Besides commenting that my insides were “sticky” because of the amount of scar tissue from my three surgeries prior, the procedure (though an hour and a half longer than expected) was smooth. He was able to complete the procedure laparoscopically, allowing my stay in the hospital to be swift. Surgery was on Monday, and by Tuesday night I was walking out the front doors to head home. Though it was a quick stay, it wasn’t an easy one. The majority of my time in the hospital, I was in pain. At times it was excruciating, and I couldn’t help but cry out in agony.

My incisions were not the problem. In fact, though the doctor had to move my stomach, spleen, colon, and other organs out of the way, my insides weren’t even that sore. Gas was the culprit. As is standard in a procedure like mine, they inflate the abdomen with carbon dioxide gas. This allows the surgeons better visibility and to have space to move instruments around. Once surgery is complete, they deflate the abdomen and close the incisions up. Sometimes, not all of the gas is removed. In my case, gas was trapped in my diaphragm, unbeknownst to the medical team. When I woke up, I was in immense shoulder pain. Both of my shoulders felt dislocated and I was entirely confused. What was wrong with my shoulders? Why were they screaming in pain?

During the first night after surgery, I woke up quite loudly. Typically, I internalize pain and am able to breathe through even the most intense discomfort. This pain, however, was on a different level, and I could not contain my screaming like a banshee cries. My husband immediately jolted awake and ran out of the room to grab nurses, doctors, residents… heck, I don’t doubt he would have grabbed the janitor. He was desperate to find someone to help me. To be quite honest, I thought I had a blood clot in my lung. These are extremely dangerous and often can be fatal if not tended to. My right ribcage and shoulder felt as though a fist was trying to push through from the inside out; As though they would explode any minute. It was pain that I had similarly experienced with my first surgery. However, this gas would not be able to naturally escape. It was up high and would not be heading towards an exit. My body had to absorb it over time. The nurses and doctors, (and quite possibly the janitor) ran in and quickly tended to my ailment. Before I knew it, more pain meds began trickling through my IV. Slowly but surely I felt by body relaxing and the pain quieting. I was able to sleep that night, and felt well enough to be discharged the next day.

Once home, I rested peacefully in my own bed. With a memory foam topper, marshmallow-like mattress pad, and divinely fluffy pillows, I didn’t want to be anywhere else. Within two days, I received a call from my doctor. After surgery, as usual, my tumor was turned over to pathology where it would be tested to determine if it was malignant or benign. My doctor called with the news. It was not the news we were desperately hoping and praying for. The tumor was malignant. Neuroendocrine cancer has recurred once again. For a fourth time to be exact… but who’s counting?

I can’t begin to describe the rush of emotions that both my husband and I experience upon receiving this type of news. Though it’s our fourth time learning that cancer has invaded my body, it never gets easier. With my husband at work, and I, alone at home with our dogs, I cried out to God. “Lord, you have to protect me. I can’t keep doing this! Please heal me here on Earth. I’m not ready to die.” Once I told Matt the news, he left work early and came home. Together, we sat on the floor of our bathroom and cried. We prayed and pleaded with God to rid my body of cancer. We prayed for strength, wisdom, and direction moving forward.

Cancer sucks. And recurrences are worse. A real-life version of the film Groundhog Day. A nightmarish merry go round with zombies and evil clowns. One that slowly comes to a halt, but before stopping to allow me to get off, quickly picks up the pace and continues wildly spinning about. I have zero control; All I can do is hang on and pray that the ride stops eventually. Recurrences are truly what nightmares are made of. Once you’ve had cancer, the fear of the disease returning hides in the darkest part of your mind. Though you may not think about it often, it lurks and appears at the first sight of vulnerability.

The truth is, I’m sick and tired of being sick and tired. I’m ready for this seemingly never-ending chapter with cancer to end. I’m ready to move forward with my life, and for Matt and I to step into the greatness that we believe God has for our future. I’m ready to step out of my role as a cancer patient. I’m ready to be a full-time survivor, with cancer a thing of the past. I’m emotionally exhausted, yet I have to continue if I want to survive. I have no choice. I must fight to gain more time here. If I don’t, my end may arrive sooner. Cancer sucks.

Regardless of how defeated Matt and I may feel, we know that God is not defeated. No matter what the news is, God still holds the entire universe in His hands, and not one speck of our lives is unknown to Him. He knew that we would receive these results. He knew that I had a fourth fight in me. He knows. He believes in me. He believes in my future. He believes that, with His help, I can overcome this. So why shouldn’t I believe the same? We place our complete trust in Him. We know that God has purpose in this recurrence, and we cling to the faith that He is stirring up a story so big, we can’t begin to fathom it.

This may sound weird to you… it sounds weird to me sometimes. It is an honor to have this story. It is an honor to be chosen to fight this battle. It’s an honor to have the platform to share of God’s goodness through the darkest pits of despair. It’s an honor to be a cancer patient, and an even greater honor to be a child of God with the knowledge that I will survive, no matter what.

photo-9

Psalm 63:1-4, 7-8 (MSG)

“God—you’re my God! I can’t get enough of you! I’ve worked up such hunger and thirst for God, traveling across dry and weary deserts. So here I am in the place of worship, eyes open, drinking in your strength and glory. In your generous love I am really living at last! My lips brim praises like fountains. I bless you every time I take a breath; My arms wave like banners of praise to you… Because you’ve always stood up for me, I’m free to run and play. I hold on to you for dear life, and you hold me steady as a post.”

