Posts Tagged ‘diagnosis’

Putting a Bandaid Where It Doesn’t Belong

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Life is not meant to be lived passively, but proactively. I need to remember that. We all do. Instead of allowing life to pass by and just happen to me, I need to stake my claim and walk forward refocused in my purpose.

Recently, my journey has been harder than usual. I often feel like I’m only capable of handling a certain level of difficulty. That level has been reached, and I’ve come to the end of my capabilities. Facing an impossible level, I’ve been given a choice and, unfortunately, I chose wrong.

I have been knee-deep in a murky swamp. Mud, muck, and dark waters have enveloped me. I’ve felt slithering snakes swimming past my legs, taunting me and begging for my attention. The mud between my toes has encased my feet, urging me to stay put. Instead of trudging forward, I chose to sit down. Instead of forging a way to get out of the swamp, I stopped in my tracks. I convinced myself that I was taking a break to gather my strength and to rest. But at some point, breaks end. Eventually, you must get up and keep going.

This wasn’t a break. This was me sitting down, giving up, and not wanting to deal with what I was facing. Like a child not wanting to do something, I metaphorically went limp on the ground.

These past two months have sucked me dry — physically, emotionally, and spiritually. Chemotherapy has been increasingly difficult, and good days have become few and far between. I receive the poisonous toxins once a week, therefore plenty of my days are spent on the couch, pretty useless. My nausea is often overpowering and unbearable, sitting at the base of my throat like a volcano waiting to erupt. I’m tired. There are days when I can’t imagine anything better than the comfort of our bed. Exhaustion is exhausting. Not having energy to live life on my terms is an invitation for sadness to overwhelm. Some days, the harder fight is not against cancer, but against the subsequent emotions.

Beyond the daily battle against this disease, I have faced other obstacles. Difficult hurdles and layers of grief to top off this already bumpy journey. My grandfather, whom I lovingly called, “Papa,” passed away. We were very close throughout my life, especially so in these later years as we fought the same fight alongside each other. Never would I have thought I would be fighting cancer with my Papa, but it deepened our relationship in special ways. We understood each other through each surgery, treatment, and side effect. We lifted each other up on rough days. He fought a good battle, and ultimately won the victory. Boy, do I look forward to seeing him again.

Not only did I lose my grandfather, but only a few weeks later, a close friend of mine went to be with Jesus as well. This time, it was unexpected and sudden. The type of tragedy you can never prepare for. It still doesn’t seem real. A dislodged blood clot after surgery… A mere few hours prior, I was giving her a hug, kissing her on the forehead, and wishing her well as she was to head into the operating room. We joked, laughed, and prepared for how life would look like after the procedure. I lent my words of wisdom (having gone through several surgeries before), and let her know she would be fine. The shock still comes in waves. I just can’t believe she’s gone. How I miss her so.

The combination of grief, stress, frustration, exhaustion, and sickness has weighed me down, and I simply crumbled underneath it. I sat down in the mucky swamp and, instead of resting, I merely existed. I went through the motions each day. Chemo every Wednesday. Nausea pills every six hours. Church on Sunday. Grief, like my nausea, at the surface ready to explode. Yet, I couldn’t deal with any of it.

I covered my grief and uncomfortable circumstances with bandaids. I’ve watched too much TV. I’ve eaten horribly. I’ve been snappy with my husband. I’ve introverted. And, as many of you have recognized, I stopped writing. I just couldn’t bear pouring my reflections out to the world, when my thoughts were jumbled, messy, and self-pitying. Writing is cathartic for me. It helps me process, and in turn, heals my soul. Equally as my words encourage you, they often encourage me. There are more times than I can count when I read back through an entry and know God Himself was speaking through me to me. Yet, for several weeks, I avoided it. I sat down in the swamp and went limp.

It wasn’t until I was removed from my circumstances, and was stuck in a car for thirteen hours with my husband, that I pulled the bandaids off… finally facing the wounds that were hidden underneath. We talked and I cried. Releasing what had been burdening me for weeks. And, in true character, my husband gently led me back to The Lord. I am so grateful for an encouraging husband who holds my hand, understanding and grieving with me, and guides my eyes upwards.

The problem with placing a bandaid on a wound that doesn’t need one, is it doesn’t heal. Some wounds need air for a scab to form and the healing process to take place. My wounds needed air… The refreshing air of Jesus. And instead of reaching for Him, I put a bandaid on, covering myself from healing, and went limp. The bandaids paralyzed me and put me in a passive position.

While the grief, sickness, and emotion has been painful, I have learned from it. When life gets hard and uncomfortable, our human reaction is to give up. But have you thought how your circumstances might change if you were proactive in the midst of trudging through your own swamp? We have all faced difficult seasons in our lives. Many can say that, though our circumstances may not have changed, once we became proactive, our perspectives sure did. Instead of convincing ourselves we need a break and sitting down in our muck, stand strong, be proactive, and pull the bandaid off. Allowing God to touch our wounds and heal them is a powerful act. It’s painful, but so worth it.

What swamp are you sitting in? I challenge you to pull your bandaids off, stand up, and allow God to guide you in healing.

Psalm 119:50 (ESV)

“This is my comfort in my affliction, that your promise gives me life.”

 

Raising The White Flag

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There are moments when we reach the end of our rope. When no matter how hard we try to hold the pieces in place, everything continues to slip out of our grasp. When we desperately wish for things to go according to plan, just this one time. When we are this close to throwing in the towel.

We don’t realize that in those moments, all we need to do is surrender. Place our pieces on the table, push them over to God, and raise our white flag.

Surrendering is typically the hardest obstacle we face in life. Why is that? Why do we find it so hard to let go of control? Surrendering is not giving up. Surrendering is not admitting defeat. Surrendering is the strongest act of humility and trust. Surrendering is an acknowledgement that we can no longer do it on our own. To surrender is to gain.

