Posts Tagged ‘phone call’

Our Plan, His Will

These past few days have been entirely orchestrated by God, of that I am sure.

Tuesday night, our church had it’s monthly women’s event, and I was asked to be a small group leader for the evening. One of my dear friends shared her testimony with all of us, and her message was enriched with His faithfulness. In fact, God’s faithfulness was the theme of the night. I am convinced that both the theme and it’s timing were orchestrated with enormous purpose.

Most of us say that He is faithful. We worship Him with that word. We pray for that characteristic to shine in our lives. But how many of us really know that it is true? God’s faithfulness is not measured by how many prayers are answered. He remains faithful even when our plans aren’t in alignment with His.

As I led my group into discussion, I was given questions to pose to the ladies. Here are a few that stood out to me, and have meaning especially now:

  • “Has there been a time where God has made something beautiful out of your hurt or pain?”
  • “How is our story part of God’s bigger story? Share a time when it was hard for you to see at first, but in the end you realized that God was doing something for a reason that you couldn’t see at the time.”
  • “Why is it sometimes hard to surrender to God’s plan in our lives?”

Notice that not one of these questions mentions an ease to or fulfillment of our plans. Many times God sees our plans and wants something bigger for us. I’m sure He looks at our life goals, plans, and desires and thinks, “That’s it? That’s all you want? My will is far greater that that.”

My follow-up CT scan was on Monday. Our women’s event was Tuesday. And I received the scan results on Wednesday. In the moment, I wanted the results immediately. Why couldn’t I receive them within seven hours like I did last time? I didn’t understand why. But now I do. Tuesday was God’s time to speak to me. To remind me of His faithfulness, regardless of the circumstance. It was His moment to encourage and empower me, and to remind me of His steadfast love. His timing was perfect.

I received the call yesterday morning at 7:03 am. Upon answering the phone, I heard my doctor’s voice. I immediately knew. A tumor had grown near my remaining ovary on the right side of my abdomen. It’s a little smaller than two inches. The cancer has returned for a third time. After listening to the medical details and ensuing plan of action, the conversation ended. My husband slid to the ground with his face in his hands, and began to cry. Tears began to fall from my eyes, as well. Instead of asking “Why?” I uttered, “I don’t understand. What plans do You have for me Lord?” I refuse to question His intentions, but can’t help questioning His plan. The tears of disappointment quickly turned into tears of sadness that I would, yet again, lose my hair. I ran my hands through my thick curls, and continued to express grief over the future loss of my locks. I hate losing my hair. It continues to be the most difficult part of this journey.

From the moment I processed this news, a calm confidence has filled my spirit. Where fear, doubt, and worry could hide, confidence has held residence instead. Large Cell Neuroendocrine cancer is extremely aggressive and, more often than not, fatal. However, this cancer is behaving unusual in my body. Unusually good. Sounds oxymoronic considering it’s return, however, it’s seemingly losing it’s power inside of me. Typically, this disease grows out of control and spreads quickly. Because both my hormonal and nervous system (Neuroendocrine) are under attack, this cancer has no bounds to where it can travel. In fact, in many cases, it heads to the lungs and brain rapidly. Yet, for some reason, it is remaining very localized in my pelvic region. It’s attaching itself to surgically removable organs. It is nowhere else in my body, and is no longer growing out of control. The tumor this time is significantly smaller than the second softball-sized tumor that developed within three months. I have been out of treatment for nearly six months, and was nearing the one year mark for being cancer free. All of these facts are good. They give me great confidence that once we remove this last ovary, the cancer will see nowhere else to grow and will cease residency in my body. I’m not dying from cancer. God has bigger things in store.

On October 6th, Matt and I will be running our very first 5k. We have been training for nearly eight weeks, and have put a lot of sweaty effort into our goal. This race immediately flashed in front of my eyes upon hearing the news that I would need surgery and chemotherapy all over again. “I WILL run this race. We’ll postpone surgery if we have to, but we ARE running this race.” Matt was adamant that I was delusional, but agreed to speak with my doctor. Explaining that this accomplishment would mean so much, I was insistent that cancer not take it away from me. Thankfully my doctor agreed, and smiling, she told us to run the 5k. Thank you, Jesus! Postponing surgery a few more days than expected should not have an impact on my health. If at any time between now and surgery, we feel the need to move forward with the procedure earlier, we can and will. However, my hope and prayer is that my pain will remain at a minimum and that the tumor will neither grow nor spread in this time. Our race is in ten days. Surgery is scheduled in eleven days, on October the 7th.