Comfort in Unfamiliarity

(Guest post by Matt)

I write this blog post at Stephanie’s request while sitting in a vast expanse of a waiting room. This is not the usual waiting room I write from on surgery days. In fact, this isn’t even the usual hospital that I write from. Today’s surgery is taking place at a different location than the others, because today’s surgery is in a different part of Stephanie’s body.

To catch up those who may not know, Stephanie’s most recent CT scan revealed something on or near her left adrenal gland. This comes after months of thinking we were out of the woods with surgeries. After getting the results, Stephanie and I consulted a friend from our church who is a pediatric urologist. This led us to a referral to another doctor, who is regarded as the top adrenal surgeon in the state of Colorado. After meeting with him, the decision was made to get into the operating room soon to remove whatever this mass is. As I write, Stephanie’s patient number is still green on the board in the waiting room, which means that she is currently in the operating room having it removed.

Another surgery is not what we wanted. It’s not what we expected. Nerves get heightened with each surgery that happens. We are both over it, and we never want to have to step foot in a hospital again. But at the same time, we know that God is still good. We are still believing in miracles. We’re believing that whatever this thing is that is on or around her adrenal is benign. As scary as it is, we still have faith.

One of our friends from church told us something a couple weeks ago that still resonates with me. She said that God has provided a stage through Stephanie’s story and, because of that, people are watching. It’s one thing for the miraculous to happen when no one is paying attention, but it’s quite another for God to show off when people are paying attention. That’s what we are believing. We believe that no matter what happens, God will show up and show off to proclaim His name to people who may not know who He is.

Thank you all for your prayers and encouragement. Keep them coming, because there is power in prayer. We’re believing.

Mark 5:36 (ESV)

“Do not fear, only believe.”

Pruning What Doesn’t Belong

A fourth surgery in less than three years? No problem. In fact, I told my doctor if he needed to cut me open from my shoulders to my knees, I wouldn’t care. Just get the job done. Remove what doesn’t belong.

Last week Matt and I drove to a meeting with our newly appointed team member. A urologist, who happens to be the top adrenal surgeon in the state. He’s one of the many doctors on our team who helps navigate and combat this dreaded thing called cancer. I currently have a gynecologic oncologist, radiation oncologist, general oncologist, and now a urologist, among the slew of techs and nurses helping as well. Adding a new doctor to the team is always met with some hesitancy (on my part), as I become comfortable with those who have treated me over the last couple of years. My team of doctors and I have grown as a family. The hospital where I have received 99.9% of my treatment is a second home.

Adding a new doctor is like welcoming a new in-law to the family. Will I like him/her? Is he/she going to be able to keep pace in our conversations? Can I see myself spending hours and hours with this person? Can I place my trust in this person’s hands? As my medical team has become family, it’s quite entertaining to see what role each of them falls into. The one who is like an aunt whom you can cry and laugh with, and tell your darkest secrets to, all the while feeling great comfort. The epitome of a distant uncle who awkwardly hits it to you straight and leaves you hanging mid-air wondering what he’ll say next. The sister figure who has your best interest in heart, but doesn’t mind telling you the truth when you need to hear it. The cousins who greet you and play catch-up for the mere minutes you have to see them. Every person on our team fills a role in our medical family. Each one serves a purpose and is vital in my fight against cancer.

Though we’ve only met my new doctor once (on our four-year wedding anniversary, might I add), I can confidently say that I trust him. Matt and I both do. He is smart, professional, and compassionate and, after our meeting with him, we are ready to move forward in the next step. As I’ve mentioned HERE, I have a tumor on my left adrenal gland. The CT and PET show “activity” in the mass, however, based on its location, there is not 100% certainty that it is malignant. From what our doctor discussed with us, we know that adrenal masses happen and are often completely benign. Of course, based on my history, we have to be cautious. Caution and cancer go hand in hand.

Upon having our conversation, my doctor, husband, and I decided it’s best to proceed with surgery to remove this unlabeled mass. Usually, there is talk about doing a biopsy whenever a spot shows up on my scan, but it’s quickly ruled out. This time was no different. For a minute we passed over the idea of taking a biopsy of this tumor, but the risk of spreading the cells (cancer or not) is too great. IF it happens to be malignant, we don’t want  it to spread and wreak havoc elsewhere in my body. This is a disease you don’t want to piss off. Therefore, I’m going under the knife once again.

This will be my fourth major surgery since diagnosis. At this point, I like to consider myself a professional. I’m not concerned. In fact, I would rather be cut open to remove the entirety of the unknown intruder cells as opposed to just peeking through the door, taking a piece, and testing them. My scan is showing something that shouldn’t be there, and although it may not even be cancerous, I don’t like things where they don’t belong.

Pruning is a must in all areas of our existence. While I have undergone surgery to remove malignant masses in my body, likewise I have undergone metaphorical surgery to remove toxicity out of my life. We often hear certain things being compared to cancer. “He is a cancer in the group. He pulls everyone down with him.” Nothing about cancer has a positive connotation. It is the worst of the worst. It will destroy you from the inside out. Ridding ourselves of cancer and its metaphorical meaning is vital to live a healthy life. We prune gardens, cutting back the weeds to allow flowers to blossom, and likewise we should be pruning our lives.