Life with cancer has taught me to raise my white flag more often.

I’ve been MIA these past few weeks, and I’d be lying if I said I wasn’t going through something. I was reaching the end of my rope. I was desperately grasping for straws. I was tired, unsure, stressed out, and frustrated. Sometimes I feel like my life is a bulbous onion. Layers and layers piled on top of one another. Each layer a new level made up of the stuff that makes your eyes water. Often too, I feel like a circus performer, trying to balance an innumerable amount of barrels on my head while walking across a tight rope.

We all have periods in our lives when we’re juggling too much already, only to have a few more balls get thrown into the mix, causing all of them to come tumbling down.

My car needed a repair. A repair that would cost us more than the value of the car itself. The only wise decision my husband and I could make was to purchase a new (used) vehicle. Our current lease was up soon, and we had been looking for a rental home for months. Each day we sat in front of the computer, scanning every place we could think of for used cars and rental homes. Nothing. Nothing in our price range. Nothing in our location. Too much mileage. Too expensive. Too much. Too little. Too far. Nothing. I felt defeated. I felt like we would never find what we needed. And amidst the stress of determining our next steps, my dear grandfather passed away. He fought a courageous battle against this disease, and ultimately won. Oh, and my weekly chemotherapy treatments… the cherry on top.

Stress, frustration, exhaustion, and grief all wrapped up into a tear-filled, multilayered onion.

I found myself in the shower one day — naked, alone, and vulnerable. I began to weep. Tears cascaded down my cheeks and spiraled down the drain alongside the water. My pent-up emotions heaved from my heart as I lamented my anguish. Soon, a song began to rise within my spirit. Bubbling up, forcing it’s way through my emotions, and cleansing them upon release.

“I surrender all. I surrender all. All to thee my loving Savior, I surrender all…”

The words flowed out and my arms raised up. In my weakness and vulnerability, I began to worship. God Himself gently placed this hymn that I had not sung for years in my spirit. He was urging me to let go. To give Him my checklist, my worries, and my grief. And in that moment, I did. Before I knew it, the burden was lifted off and I was in complete peace over what my husband and I were facing. The feeling you get when someone you love gives you a great big hug… that’s what happened. Tears of stress transformed into tears of joy and hope.

As if God was saying, “You can’t do this, but I can. Give these tasks to me. I’ll take care of you.” Within one week, we found a car and a home. Upon my surrender, He was faithful.

Have you experienced something similar? I have, many times. Yet in those dark moments, it’s easy to forget His faithfulness. It’s easy to doubt His ability. In our humanness, we believe that we are in control. We think that if we don’t do enough nothing with happen, or if we do, we’ll reap favor. Too often, we lose sight of The One who is ultimately sovereign over our lives. No amount of us “doing” can achieve what He can. We cannot achieve our impossibles. Only God can. And, in order for this to happen, we must surrender our pieces to Him.

Surrendering is scary. Full surrender is handing both your worries and fears as well as your dreams and desires completely over to Jesus. It’s entrusting Him to handle it. It’s relinquishing control over your life. Surrendering is hard, but necessary. After all, His abilities far outweigh our own. Surrendering comes down to trust. Do we trust God?

What do you need to surrender today? I challenge you to raise your white flag.

Mark 14:35-36 (ESV)

“And going a little farther, he fell on the ground and prayed that, if it were possible, the hour might pass from him. And he said, ‘Abba, Father, all things are possible for you. Remove this cup from me. Yet not what I will, but what you will.’”

Photo: Flickr/lundgrenphotography 

We’re Going to Houston!

We asked and you answered. I am in absolute awe, deeply humbled, and practically speechless at the depth of generosity we have received this past week. As most of you know, we set up a GoFundMe online donation account and were surprised when the financial gifts began pouring in. Each gift, no matter how big or small, has touched us. Every donation sent me into tears of joy and gratitude. For a while, I didn’t know why I even bothered to put on makeup. The tears streamed down my face with each encouraging email, heartfelt prayer, and generous gift.

Within four days, we raised far above our set goal of $10,000. As of today, we have received over $12,000 in donations. This means that we are 100% covered to go to Houston. Our airfare, hotel accommodations, rental car, and deductible is taken care of. All we need to focus on is packing our bags, and I think we can handle that.

I have a confession. In the beginning of last week, I was doubtful. I had no idea how we would get to Houston, let alone how we would be able to pay for any of it. Resting beside my doubt was peace. Is that even possible? Typically, I’d say no. However, this time was different. My flesh doubted that we would have the financial ability to travel and stay in Houston for a week. I was doubtful that all of the moving pieces would come together. A lot of pieces needed to fit cohesively, after all. Yet, my spirit was sure, steady, fearless, and at peace with the impending trip. Like a pendulum, I swayed between doubt and confidence.  In the end, my spirit was telling my flesh, “I told you so.” This friends, is yet another reason to trust your gut. Your spirit is always wiser than your flesh.

There were many times this week after reading your words and seeing the donations pour in, that all I could do was praise God. Often, the only words that escaped my lips were those of thanksgiving. Songs of praise and worship to the One who has been faithful through it all. As I’ve shared, God has shown up every single moment I needed Him. He has never left me high and dry. In moments of desperation, He has arrived with abundant blessings. This moment was no different. When I had no idea how a trip to Houston would be possible, God was there to defeat the impossible. He used you to bless me. And because of your obedience, those blessings completely overflowed my cup. Above and beyond… isn’t that how God usually works?

As if I haven’t cried enough this week. I know I won’t be able to make it through this next part without a tear shed… Thank you doesn’t seem like a sufficient enough way to express our gratitude, but I’ll say it anyway for lack of another expression. Thank you. Thank you for listening to the urging in your spirit. Thank you for obeying the call to give. Thank you for standing firmly beside us and lifting us up when we needed you. Thank you for sharing your encouragement and stories of camaraderie. Thank you for stepping out and making a difference. You truly have made a difference in our lives and have allowed us to see a dream come to reality. Thank you for your selfless donations. Thank you for your sincere prayers and well wishes. Thank you.