Through all of this, God remains faithful. Our plans and His are not in alignment, yet I know that His will for my life is far greater than I can imagine. For that reason, I continue to trust in His healing power, and know that He’s got this all figured out.

Psalm 138:8 (MSG)

“When I walk into the thick of trouble, keep me alive in the angry turmoil. With one hand strike my foes, with your other hand save me. Finish what you started in me, God. Your love is eternal—don’t quit on me now.”

 

 

It Won’t Win, Because I Won’t Lose

Last Tuesday, November 20th, I received a regular three-month follow-up scan. Typically I would have received a PET (full body) scan, however, our insurance is not cancer-patient friendly. Apparently, because my last PET scan in August came back clear of cancer, they deemed it unnecessary to cover any further PET scans unless a CT (localized) scan came back showing anything. Ridiculous, I know. Don’t get me started…frankly that’s beside the point.

I got a call from my Gynecologic Oncologist just two days ago, on the 26th. She immediately asked where I was, which in my heart, I knew was a bad sign. I was right. She informed me that my cancer has recurred. Dammit.

While we aren’t sure of the exact blueprints of this next treatment journey, I will give you as much information as we currently know. The mass that appeared in the CT scan is exactly the size of a softball. Yes, you read that correctly…a softball. Honestly, it’s one centimeter bigger than an adult softball. But that’s semantics. At it’s widest, it’s nearly four inches (9.8cm) in diameter. Shocking, I know. Clearly, this type of cancer is proving to be as aggressive as we were initially told. In August there were no signs of cancer, and only three months later, there is a beastly tumor the size of a softball growing inside my body. This circular mass has been located in the same general vicinity as my original golf-ball sized tumor. It is near my pelvic region, and close to my mid abdomen around my belly button.  It’s closer to my left side, and I can actually feel it.

About one month ago, I began experiencing pain in this exact location of my lower abdomen. Because the doctors usually push around my stomach when I get any check-ups, I thought I’d give it a go. I definitely didn’t expect to feel anything. But I did. I felt a hard mass. Because having already battled cancer often tends to making us survivors paranoid and hyper sensitive to any changes in our bodies, I tried to brush it off as nothing. Three weeks ago, I had a regular three-month follow-up with my doctor and informed her about this sudden change in my body. She explained that based on how our intestinal tract works, it most likely was just a back up of stool and that she couldn’t feel anything during her internal exam. In fact, my pap smear results were normal. However, the pain continued and progressed. Days went by and the mass remained. I chalked it up to being constipated. Maybe I was just more backed up than I thought.

Now that the CT results are in, we can most definitely connect the pain and hardness to this mass that has been discovered. My constipation is also a symptom. While, we don’t know exactly where this monster is thriving, my doctors believe it’s getting it’s blood supply from my bowels. That means lower intestinal tract. Hence the constipation. This beast is sucking the life out of my lower organs. And, have I mentioned how huge it is? I’m still shocked.

Where we go from here is a little up in the air right now. Surgery, radiation, and chemo are all on the table again. It’s a matter of the sequence of these treatments in determining the effectiveness. Late yesterday afternoon we met with a General Oncologist that my Gyn Oncologist recommended we see. Once we met this doctor, we immediately adored him. God has sent us another key player for our team. He is a genius when it comes to chemotherapy. He knows all the different types of drugs and their side effects. His knowledge immediately put us at ease. In addition, he treats a lot of lung cancer patients. Most lung carcinomas are similar to my Neuroendrocrine cancer. He knows his stuff. All of my doctors do, and we are so grateful for that. After explaining to us what we were dealing with, he began to talk about treatment options. Surgery first, then chemo? Chemo to shrink it and then surgery to remove it? While my current three Oncologists (Radiation Onc, Gynecologic Onc, and General Onc) are well versed, they really want the opinion of another expert.