Is there an area of your life that is so full of weeds, it’s taking over your world? Are the weeds drowning out who you really are? Have you ignored the weeds, hoping that they’ll go away on their own? We must cut back what doesn’t belong and rid ourselves of what shouldn’t take residence in our lives. It could be a toxic relationship, hidden addiction, or unhealthy patterns. We all have areas that need to be pruned.

Just as surgery hurts, pruning hurts as well. Removing what doesn’t belong will cause pain, and that’s often why many people avoid it. But once the weeds are removed, the blossoms can thrive. Though we are believing this mass is not cancer, it still doesn’t belong. Therefore, this coming Monday (6/16), Matt and I will venture into the hospital once more to do some pruning. The doctor believes he can perform the surgery laparoscopically. If this is the case, my recovery will be much easier. We are confident in this process, and are expecting wonderful results.

Please be praying for myself, Matt, and our newly added team of medical staff. While I receive all of the fun parts of surgery (sedation, pain medication, and doting nurses), Matt sits in the wings for hours awaiting the results.

While we prepare for pruning, ask yourself what needs to be pruned in your life?

pruning quote for DMD

John 15:2 (ESV)

“Every branch in me that does not bear fruit he takes away, and every branch that does bear fruit he prunes, that it may bear more fruit.”

 

 

Complicated Results and Abundant Faith

It’s that time of the year again. My three month follow up scan has arrived. If you follow me on Instagram, Facebook, or Twitter, you know that I laid on the hard, metal table one week ago. The results are in…

There’s a spot on my left adrenal gland.

Before you begin jumping to conclusions, let me explain. We aren’t positive that this lesion is even cancer. This is a spot that has lit up on the last few of my scans, and first made it’s appearance in October. Since then, I’ve had several rounds of chemotherapy. Throughout it all, this unknown mass has remained. It has grown slightly in size over the last seven months, but doesn’t seem to be affecting my body’s function.

When I was first told of the news, I didn’t even know what an adrenal gland was. One of our close friends is a doctor in this field and was able to explain to us in non-medical terms what we were dealing with. The adrenal gland is essentially a hat on top of the kidney. It’s purpose is to produce hormones such as stress and adrenaline. Each kidney gets it’s own adrenal gland, so, naturally we all have two. This lesion could potentially be one of three things.

  1. A benign non-functioning tumor. In which case, it’s a mass that serves no purpose and isn’t affecting my adrenal function.
  2. A benign functioning tumor. This is a tumor that is releasing it’s own hormones like stress and adrenaline.
  3. A malignant tumor. Also known as, cancer.

Of course, we won’t definitively know what this spot is until it is biopsied and sent to a pathologist. However, based on my history in Cancerland, we can conjure up an idea of what it may or may not be. Most likely we can rule out it being a benign functioning tumor. If this were the case, I would be experiencing symptoms like heart racing and bloodshot eyes, which I’m not. It would be obvious if this mass was functioning on it’s own, and from what we can see, it’s not doing much.

There is a chance that this could be another recurrence. However, taking my history of malignancies into account, although this lesion has grown, it has not increased as rapidly as my other recurrent tumors. If you recall, my first recurrence was a softball-sized tumor that developed within three months. That mass grew rapidly and aggressively and even began affecting my hormonal functions. In addition to the difference in growth, my body has proven to respond very well to chemotherapy. If this were a malignancy it would be quizzical to have had no response to treatment. For these reasons and more, we believe this is not a malignant tumor.

This leaves the possibility of it being a simple mass that serves no purpose other than to annoy us by showing up around my left kidney. A little pest that has chosen to, for whatever reason, hang out on my adrenal gland. Matt and I strongly believe that a non-functioning tumor is what’s lurking inside of me.

We have abundant faith that this is not cancer.

Arguments can be made for both sides — malignant and benign. Yes, based on these last two years, an unknown mass can lead many to immediately think cancer. However, just as likely, it could be something completely unrelated. Not everything inside of me has to be marked by this disease.

Regardless of what this lesion is, it will need to be removed. Cancer or not, I don’t need something harassing my adrenal gland. Therefore, I will have surgery at some point. Honestly, I am not fazed in the slightest. I’ve already been through three major surgeries in the last couple of years. I’m familiar with the process and recovery. I know all too well about the discomfort and pain. Surgery no longer scares me. I trust that God has my life in His hands; Just as He orchestrated what has been, He orchestrates what will be.

This morning I venture back into the hospital to lay on another hard table while a loud spinning machine takes several images of my insides. This scan will be a full body PET scan and will show all of my internal organs, including my brain. Compared to the CT scans that I receive every three months, a PET goes deeper in it’s imaging and is far more comprehensive. We may or may not learn more information from this scan. This step is necessary to make sure there are no other masses growing elsewhere in my body.

Next week a new doctor will be added to our team, and we will meet with him to discuss surgery. He will go over the hundreds of documents that have chronicled my medical journey and review each scan image that has been taken. He officially has a new patient that comes baring a lot of medical baggage, and it’ll be interesting to hear his opinion on my case.

For now, we hope and pray. As I mentioned, Matt and I are not fearful, but full of abundant faith. We aren’t anxious, nervous, or even the slightest bit afraid. Standing in faith, we believe this growing lesion is not cancer. We believe that I am still cancer free and will remain so for the rest of my life. We believe that the chapter of cancer has closed and we are entering in to the next season of our lives. We are not only believing, but declaring this. God is so mighty in His power, we are calling upon Him to perform a miracle. He beckons us to have faith, to knock so He can answer, and to trust in Him. Therefore, while believing and trusting in Him, we are asking that this mass that has shown itself on my scans for seven months, will not appear on my PET scan. We are praying that whatever this spot is, will vanish. I actually laugh as I pray, because I can picture my team of doctors jaw-dropped as they read the report and view the images, and see the once 2.6cm mass completely gone.