Because of you, we are now able to travel the miles to see the doctor who will help us navigate our next step in this fourth battle. Because of you, we are officially going to Houston! In fact, I leave this coming Monday for my Tuesday (7/29) appointment. I could not be more excited. I am thrilled at the reality that I will be meeting the doctor who has helped so many other women with my diagnosis. I can’t wait for this once in a lifetime trip. While in Houston, I’ll be visiting MD Anderson Cancer Center for my appointments. There, I will receive a slew of tests, including a PET scan. In addition, samples of my latest tumor are being sent to Houston where they will undergo molecular testing. This specific test involves the dissection of the tumor to determine its actual makeup, allowing my medical team to create the most beneficial recipe for treatment. In Houston, I will be receiving answers that I’ve long prayed for, and a clear direction of what’s to come.

Matt and I ask that you continue to pray for us as we venture to Houston this coming week. Please pray for safe travels, wisdom, and direction. You may also want to pray for our safety as we try to cope with the horrendous Houston traffic! We are expecting God to do big things while we are in Texas, and ask that you stand beside us in expectancy. God has brought us this far and we have faith that He will bring us through to victory.

Thank you for blessing us.

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Luke 18:27 (ESV)

“What is impossible with man is possible with God.”

For further contributions, DONATE HERE!

Photo Credit: Kimberly Mitiska Photography

We Need Your Help

There are times in all of our lives when we get to the end of our ropes and need to reach out to others. Personally, it usually takes me reaching the last thread of said rope before I ask for help. I have a tendency of being self-conscious of burdening others around me. Cancer burdens everyone, and I cringe at the thought of it weighing on those who love and support me. Today, that last thread slipped through my grasp and here I am with no other choice but to ask for help.

Let me get you up to date. As you know, this last tumor that we prayed would be benign was in fact malignant. This is my fourth recurrence, and I will be jumping back into treatment soon. My diagnosis is rare. So rare in fact, there is not much knowledge or even funding for research to learn more about it. Large Cell Neuroendocrine Cervical cancer is aggressive and stealthy and won’t take no for an answer. There is, however, one man who has taken on the job of finding out more about my diagnosis and is researching ways to defeat this type of cancer. He is a doctor located at MD Anderson in Houston, and we have spoken regularly about my case. He is always kind and optimistic, and would love to help me navigate the next steps in my fourth journey through treatment. I, too, am itching at the opportunity to meet him.

Fast forward to this week. I have recovered well from surgery, and wear my new scars proudly. I have settled into the swing of daily life and realize I still hate laundry. Why do I think that will ever change? … I digress. We have recently learned that insurance will cover an appointment with the doctor in Houston. Hallelujah. God has intricately worked together nearly every puzzle piece, both big and small. The timing is perfect — absolutely perfect. I have an appointment set at MD Anderson for Tuesday, July 29th. That’s two weeks from yesterday. I am beyond thrilled to have the chance to meet with the only doctor actively teaming alongside me, trying his best to learn more about this disease. My appointments in Houston will consist of several tests, scans, and further research of my case. Everything will be put on the table, and based on his findings, he will recommend what step we should take next. Until I see this doctor, we are shooting in the dark. This appointment is vital to this fourth journey in my fight against cancer.

Without further ado, I’ll get to the point… I need help. Matt and I need your assistance in a larger way than we have before. We are in need of financial provision in order for us to get to my appointment in Houston.

Cancer is expensive. You know that. We know that. Though we recently received a financial gift from Ellen DeGeneres and CoverGirl, it has all been put towards our never-ending bills. The well has run dry again. It’s amazing how quickly that can happen after a few hundred trips to the hospital and thousands of dollars in life-saving treatments. Our insurance recently changed at the first of this month, and we are now required to pay everything out of pocket until we reach our new deductible.

Our deductible is $4,000, which is due up front at the time of the appointment. The great news is that once we reach that deductible, my treatment and testing (including scans) for the rest of the year will be 100% covered by insurance. The bad news is that we don’t have $4,000 nor the rest of the money required for flights, hotels, a rental car, and food for my week-long stay in Texas.

Here’s where you come in. Many of you ask regularly what you can do to help us. Typically meal gift cards are a great way to help during my recovery from surgeries and treatments. However, this time we are needing extra assistance. If you are not in a position to help financially, we completely understand and ask you to pray. Pray for wisdom, direction, protection, and ultimately, provision. If you are able to help financially, below is what we currently need.

  1. $4,000 to cover our deductible and the appointment and tests at MD Anderson
  2. Frequent flyer miles or airline buddy passes to help us book our flights to and from Houston
  3. Hotel points to help us book a room for our stay
  4. Cash to help with any aforementioned area that is not met and unknown expenses that may arise through our travels.

Thank you for allowing me to be open with you. Thank you for allowing me to be vulnerable about our needs. Though asking for help is hard, especially for me, I know that there are so many of our supporters who are just waiting for us to ask.

We have faith that God will provide. He doesn’t lead us to the finish line and expect us to cross it ourselves. He provides from beginning to end. The amount of puzzle pieces that He has already put together has me humbled and in awe at His faithfulness. I know He will figure the rest out.

If you are feeling called or compelled to help us, please let me know. You can reach me directly through email at derailingmydiagnosis@gmail.com. Also, if you have ideas up your sleeve, please share them. We need a team to conquer this hurdle, and are thankful for all of you who surround and support us.

Thank you.

Philippians 4:19 (MSG)

“You can be sure that God will take care of everything you need, His generosity exceeding even yours in the glory that pours from Jesus.”

Sick and Tired of Being Sick and Tired

I have struggled since surgery, both physically and emotionally. This journey that I’m on, though abundant in blessings, is a difficult one. There are great achievements and considerable disappointments.

Ready to head into surgery. (6/14)

Ready to head into surgery. (6/2014)

Surgery last week went well. The doctor was able to remove the entirety of the left adrenal gland and the tumor with good margins. Besides commenting that my insides were “sticky” because of the amount of scar tissue from my three surgeries prior, the procedure (though an hour and a half longer than expected) was smooth. He was able to complete the procedure laparoscopically, allowing my stay in the hospital to be swift. Surgery was on Monday, and by Tuesday night I was walking out the front doors to head home. Though it was a quick stay, it wasn’t an easy one. The majority of my time in the hospital, I was in pain. At times it was excruciating, and I couldn’t help but cry out in agony.

My incisions were not the problem. In fact, though the doctor had to move my stomach, spleen, colon, and other organs out of the way, my insides weren’t even that sore. Gas was the culprit. As is standard in a procedure like mine, they inflate the abdomen with carbon dioxide gas. This allows the surgeons better visibility and to have space to move instruments around. Once surgery is complete, they deflate the abdomen and close the incisions up. Sometimes, not all of the gas is removed. In my case, gas was trapped in my diaphragm, unbeknownst to the medical team. When I woke up, I was in immense shoulder pain. Both of my shoulders felt dislocated and I was entirely confused. What was wrong with my shoulders? Why were they screaming in pain?

During the first night after surgery, I woke up quite loudly. Typically, I internalize pain and am able to breathe through even the most intense discomfort. This pain, however, was on a different level, and I could not contain my screaming like a banshee cries. My husband immediately jolted awake and ran out of the room to grab nurses, doctors, residents… heck, I don’t doubt he would have grabbed the janitor. He was desperate to find someone to help me. To be quite honest, I thought I had a blood clot in my lung. These are extremely dangerous and often can be fatal if not tended to. My right ribcage and shoulder felt as though a fist was trying to push through from the inside out; As though they would explode any minute. It was pain that I had similarly experienced with my first surgery. However, this gas would not be able to naturally escape. It was up high and would not be heading towards an exit. My body had to absorb it over time. The nurses and doctors, (and quite possibly the janitor) ran in and quickly tended to my ailment. Before I knew it, more pain meds began trickling through my IV. Slowly but surely I felt by body relaxing and the pain quieting. I was able to sleep that night, and felt well enough to be discharged the next day.

Once home, I rested peacefully in my own bed. With a memory foam topper, marshmallow-like mattress pad, and divinely fluffy pillows, I didn’t want to be anywhere else. Within two days, I received a call from my doctor. After surgery, as usual, my tumor was turned over to pathology where it would be tested to determine if it was malignant or benign. My doctor called with the news. It was not the news we were desperately hoping and praying for. The tumor was malignant. Neuroendocrine cancer has recurred once again. For a fourth time to be exact… but who’s counting?

I can’t begin to describe the rush of emotions that both my husband and I experience upon receiving this type of news. Though it’s our fourth time learning that cancer has invaded my body, it never gets easier. With my husband at work, and I, alone at home with our dogs, I cried out to God. “Lord, you have to protect me. I can’t keep doing this! Please heal me here on Earth. I’m not ready to die.” Once I told Matt the news, he left work early and came home. Together, we sat on the floor of our bathroom and cried. We prayed and pleaded with God to rid my body of cancer. We prayed for strength, wisdom, and direction moving forward.

Cancer sucks. And recurrences are worse. A real-life version of the film Groundhog Day. A nightmarish merry go round with zombies and evil clowns. One that slowly comes to a halt, but before stopping to allow me to get off, quickly picks up the pace and continues wildly spinning about. I have zero control; All I can do is hang on and pray that the ride stops eventually. Recurrences are truly what nightmares are made of. Once you’ve had cancer, the fear of the disease returning hides in the darkest part of your mind. Though you may not think about it often, it lurks and appears at the first sight of vulnerability.

The truth is, I’m sick and tired of being sick and tired. I’m ready for this seemingly never-ending chapter with cancer to end. I’m ready to move forward with my life, and for Matt and I to step into the greatness that we believe God has for our future. I’m ready to step out of my role as a cancer patient. I’m ready to be a full-time survivor, with cancer a thing of the past. I’m emotionally exhausted, yet I have to continue if I want to survive. I have no choice. I must fight to gain more time here. If I don’t, my end may arrive sooner. Cancer sucks.

Regardless of how defeated Matt and I may feel, we know that God is not defeated. No matter what the news is, God still holds the entire universe in His hands, and not one speck of our lives is unknown to Him. He knew that we would receive these results. He knew that I had a fourth fight in me. He knows. He believes in me. He believes in my future. He believes that, with His help, I can overcome this. So why shouldn’t I believe the same? We place our complete trust in Him. We know that God has purpose in this recurrence, and we cling to the faith that He is stirring up a story so big, we can’t begin to fathom it.

This may sound weird to you… it sounds weird to me sometimes. It is an honor to have this story. It is an honor to be chosen to fight this battle. It’s an honor to have the platform to share of God’s goodness through the darkest pits of despair. It’s an honor to be a cancer patient, and an even greater honor to be a child of God with the knowledge that I will survive, no matter what.

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Psalm 63:1-4, 7-8 (MSG)

“God—you’re my God! I can’t get enough of you! I’ve worked up such hunger and thirst for God, traveling across dry and weary deserts. So here I am in the place of worship, eyes open, drinking in your strength and glory. In your generous love I am really living at last! My lips brim praises like fountains. I bless you every time I take a breath; My arms wave like banners of praise to you… Because you’ve always stood up for me, I’m free to run and play. I hold on to you for dear life, and you hold me steady as a post.”