So, while I don’t have the best news to share, I don’t have the worst news either. The results from my CT scan are merely a speed bump on the journey. This is a moment that the enemy is attempting to lead us to question God. I know he is asking us, “Are you sure you’re healed?” He wants to lead us down the path of emotional and spiritual destruction, but we stand against it. We aren’t entertaining the thoughts and fears that try to creep in. We won’t open a door until God tells us to. For now, we are firm in our faith, and believe in healing. We ask that you would stand with us and believe for a cancer free report.

Luke 8:50 (ESV)

“But Jesus on hearing this answered him, ‘Do not fear; only believe, and she will be well.’”

Groundhog Day

The one with Bill Murray, not Punxsutawney Phil.

Getting cancer over, and over, and over again is comparable to the movie Groundhog Day. One season ends and I wake up expecting a new one to begin, only to find myself in the same season I have journeyed twice before. Over, and over, and over again. Much to my dismay, this battle is not complete yet.

As you know (or maybe you haven’t read the latest), surgery went better than we could have imagined. God has repeatedly displayed His power. The scan showed a two-inch tumor near my remaining ovary. However, during surgery, my doctor didn’t find a tumor at all, and in fact stated that I had one of the cleanest abdomens she had ever seen – pink and healthy. Just to be certain, she removed the ovary and sent it off for further review. Pathology reports came back showing microscopic cancerous cells… That, my friends, is a miracle… Did you not catch that? From the size of nearly a golf ball, to microscopic cells. Had there not been a tumor on my scan, my doctor would not have operated, and I would have continued believing that I was cancer-free, when in reality, this disease would have had three more months to grow and possibly travel elsewhere. God allowed a tumor to show up on my scan, in order for us to find the beginning stages of a recurrence. A golf ball size shrinking to microscopic cells. If you don’t call that a miracle, I don’t know what you would.

God calls us to focus on the praises and miracles He has performed in our lives and the lives of those around us. Yet, as humans, when another storm arises, we tend to forget those miracles. We often store them in the back of our minds, only occasionally pulling them forward in our memories. Life gets hard again, and we forget all the good He has done in and for us. By doing that, we aren’t fully recognizing God for who He is. His goodness doesn’t come and go. He is the single most consistent being in existence. We must remember the blessings He has poured over us. It’s as vital as breathing.

Since surgery one month ago, I have already received chemotherapy. About 12 days ago, in fact. It was my 31st chemo cocktail, yet familiarity doesn’t always bring comfort. I’ll never say fighting cancer is easy. No matter if it’s your first time, or your third, fighting cancer takes everything you have and more. Frankly, I can’t believe I’m doing this all over again. Twice… okay, that was hard enough. But three times? After being out of treatment for six months and nearly a year cancer-free. Seriously?

I’ve processed this recurrence different than my initial diagnosis and first recurrence. It’s been drastically more emotional for me. Being that so many of my girlfriends are pregnant now, I’d venture into comparing my emotions with those of an expectant mother. For real. This past week, I’ve cried over the silliest things. On one of my good days, Matt and I ventured into Ikea, and noticed a woman training a service dog. I had to keep walking, or I would have needed a box of tissues. I’ve cried to my husband and by myself. Over everything and over nothing. The tears have found their way out regardless of my will to keep them contained. I know that purging these emotions is a good thing, and a healthy cry session can help with the process.

No matter how much I’d love to say I’m always focusing on the positive, I am here to admit that I, too, am human. I have moments where I allow the blessings to easily slide to the back of my mind, allowing the storm to overwhelm my life. My tears are those of sadness, grief, and exhaustion. I loathe the fact that I am faced with this choice again. The choice to fight or die. Fighting cancer is just that… a choice. And it’s a choice that I must make. However, as always, I choose to fight.

Clinging to God’s blessings in the midst of the storm helps us build up our arsenal of tools to ward off the enemy. The enemy is a thief in the night who wants to steal our joy, hope, and positivity. He knows we are weak and preys on our vulnerabilities; doing whatever he can to push us further into the mud. It’s easy to fall into the pit of despair and continue drowning in the muck that tries to suffocate us.

Last week was full of emotions, sadness, shock, and defeat. I was living in a real-life Groundhog Day. But today, I am standing firm in the promises, miracles, and blessings that God has poured over me. I am calling forth every gift He has given me, and every promise He has spoken to me. I am remembering the moment I woke up from surgery to learn that there was no tumor. I am remembering the many times that God has scheduled divine appointments on my behalf. I am clinging to the goodness of my Savior, because I am blessed.

I’m fighting this again, which only means that I will soon be a three-time cancer survivor. This season will be different. I’m not waking up in the same place as I was twice before. Try as you may, cancer, but this chick is standing firm with spiritual armor so powerful, nothing can penetrate it.