Pruning What Doesn’t Belong

A fourth surgery in less than three years? No problem. In fact, I told my doctor if he needed to cut me open from my shoulders to my knees, I wouldn’t care. Just get the job done. Remove what doesn’t belong.

Last week Matt and I drove to a meeting with our newly appointed team member. A urologist, who happens to be the top adrenal surgeon in the state. He’s one of the many doctors on our team who helps navigate and combat this dreaded thing called cancer. I currently have a gynecologic oncologist, radiation oncologist, general oncologist, and now a urologist, among the slew of techs and nurses helping as well. Adding a new doctor to the team is always met with some hesitancy (on my part), as I become comfortable with those who have treated me over the last couple of years. My team of doctors and I have grown as a family. The hospital where I have received 99.9% of my treatment is a second home.

Adding a new doctor is like welcoming a new in-law to the family. Will I like him/her? Is he/she going to be able to keep pace in our conversations? Can I see myself spending hours and hours with this person? Can I place my trust in this person’s hands? As my medical team has become family, it’s quite entertaining to see what role each of them falls into. The one who is like an aunt whom you can cry and laugh with, and tell your darkest secrets to, all the while feeling great comfort. The epitome of a distant uncle who awkwardly hits it to you straight and leaves you hanging mid-air wondering what he’ll say next. The sister figure who has your best interest in heart, but doesn’t mind telling you the truth when you need to hear it. The cousins who greet you and play catch-up for the mere minutes you have to see them. Every person on our team fills a role in our medical family. Each one serves a purpose and is vital in my fight against cancer.

Though we’ve only met my new doctor once (on our four-year wedding anniversary, might I add), I can confidently say that I trust him. Matt and I both do. He is smart, professional, and compassionate and, after our meeting with him, we are ready to move forward in the next step. As I’ve mentioned HERE, I have a tumor on my left adrenal gland. The CT and PET show “activity” in the mass, however, based on its location, there is not 100% certainty that it is malignant. From what our doctor discussed with us, we know that adrenal masses happen and are often completely benign. Of course, based on my history, we have to be cautious. Caution and cancer go hand in hand.

Upon having our conversation, my doctor, husband, and I decided it’s best to proceed with surgery to remove this unlabeled mass. Usually, there is talk about doing a biopsy whenever a spot shows up on my scan, but it’s quickly ruled out. This time was no different. For a minute we passed over the idea of taking a biopsy of this tumor, but the risk of spreading the cells (cancer or not) is too great. IF it happens to be malignant, we don’t want  it to spread and wreak havoc elsewhere in my body. This is a disease you don’t want to piss off. Therefore, I’m going under the knife once again.

This will be my fourth major surgery since diagnosis. At this point, I like to consider myself a professional. I’m not concerned. In fact, I would rather be cut open to remove the entirety of the unknown intruder cells as opposed to just peeking through the door, taking a piece, and testing them. My scan is showing something that shouldn’t be there, and although it may not even be cancerous, I don’t like things where they don’t belong.

Pruning is a must in all areas of our existence. While I have undergone surgery to remove malignant masses in my body, likewise I have undergone metaphorical surgery to remove toxicity out of my life. We often hear certain things being compared to cancer. “He is a cancer in the group. He pulls everyone down with him.” Nothing about cancer has a positive connotation. It is the worst of the worst. It will destroy you from the inside out. Ridding ourselves of cancer and its metaphorical meaning is vital to live a healthy life. We prune gardens, cutting back the weeds to allow flowers to blossom, and likewise we should be pruning our lives.

Is there an area of your life that is so full of weeds, it’s taking over your world? Are the weeds drowning out who you really are? Have you ignored the weeds, hoping that they’ll go away on their own? We must cut back what doesn’t belong and rid ourselves of what shouldn’t take residence in our lives. It could be a toxic relationship, hidden addiction, or unhealthy patterns. We all have areas that need to be pruned.

Just as surgery hurts, pruning hurts as well. Removing what doesn’t belong will cause pain, and that’s often why many people avoid it. But once the weeds are removed, the blossoms can thrive. Though we are believing this mass is not cancer, it still doesn’t belong. Therefore, this coming Monday (6/16), Matt and I will venture into the hospital once more to do some pruning. The doctor believes he can perform the surgery laparoscopically. If this is the case, my recovery will be much easier. We are confident in this process, and are expecting wonderful results.

Please be praying for myself, Matt, and our newly added team of medical staff. While I receive all of the fun parts of surgery (sedation, pain medication, and doting nurses), Matt sits in the wings for hours awaiting the results.

While we prepare for pruning, ask yourself what needs to be pruned in your life?

pruning quote for DMD

John 15:2 (ESV)

“Every branch in me that does not bear fruit he takes away, and every branch that does bear fruit he prunes, that it may bear more fruit.”

 

 

Complicated Results and Abundant Faith

It’s that time of the year again. My three month follow up scan has arrived. If you follow me on Instagram, Facebook, or Twitter, you know that I laid on the hard, metal table one week ago. The results are in…

There’s a spot on my left adrenal gland.

Before you begin jumping to conclusions, let me explain. We aren’t positive that this lesion is even cancer. This is a spot that has lit up on the last few of my scans, and first made it’s appearance in October. Since then, I’ve had several rounds of chemotherapy. Throughout it all, this unknown mass has remained. It has grown slightly in size over the last seven months, but doesn’t seem to be affecting my body’s function.

When I was first told of the news, I didn’t even know what an adrenal gland was. One of our close friends is a doctor in this field and was able to explain to us in non-medical terms what we were dealing with. The adrenal gland is essentially a hat on top of the kidney. It’s purpose is to produce hormones such as stress and adrenaline. Each kidney gets it’s own adrenal gland, so, naturally we all have two. This lesion could potentially be one of three things.

  1. A benign non-functioning tumor. In which case, it’s a mass that serves no purpose and isn’t affecting my adrenal function.
  2. A benign functioning tumor. This is a tumor that is releasing it’s own hormones like stress and adrenaline.
  3. A malignant tumor. Also known as, cancer.