Handling business as usual, chemo-style. (October 2013)

Handling business as usual, chemo-style. (October 2013)

2 Corinthians 12:7-10 (MSG)

“Because of the extravagance of those revelations, and so I wouldn’t get a big head, I was given the gift of a handicap to keep me in constant touch with my limitations. Satan’s angel did his best to get me down; what he in fact did was push me to my knees. No danger then of walking around high and mighty! At first I didn’t think of it as a gift, and begged God to remove it. Three times I did that, and then he told me, ‘My grace is enough; it’s all you need. My strength comes into its own in your weakness.’ Once I heard that, I was glad to let it happen. I quit focusing on the handicap and began appreciating the gift. It was a case of Christ’s strength moving in on my weakness. Now I take limitations in stride, and with good cheer, these limitations that cut me down to size—abuse, accidents, opposition, bad breaks. I just let Christ take over! And so the weaker I get, the stronger I become.”

Not So Fast

1

(Guest post by Matt)

Stephanie and I have spent a few days in the hospital, and she seems to have been progressing better than she has after previous surgeries. When they rolled her out of the post-op area, she was already sipping water. In prior surgeries, she wasn’t even allowed to touch but a few ice chips for about a day afterwards. Aside from a furious bout with itchiness last night (which we think was brought on by the hospital bedsheets, soon replaced by soft sheets from home), Stephanie has been able to do everything they want her to in order to go home.

But, as we have learned on multiple occasions during this journey, life can be unpredictable. I noted in the last post that they had to check the removed ovary for microscopic traces of the cancer. Well, the pathology report came back today and MJ gave us the news: there were microscopic cancer cells in the cystic walls of Stephanie’s ovary, nothing that could be seen with the human eye. That’s the thing with this or any other type of cancer. There’s an obvious battle against tumors and what shows up on scans, but there is also the microscopic battle.

So, there will be further treatment.

Stephanie will once again have to undergo chemotherapy treatments after all. She’ll start in a couple weeks after she heals up from her hospital stay. The good news is that these cells were found in the ovary that was taken out. There wasn’t a tumor, and there wasn’t any spreading to other areas of her body. So this chemo season will be an “insurance policy” to fight the microscopic battle. MJ is confident that it’s nowhere else and if there are still cancerous cells, the chemotherapy will prove effective against them. And, tomorrow morning, Stephanie is getting a PET scan, not a CT scan. That is good news.

In hindsight, we were a little spoiled with the immediate post-surgery news that no cancer was seen. Just because it wasn’t seen doesn’t mean that it still wasn’t present (obviously). It’s so small that the doctor who sees cancer every day couldn’t even see it. But we know that God is still good. He has orchestrated this whole story. Nothing about this is a surprise to Him. He is obviously still working in this story to bring glory to Him. Yes, it’s a bummer that Stephanie will lose her hair again and have to get chemo again. But, this is what we were planning before we even got to the hospital on Monday. We were prepared for another season of treatment and we still are.

Prayer-wise, we would appreciate prayers for emotional strength and endurance for the season ahead. Imagine the amount of stress and anxiety that is endured when you spend months and months growing your hair out just to find out you’re going to lose it again. This is difficult (especially for a woman). Just like everyone else, we have been expecting to be able to plan out our lives a little bit. Some people get further along than others before God reveals HIS plan for their lives. We are experiencing this in the time when we would otherwise be thinking about buying our first house and starting a family. Having to put those things “on hold” has been difficult for both of us, so prayers for understanding God’s will for our lives and being able to handle the “holding” gracefully would be especially appreciated. Also, very short-term, I am bouncing between home and the hospital not only to care for our pups, but it is moving week. So, we also request prayers for a smooth move. Big props to the fellas who will be helping us out this weekend with this task, it means more than you know.

We are praying that the “third time’s a charm” with this treatment. We’re keeping positive attitudes and we know that how people handle what comes their way reveals their true character. Thank you for praying with us and standing beside us.

Ecclesiastes 4:9-12 (MSG)

“It’s better to have a partner than go it alone. Share the work, share the wealth. And if one falls down, the other helps, but if there’s no one to help, tough! Two in a bed warm each other. Alone, you shiver all night. By yourself you’re unprotected. With a friend you can face the worst. Can you round up a third? A three-stranded rope isn’t easily snapped.”

Speechless

(Guest post by Matt)

Today was a pretty incredible day.

Stephanie and I got to the hospital around noon and did all the normal check-in stuff. Registration desk, go down the hall and up the elevator to the surgery waiting room, etc. We’ve done all this before. Surgery was running a little late today, so Stephanie got to spend time with family and friends in the waiting area before heading back.

She was in good spirits when I went back to see her. Our friends and family prayed over her and loved on her just like we always do. She’s ready to get this tumor out of her and get this show on the road again. We prayed for no more cancer. At times as I was praying over her, that’s all I could say. The only thing that came out of my mouth was, “No more cancer. No more cancer.”

Needless to say, God heard our prayers.

Stephanie and I said our goodbyes and told each other how excited we were to see each other on the other side. We were in the waiting room for perhaps a couple hours and I was putting a nice, pretty bow on the blog that I was going to post when MJ (Stephanie’s doctor) turned the corner towards me. I looked at her. She looked at me with two thumbs up.

“Two thumbs up, that’s good?” I asked like an idiot.

MJ sits next to me and says: “I didn’t see any cancer.”

My mind hiccuped painfully. What did she mean? Stephanie’s CT showed it… that’s why we’re here, after all…

MJ said that the ovary on Stephanie’s right side that was left over from the previous surgery was shot. She said that it was pretty gnarly looking. So, that went. But, she said that she looked and looked and she didn’t find any cancer. Aside from the scar tissue and lesions from Stephanie’s previous surgeries…

“One of the cleanest abdomens I’ve ever seen,” she said.

The mass that showed up on the CT was likely Stephanie’s remaining ovary tapping out. I can only imagine what chemotherapy and radiation treatments would do to an ovary. Couple that with blood that still flows to a beaten-up ovary and I would imagine that that is a pretty likely source of pain. They will still microscopically check out the ovary and search for cancer cells, and Stephanie will probably have a CT scan in two months.

So, this means it’s likely that Stephanie won’t need to get chemotherapy like we thought. And that means that she probably won’t even lose her hair like we thought. Or her nails. Or her eyebrows. We prayed for no more cancer. Doctor saw no cancer.

Do you believe yet?

Thank you so so much for all of your prayers and support. Not one comment or Facebook like goes unnoticed, and we value and love each and every one of you. I’ll blog another update later, but today was a good day. Stephanie appears to still be CANCER-FREE!

All glory to God! He is good.

Proverbs 21:31 (MSG)

“Do your best, prepare for the worst—
then trust God to bring victory.”

Our Plan, His Will

These past few days have been entirely orchestrated by God, of that I am sure.

Tuesday night, our church had it’s monthly women’s event, and I was asked to be a small group leader for the evening. One of my dear friends shared her testimony with all of us, and her message was enriched with His faithfulness. In fact, God’s faithfulness was the theme of the night. I am convinced that both the theme and it’s timing were orchestrated with enormous purpose.

Most of us say that He is faithful. We worship Him with that word. We pray for that characteristic to shine in our lives. But how many of us really know that it is true? God’s faithfulness is not measured by how many prayers are answered. He remains faithful even when our plans aren’t in alignment with His.

As I led my group into discussion, I was given questions to pose to the ladies. Here are a few that stood out to me, and have meaning especially now:

  • “Has there been a time where God has made something beautiful out of your hurt or pain?”
  • “How is our story part of God’s bigger story? Share a time when it was hard for you to see at first, but in the end you realized that God was doing something for a reason that you couldn’t see at the time.”
  • “Why is it sometimes hard to surrender to God’s plan in our lives?”

Notice that not one of these questions mentions an ease to or fulfillment of our plans. Many times God sees our plans and wants something bigger for us. I’m sure He looks at our life goals, plans, and desires and thinks, “That’s it? That’s all you want? My will is far greater that that.”

My follow-up CT scan was on Monday. Our women’s event was Tuesday. And I received the scan results on Wednesday. In the moment, I wanted the results immediately. Why couldn’t I receive them within seven hours like I did last time? I didn’t understand why. But now I do. Tuesday was God’s time to speak to me. To remind me of His faithfulness, regardless of the circumstance. It was His moment to encourage and empower me, and to remind me of His steadfast love. His timing was perfect.

I received the call yesterday morning at 7:03 am. Upon answering the phone, I heard my doctor’s voice. I immediately knew. A tumor had grown near my remaining ovary on the right side of my abdomen. It’s a little smaller than two inches. The cancer has returned for a third time. After listening to the medical details and ensuing plan of action, the conversation ended. My husband slid to the ground with his face in his hands, and began to cry. Tears began to fall from my eyes, as well. Instead of asking “Why?” I uttered, “I don’t understand. What plans do You have for me Lord?” I refuse to question His intentions, but can’t help questioning His plan. The tears of disappointment quickly turned into tears of sadness that I would, yet again, lose my hair. I ran my hands through my thick curls, and continued to express grief over the future loss of my locks. I hate losing my hair. It continues to be the most difficult part of this journey.

From the moment I processed this news, a calm confidence has filled my spirit. Where fear, doubt, and worry could hide, confidence has held residence instead. Large Cell Neuroendocrine cancer is extremely aggressive and, more often than not, fatal. However, this cancer is behaving unusual in my body. Unusually good. Sounds oxymoronic considering it’s return, however, it’s seemingly losing it’s power inside of me. Typically, this disease grows out of control and spreads quickly. Because both my hormonal and nervous system (Neuroendocrine) are under attack, this cancer has no bounds to where it can travel. In fact, in many cases, it heads to the lungs and brain rapidly. Yet, for some reason, it is remaining very localized in my pelvic region. It’s attaching itself to surgically removable organs. It is nowhere else in my body, and is no longer growing out of control. The tumor this time is significantly smaller than the second softball-sized tumor that developed within three months. I have been out of treatment for nearly six months, and was nearing the one year mark for being cancer free. All of these facts are good. They give me great confidence that once we remove this last ovary, the cancer will see nowhere else to grow and will cease residency in my body. I’m not dying from cancer. God has bigger things in store.

On October 6th, Matt and I will be running our very first 5k. We have been training for nearly eight weeks, and have put a lot of sweaty effort into our goal. This race immediately flashed in front of my eyes upon hearing the news that I would need surgery and chemotherapy all over again. “I WILL run this race. We’ll postpone surgery if we have to, but we ARE running this race.” Matt was adamant that I was delusional, but agreed to speak with my doctor. Explaining that this accomplishment would mean so much, I was insistent that cancer not take it away from me. Thankfully my doctor agreed, and smiling, she told us to run the 5k. Thank you, Jesus! Postponing surgery a few more days than expected should not have an impact on my health. If at any time between now and surgery, we feel the need to move forward with the procedure earlier, we can and will. However, my hope and prayer is that my pain will remain at a minimum and that the tumor will neither grow nor spread in this time. Our race is in ten days. Surgery is scheduled in eleven days, on October the 7th.