Of course, we won’t definitively know what this spot is until it is biopsied and sent to a pathologist. However, based on my history in Cancerland, we can conjure up an idea of what it may or may not be. Most likely we can rule out it being a benign functioning tumor. If this were the case, I would be experiencing symptoms like heart racing and bloodshot eyes, which I’m not. It would be obvious if this mass was functioning on it’s own, and from what we can see, it’s not doing much.

There is a chance that this could be another recurrence. However, taking my history of malignancies into account, although this lesion has grown, it has not increased as rapidly as my other recurrent tumors. If you recall, my first recurrence was a softball-sized tumor that developed within three months. That mass grew rapidly and aggressively and even began affecting my hormonal functions. In addition to the difference in growth, my body has proven to respond very well to chemotherapy. If this were a malignancy it would be quizzical to have had no response to treatment. For these reasons and more, we believe this is not a malignant tumor.

This leaves the possibility of it being a simple mass that serves no purpose other than to annoy us by showing up around my left kidney. A little pest that has chosen to, for whatever reason, hang out on my adrenal gland. Matt and I strongly believe that a non-functioning tumor is what’s lurking inside of me.

We have abundant faith that this is not cancer.

Arguments can be made for both sides — malignant and benign. Yes, based on these last two years, an unknown mass can lead many to immediately think cancer. However, just as likely, it could be something completely unrelated. Not everything inside of me has to be marked by this disease.

Regardless of what this lesion is, it will need to be removed. Cancer or not, I don’t need something harassing my adrenal gland. Therefore, I will have surgery at some point. Honestly, I am not fazed in the slightest. I’ve already been through three major surgeries in the last couple of years. I’m familiar with the process and recovery. I know all too well about the discomfort and pain. Surgery no longer scares me. I trust that God has my life in His hands; Just as He orchestrated what has been, He orchestrates what will be.

This morning I venture back into the hospital to lay on another hard table while a loud spinning machine takes several images of my insides. This scan will be a full body PET scan and will show all of my internal organs, including my brain. Compared to the CT scans that I receive every three months, a PET goes deeper in it’s imaging and is far more comprehensive. We may or may not learn more information from this scan. This step is necessary to make sure there are no other masses growing elsewhere in my body.

Next week a new doctor will be added to our team, and we will meet with him to discuss surgery. He will go over the hundreds of documents that have chronicled my medical journey and review each scan image that has been taken. He officially has a new patient that comes baring a lot of medical baggage, and it’ll be interesting to hear his opinion on my case.

For now, we hope and pray. As I mentioned, Matt and I are not fearful, but full of abundant faith. We aren’t anxious, nervous, or even the slightest bit afraid. Standing in faith, we believe this growing lesion is not cancer. We believe that I am still cancer free and will remain so for the rest of my life. We believe that the chapter of cancer has closed and we are entering in to the next season of our lives. We are not only believing, but declaring this. God is so mighty in His power, we are calling upon Him to perform a miracle. He beckons us to have faith, to knock so He can answer, and to trust in Him. Therefore, while believing and trusting in Him, we are asking that this mass that has shown itself on my scans for seven months, will not appear on my PET scan. We are praying that whatever this spot is, will vanish. I actually laugh as I pray, because I can picture my team of doctors jaw-dropped as they read the report and view the images, and see the once 2.6cm mass completely gone.

So, while I don’t have the best news to share, I don’t have the worst news either. The results from my CT scan are merely a speed bump on the journey. This is a moment that the enemy is attempting to lead us to question God. I know he is asking us, “Are you sure you’re healed?” He wants to lead us down the path of emotional and spiritual destruction, but we stand against it. We aren’t entertaining the thoughts and fears that try to creep in. We won’t open a door until God tells us to. For now, we are firm in our faith, and believe in healing. We ask that you would stand with us and believe for a cancer free report.

Luke 8:50 (ESV)

“But Jesus on hearing this answered him, ‘Do not fear; only believe, and she will be well.’”

A Big Thank You

Every week I receive emails from readers sharing how I’ve helped them through their own journeys. Readers that tell me how inspiring, raw, authentic, and brave I am to share my story so openly. Men and women alike express to me their own struggles, spurred on by the openness in mine. Emails stating my writing is unique, clear, true, and often humorous. With every one of these emails, letters, comments, and notes, I am amazed… and grateful.

I’ve always been a writer. Not paid. Not professionally. In fact, I didn’t even go to school for writing. From my adolescent years, I’ve always kept journals — Jotting down my thoughts and emotions as a way to express my life. I’d pass notes in school to dear friends, pour out my teenage heart in puppy-love letters to old high school boyfriends, and send apology notes to my parents in attempts to say, “I’m sorry.” As my husband and I started dating, I kept a journal specifically for him, sharing my dreams and goals for our future. On our wedding day, I gave him this journal and invited him to begin writing our story with me. Writing has been buried within my soul long before I can remember.

A word is the deepest, most powerful and expressive way to convey thought. Words can inspire and help, or hurt and destroy. Words are a delicate tool that we have been gifted, and heed should be taken when using them.

As I’ve grown, writing has presented itself boldly on the forefront of my life. Upon diagnosis, I was called so strongly to share my journey that I don’t think I could have chosen not to. I was meant to write. At the time, I had no understanding of why. No reasons for sharing my little journey through life and cancer. No idea of what publicizing this story would do for me and for others. I obeyed that calling, if only for the fact that I could update friends and family on the latest additions in my treatment. After all, writing on a public blog was significantly easier than spending six hours on the phone like I did the day I was diagnosed.