Through all of this, God remains faithful. Our plans and His are not in alignment, yet I know that His will for my life is far greater than I can imagine. For that reason, I continue to trust in His healing power, and know that He’s got this all figured out.

Psalm 138:8 (MSG)

“When I walk into the thick of trouble, keep me alive in the angry turmoil. With one hand strike my foes, with your other hand save me. Finish what you started in me, God. Your love is eternal—don’t quit on me now.”

 

 

Faithful Friends and The First Season

Alongside us on this crazy roller coaster through cancer, two of our dearest friends have been planted. They have joined us at appointments, surgeries, chemo cocktails, and numerous cry sessions. They have held our hands as we have ventured into the unknown, and have triumphed with us in the victories. We have worshiped together, prayed for one another, and celebrated several occasions. God brought this passionate, genuine, selfless couple into our lives at the very beginning of this battle, and we can’t imagine having forged our way through it without them standing firm and rallying beside us.

He is a photographer and life-journalist by hobby. He resembles Jesus not only in his physical appearance, but also in his character. Selfless, compassionate, humble, generous, loving, and prayerful. His laugh is contagious and you’d be lucky to catch it. He is a gentleman. A leader. A father. A Christ-like friend. A true blessing.

She is a dancer. Hip-hop, ballet, contemporary, and jazz. A real-life ballerina. She has a heart of pure gold. She is a friend to hold dear for a lifetime. She speaks encouragement, life, and wisdom. Her gentleness, selflessness, and caring demeanor uplifts and offers strength. She is a mother. A hospitable host. A faithful friend. A prayer warrior. A true blessing.

These two have offered shoulders to cry on, words of encouragement, and a multitude of cries to Jesus upon my behalf for healing. They have documented our journey and brought life to a sometimes dark situation. Through photographs, videos, and sound recordings, they tell our story. They have blessed us more than they could possibly know. Today, we share a taste of what they have captured since diagnosis.

Get your tissues ready. If this video doesn’t move you in some way, you might want to check your pulse. This montage captures a glimpse into this battle. It begins at diagnosis in January of 2012, and ends in August of 2012 on the last day of my first season through treatment. At that time, we thought I beat it entirely. Little did we know, we had another year in the trenches. Through hair loss, weight gain, and several firsts… enjoy.

Stephanie Madsen | Cancer Survivor from Mark Nava on Vimeo.

Proverbs 18:24 (MSG)

“Friends come and friends go, but a true friend sticks by you like family.”

Wigs and Warfare

It’s me again! Stephanie is back and ready to update y’all! But before going further, let me first take a minute to applaud my incredible husband for keeping my readers informed through the entire surgery process. Doesn’t he write wonderfully? I’m pretty proud of this man who I get to call my husband. He’s a total stud. He continues to be by my side through the highs and extreme lows of this adventure…and all the while, keeping you in the loop! I’ll save all the details about him for another blog post, but for now, let me get you up to date.

My stay in the hospital was exhausting. Physically. Emotionally. Spiritually. It’s been about eight days since I was discharged, and I just now feel like I’m settling into the groove. I was discharged the day after Matt last posted. Like he mentioned, my medical team discovered an alarmingly low heart rate and irregular heart beat, and wanted to dig deeper. Easy enough for them…they didn’t have to undergo those insane tests. Once we changed floors and got comfortable in our new room, I was immediately hooked up to a heart rate monitor. This allowed the nurses to watch exactly what my heart was doing at all times. In addition, the following day, an Echocardiogram was ordered. This test is a Sonogram for the heart and monitors the natural rhythm to determine if my organ is functioning properly. Once that was complete, I was transported to the radiology department to receive a PET Rubidium scan and another CT scan. Long story short, I hope I never have to receive another Rubidium scan. Ever heard of a stress test? That’s exactly what it is. Except, nowadays, instead of having a patient who recently had surgery walk on a treadmill, we are placed in a PET scan bed and injected with a special medicine that acts as stress. Oh. My. Stressed is an understatement. I’m always timid to put exact details of scans, tests, and procedures on here for everyone to see, because my intentions are not to scare you. My intentions are truly just to inform. If you get scared, I’m sorry.

To be honest, once this “stress medicine” was injected, I rapidly felt my heart rate skyrocket. I tried not to panic. I took deep breaths and prayed the entire time. For about five to seven minutes, I experienced what I think most heart attack patients may experience. My chest hurt. I felt as though my heart would beat out of my eyeballs and right into my lap. I was sweating. And all I could do was pray that it would be over soon. I’m not a drama queen folks, but I can admit, I did pray… “Lord, please don’t let me die.” Yes, it was that bad. I had tears streaming from my eyes when I was placed back in the wheelchair to be taken to my room again. Once the doors opened and my husband laid eyes on his obviously distraught wife, I could see the anger begin to overflow. I could imagine exactly what was going through his head, and picture it to be something like this: “What the hell did you do to my wife? Why is she crying? I’m going to make you pay!” Once he understood that I was alright and would give him the details when we arrived back at our room, he calmed down. While he has a tendency of being over protective, I am so grateful that I have a husband who cares so deeply about my welfare.