Little did I know what was to come from an act of obedience. While it’s been natural for me to express my heart in words, it hasn’t always been easy sharing my largest struggle publicly. There have been times when I didn’t feel comfortable sharing how sick I felt. Times when I was fearful of what my readers would think of me if I told them I felt defeated. Moments of uncertainty in sharing my heart on the loss of my fertility. Moments when I didn’t want to write about cancer at all. And great sadness as I’ve had to share of my past recurrences with this dreaded disease. Yet, no matter how hard it has been, it’s been equally as rewarding.

… Because of you, the reader. My support team. The ones who have followed my journey from the beginning and have trusted my process. Those of you who have rallied around me, encouraging me from miles away. Those of you who have cried in your homes for me and for the many others fighting cancer. Those of you who have held my hand and prayed fervently for my healing. The many that I have yet to meet, who are actively standing and believing alongside me. And those who are fighting a battle similar to mine, sharing your stories with me through emails.

Thank you.

Not one of your comments, emails, notes, and even tweets go unnoticed. I read every single one, and try my hardest to respond to them all. I am touched that you take the time out of your busy lives to stop and read my words. To check in with me and see how I’m doing. To pray and encourage me through the high and low points. To notice my husband who is fighting equally as hard beside me. I am humbled that you would find interest in my story, in my process, and in my journey.

Of the hundreds of emails I receive, there are quite a few that stand out and affirm my decision for being so open. A man in Germany explained that he has never been able to put into words what he felt through treatment until he read my posts. A woman who has been struggling with the loss of her daughter finds encouragement through what I write about. A man once shared with me that after the tragic and unexpected passing of his loved one, he physically hadn’t been able to get off the couch until he read my story. Parents have written to me expressing their loss of a child. Women share feelings about their own loss of fertility, and the encouragement and camaraderie that my raw emotions gave them. Many express that, through the words of this blog, they have found their strength and identity in who they are beyond cancer.

Hearing that my willingness to be open about my fight with cancer is encouraging people from across the world, inspires me greatly. The encouragement you receive from me is equally received by me from you. When you write and share what you have learned through your own story, you bless me. When you tell me that you are encouraged to be more than just another statistic, you bless me. When you stand in agreement and believe with me that your diagnosis does not define you, you bless me. When you read my story and keep up with the latest twist in my roller coaster of life, you bless me. When you share my story with your friend or family who is struggling, you bless me. When you celebrate with me in the great times, and weep with me in the dark times, you bless me.

Thank you for following my story, and for inviting me into your homes through your TVs, computers, and radios. Thank you for being patient and understanding of me when I pour out the hidden places of my heart. Thank you for rallying beside my husband and I as we enter into new seasons in life.

Thank you. I look forward to what’s to come!

DMD Thank You

1 Thessalonians 5:11 (MSG)

“So speak encouraging words to one another. Build up hope so you’ll all be together in this, no one left out, no one left behind. I know you’re already doing this; just keep on doing it.”

Fruits and Veggies Through a Straw: Adventures in Juicing

fresh veggie juice

When I was first diagnosed, several friends and family informed me of a non-traditional method of healing cancer. This modality involved a strictly fruit and vegetable juice diet. My husband and I watched half of the 1970′s documentary before cynically shutting it off. We didn’t truly understand the message behind it as it seemed more like a “Save the Seals” advertising campaign than a juicing documentary.

People often come out of the wood work with the latest and greatest trends on how to beat the disease when cancer barges into the picture. I’ve shared about cancer etiquette, and among the list of things not to do when a loved one gets diagnosed is advising us of what treatment we should or should not choose. Every cancer patient is different, and different things work for different people.

Not until Matt and I were surfing the queue on Netflix, did the topic of juicing ever come up again. Over one year ago, we came across a documentary called, “Fat, Sick, and Nearly Dead.” We watched it a couple of times and enjoyed it, but never once thought we could actually achieve what Joe Cross himself did. Without giving a play-by-play run-through of the film, I can tell you that the story is about an unhealthy and overweight man embarking on a journey to self-healing without the use of prescriptions, chemicals, quick fixes, or doctors. He committed to a simple juice diet. With a juicer in tow, and a never-ending supply of God’s beautiful creation, he began juicing. Each and every meal consisted of fresh fruits and vegetables pushed through a machine to extract the utmost nutrients. He committed to this way of life for 60 consecutive days, and his results were astounding. Do yourself a favor and watch it.

Matt and I recently came across Joe’s film again and dared ourselves to try it. We aren’t overweight or unusually unhealthy. I’ve been a vegetarian for seven years — only recently adding fish to my plate every so often. I don’t drink soda, and stay away from caffeine completely. My vice will forever be a nice fluffy carbohydrate. I can’t get enough. But unfortunately, that’s true for all of us — carbs aren’t filling. They are evil little things that tempt even the strongest of wills.

I ended my third season of grueling chemotherapy less than two months ago, but as usual, my body takes a while to get back into the groove of things once treatment is over. It has been fighting for survival amidst a constant stream of poison for the greater part of two years, after all. I’m not simply focused on losing weight. My goal is to cleanse my body of the toxins that have been streaming through it. To rejuvenate and resuscitate the insides of this machine. We are only given one body on Earth, and it’s up to us to treat it well. It was time to clean out the old and welcome the new.

Before we knew it, our dare led us to become the owners of a gorgeous Breville juicer, and we stocked up on more fruits and veggies than we had ever seen outside of a market. Matt and I decided on a five-day juice cleanse and visited the recommended website to catch up on all the must-knows. We gathered recipes and posted them to the fridge, and before we knew it, we were ready.

Unsure of our very first juice. (March 2014)

Unsure of our very first juice. (March 2014)

Our first official juice cleanse began three days ago, and I am already amazed at how I feel. I’ll admit the first green juice we drank made me gag. It was a combination of flavors that I wasn’t accustomed to. Yet, my husband and I continued on, and I’m thankful that we did. I just finished my “dinner,” and feel satisfied and full. On the menu for tonight was kale, green apple, lemon, celery, spinach, and parsley. It was delicious. After drinking a few of our homemade concoctions, my energy was soaring. Even today, completing the third day of our juice fast leaves me feeling accomplished.