All that to say, my test results came back fine. They did notice the irregular beat and low rate at which my heart was functioning, but it wasn’t alarming. They ordered these tests to rule out blood clots, and that’s exactly what they did. I was free of any clots, and frankly, free of all tears as well. Because I was unable to ingest any solid food or liquids the day of my tests, I was starving when I got back to my room. It was already around four o’clock, and I had nothing in my system since the previous night. All I wanted was some french toast, fresh fruit, and a big piece of cake. And, because of my sweet nurse, I got exactly that! She quickly dialed the cafeteria, and might as well had said, “You better get that food here in two minutes, or else!” Again, I am very grateful for the strong team God continues to place in this game. To add, all of my nurses during my four-day stay were amazing. God placed each and every one of them on my path, and they were each perfect for the job. I really like to form relationships with my caretakers in the hospital, and did just that. I’ve left wondering how they are doing, and look forward to possibly seeing them again someday…Under different circumstances, of course!

Currently, I am still very sore, bruised, and swollen from surgery. I have a total muffin top beginning at my scar line. My belly just hangs there, and it’s extremely unappealing. Good thing my husband loves me regardless! I am finally able to move around without excruciating pain, and am starting to function a little more typically. Matt no longer has to physically help me in and out of bed, and that is a huge victory! I visited my General Oncologist today and after checking out my scar, he was shocked at how quickly I’m healing. I’m young, fit, and strong…what can I say? I also have an army praying for a fast recovery. God’s got me on lock-down. At my appointment today, we discussed the next phase of treatment. Chemotherapy. We talked about which specific chemo drug all my doctors agree on administering, and the schedule at which I will receive it. Before posting concrete plans, I need to confirm with my Gynecologic Oncologist that this is what she would like to do. Most likely she is on the same page, and in which case, I will begin chemo next week. Again, until everything is solidified I can’t be specific as far as how often I will receive doses or how long this next phase will last. However, I am so ready to get this train rollin’! Chemo cocktails never sounded so good until right about now. The waiting and in-between is really the hardest part.

For those who have followed my story, you know that God is the One for big blessings. He hasn’t ceased dropping down those gifts from above. Some, Matt has included in his previous post, and I’d like to reiterate that God is good. Here is why:

  1. When my Gyn Oncologist/surgeon opened me up in surgery, the tumor popped right up. It was completely encased in a mucus lining, therefore it was all intact. This is not the case for some cancers. Some tumors are not circular and are rather jagged, which makes it nearly impossible to remove the entire mass.
  2. Because of its mucus lining, my surgeon was able to remove the entirety of the mass.
  3. The tumor was not connected to my colon, and therefore I did not need any form of a colostomy.
  4. The PET scan immediately following surgery showed no signs of carcinoma anywhere else in my body.
  5. My surgeon was able to create an incision at my original hysterectomy scar line. In fact, she removed my previous scar, so now I only have one scar right above my pubic area.
  6. I am still alive and breathing. God continues to bless me with more days to glorify Him. Hallelujah!

This past week I have been recovering and taking it easy. My body is beginning to function normally again, which I am grateful. We continue to have wonderful support from friends and family, and at a time like this, it’s been extremely helpful. Like I mentioned, I’m finally able to be a little more up and active, and I even felt well enough to make it to church yesterday. I’ve learned that through the storm, instead of hiding out and suffering alone, it is better to surround yourself with joyful people. The most joyous place we enjoy is our church, in the presence of God and surrounded by friends. Needless to say, my spirits were lifted greatly by being in that environment yesterday. In addition, I’ve picked out a new wig! And let me tell you, she is gorgeous! Most know that when I first began this journey, before I lost my hair, I was blonde. Not naturally, but shhh. This time, I decided to go back blonde, and I have been gifted a stunning wig of human hair. Although I’ve been loving my short curly and wavy hair that has grown, I won’t miss it so much now that I have some blonde to rock!

Back to Blonde! Stephanie wearing her new wig. (December 2012)

Back to Blonde! Stephanie wearing her new wig. (December 2012)

At the bottom of this entry, I am including a link. A link in order for you to make a choice. As you know, I don’t like to sugarcoat anything, and have always remained open and honest. However, I do understand that some of my readers have sensitive stomachs, and for that I have chosen to create a clickable link so you are able to make the choice to view this image or not. This link is graphic. This link will show you exactly what is trying to take my life. This link might frighten you. Please don’t let it. This link is to a medical picture of the cancerous tumor my surgeon removed last week. You may wonder why I have a photograph of it. I want to see what is trying to ruin me. I want to see exactly what I am fighting so hard to defeat. I need to have a visual of the enemy; The enemy that is getting kicked around, poisoned, stomped on… and ultimately defeated. I feel the need to share this with you, so that you are able to see what you are praying against. I understand if you have a sensitive stomach and can not handle a medical picture of this nature. Whether you choose to view my tumor or not, I thank you for allowing me to be transparent and share the entirety of my journey through cancer with you.

Click HERE to see a picture of the cancerous tumor. (Graphic medical image)

John 10:6-10 (MSG Version)

Jesus told this simple story, but they had no idea what he was talking about. So he tried again. ‘I’ll be explicit, then. I am the Gate for the sheep. All those others are up to no good—sheep stealers, every one of them. But the sheep didn’t listen to them. I am the Gate. Anyone who goes through me will be cared for—will freely go in and out, and find pasture. A thief is only there to steal and kill and destroy. I came so they can have real and eternal life, more and better life than they ever dreamed of.’”

1 2 3