This cleanse hasn’t been smooth sailing from the start, however. The first day was the hardest. It just didn’t seem right to not chew my food, and only drink it through a straw. I experienced cravings, and I couldn’t watch TV. Do you realize how many food commercials we see every time we sit down to watch the tube? It’s ridiculous. Pinterest began to taunt me with its endless recipes, and I’ve had to avoid and ignore it. Pretty soon I was acclimated and no longer experienced unhealthy cravings. Don’t get me wrong, I still have cravings. Right now, I’d love to bite into one of the juicy apples resting on the kitchen counter, but the unhealthy desires have been curbed.

Soon we begin day four of our five-day juice fast, and I’m already beginning to play with the idea of continuing beyond our original plan. I’m feeling strong, energetic, and clear-headed. I have no desire to lounge around, and find myself brainstorming what projects can be done in the house. I’m sleeping better than I have since receiving my cancer diagnosis over two years ago. Typically I have to take melatonin right before bed in order to fall asleep and stay asleep, yet I have stopped taking it, and have slept better these past two nights than ever before. I’m officially a believer in juicing.

We’ve got two more days to go and endless amounts of kale and spinach to ingest, but with every day that passes, I find myself feeling healthier. My body is rejuvenating, and I am hopeful, excited, and happy.

Cheers!

Kale, Celery, Cucumber, Green Apple, Lemon, Ginger

Kale, Celery, Cucumber, Green Apple, Lemon, Ginger

1 Corinthians 10:31 (ESV)

“So, whether you eat or drink, or whatever you do, do all to the glory of God.”

The Right Shoe For Life After Treatment

Many outside of Cancerland think that once treatment is over, life continues again as if nothing ever happened. That we get to press the universal play button and proceed on our merry little way.

The reality is, life is never the same after cancer.

My life’s road map became forever altered upon the very moment I was diagnosed. There were many times after clear scans that I had the choice to revert back to my old life. I could go back to old jobs. Pursue prior dreams. Slip back into the routine of a life I once felt comforted by. Yet doing so always felt wrong. Like a butterfly trying to fit back into it’s cocoon. A place once full of great comfort and safety — though I could slide right back into it, my once upon a time haven would never be the same.

I am different than I was two years ago. Through the adventure of cancer, God has changed me. I have been stretched, broken, molded, and reformed. I see life through much larger lenses, and I appreciate moments that tended to slip by unnoticed in seasons past. My relationships have been altered. My character has been chiseled and refined. I am far more sensitive of what compassion and empathy really mean. I have suffered great loss, and have experienced overwhelming gain. I have been blessed abundantly. My body has been sliced open and stitched shut several times over. Organs have been removed and where there was once smooth soft skin, jagged scars remain.

I am no longer the Stephanie I was prior to my diagnosis. She was shed long ago, and the new me has matured. Why then should I force myself into her old shoes?

Through illness, new adventures, unexpected tragedy, job relocations, children, marriage, divorce, the passing of a loved one, or a cancer diagnosis, our experiences help mold us. We mature. We grow. We transform. The day we are living today is far different than the day we lived yesterday. Why then do we continually try to relive our past? Why then do we continually reach for something that has expired, as if the expiration was not the end of a chapter, but rather a revolving door?

Too often we turn around and view what’s behind us as a marker for what lies ahead of us. We think, “I wish I was back there. Where I’m at now sucks. How can I change this?” We try and relive our so-called glory days. Too often we place our eyes on the past, and are crippled by doing so. We do ourselves a disservice by comparing one season to another.

We have all gone through growth spurts. For me, elementary school entertained the most physical changes on my body. One morning I woke up and my shirts were too tight, pants too short, and shoes too small. Nothing fit, and no matter how hard I tried to stuff myself into my old clothes, they never fit the same again. Sure, I could wear the same shoes, but I’d be in pain for as long as my feet were crammed into them. I was in a dilemma. I loved my old shoes. They were comfortable and cute. I had become used to them, and found comfort in that. Yet, it was time to move forward. Out with the old. In with the new. It was better to find shoes that fit my current size, rather than trying to shove myself into an old pair.

Life’s seasons are comparable to shoes. We can cram ourselves into a past season, and never fit the way we once did. We try to recreate our past, yet suffer with the consequences. We will never experience what we did in the moment that has already expired. Therefore, we must live in the moment that God has for us today. We go through trials for a purpose. God allows us to endure unpleasant circumstances in order for growth and maturity to take place; to become more refined versions of ourselves. We can either embrace the change, moving forward with high hopes for our future, or turn around, desperately trying to hold onto something that once was.

Moving forward opens opportunities for new blessings. Staying behind limits what’s available for us.

As I face a new chapter living a cancer-free life again, I have a choice to make. Do I want to revert to the life I once had — one full of comfort, security, and predictability? Or do I embrace what God has allowed me to go through, and view it as an opportunity to experience new and exciting opportunities? Sure, the future is uncertain. There will be moments of great accomplishments and times of deep sadness. But I have grown in this season for a purpose, and in the future I will continue to mature, as long as I embrace the process.

I often hear, “I’m so happy you’re done with treatment! Now you can get back to where you were.” The latter is simply is false. My life will never go back to the way it once was. My challenge now is to figure out what my new life looks like. To navigate the different pathways that are set before me. And while I grieve that one season is gone, I am abundantly blessed to experience an entirely new one.

I’m ready to try some new shoes on.

Last Chemotherapy! (2/17/14)

Last Chemotherapy! (2/7/14)

 Isaiah 43:18-19 (MSG)

“Forget about what’s happened; don’t keep going over old history. Be alert, be present. I’m about to do something brand-new. It’s bursting out! Don’t you see it?”

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