As most know, MD Anderson is the biggest and best cancer center in America. Through word of mouth and recommendations, we have learned of a special doctor in Houston who is the lead researcher for my exact type of cancer. He is continually studying how my carcinoma works and what the most effective treatments are. Therefore, we need to get to Houston to see this expert immediately. My Oncologists here agree that I need to get out there as soon as possible… Like yesterday. However, remember the hoopla with our insurance? Again, they deem it unnecessary for me to travel outside of our basic providers to receive a consultation or treatment out-of-state. Completely asinine.  Essentially, they require that my doctors here call the authorization department of our insurance company and explain the urgency and necessity of this MD Anderson visit. Being fed up, I asked what it would cost to get an appointment without using our insurance and the receptionist answered, “$27,000.” Needless to say, we need insurance to agree to cover this out-of-state doctor’s visit. That’s a huge prayer request of ours right now.

Long story short, we need to get this ball rolling. This cancer is fast-growing and more aggressive than I ever imagined. I’m desperate to get this monster out of me. I want it gone, and I will do whatever it takes. I’ll go to Zimbabwe to receive a shot made from monkey saliva if I need to. Whatever it takes. And not to mention, this sucker hurts. We knew cancer was mean, but this is at a whole different level. My stomach throbs, and any time I touch it, it fires back… Umm, no sir. You will not win. We are going to poke, prod, cut, poison, and demolish you. Get the hell out of me.

It is imperative that I receive a PET scan in the next few days. Our team and I want to make sure it hasn’t grown anywhere else. They definitely want to check my lungs and my brain for any traces of malignancy. My team of doctors is having my case meeting today to discuss my situation and what the best course of action they believe will be. They are also going to conference call the doctor in Houston to try and see if any strings can be pulled for us to get in to see him. We could be going to Houston as early as tonight or the beginning of next week. I could also be in surgery as early as next week. And chemo might or might not start before then. Everything is dependent on my local doctors communicating with this Oncologist in Houston and getting on the same page. They understand the urgency of my situation, and are willing to do whatever it takes as well. We are all in agreement as far as getting this ball rolling as quickly and effectively as we can. We will continue to keep you updated as soon as we have a more solid plan.

Initially the news rocked us. I was deeply saddened and frustrated that we would have to go through all of this again. My husband was pissed. His anger was directed at God. “How could you allow this to happen again!?” But after a night of grieving, we woke up yesterday with a fire under our asses. My strong guardian of a husband, wrapped his arms around me and said, “It may sound weird, but I’m not scared at all.” And I feel the same. We aren’t scared because we are confident that with God on our side, we can beat this. We will beat this. I will be cancer-free again. And for more than a few weeks this time. I am determined to fight this battle and stomp on the enemy’s intentions. The enemy wants to defeat me, and there is no way we are going to let that happen. I’ve already told God that he’s going to have to drag me kicking and screaming out of this world. As incredible as Heaven sounds, I’m definitely not ready to make it my home yet. I’ve got way too many things to do on Earth. We’ve got babies to be had, memories to be made, and many more years to experience. Our faith is strong and our fire is burning. We know we are about to endure another intense and difficult battle, but there is nothing to fear. After all, “God has overcome the world.” Our victory is in Him.

Cancer will not win, because I will not lose.

Mark 4:35-40 (The Message)

“Late that day he said to them, ‘Let’s go across to the other side.’ They took him in the boat as he was. Other boats came along. A huge storm came up. Waves poured into the boat, threatening to sink it. And Jesus was in the stern, head on a pillow, sleeping! They roused him, saying, ‘Teacher, is it nothing to you that we’re going down?’ Awake now, he told the wind to pipe down and said to the sea, ‘Quiet! Settle down!’ The wind ran out of breath; the sea became smooth as glass. Jesus reprimanded the disciples: ‘Why are you such cowards? Don’t you have any faith at all?'”

PET Scan Results

Yesterday (2/1), I was invited to a wonderful luncheon that my husband’s company hosts. They are a missions organization, and send missionaries all over the world. Once a year, all of the missionaries come back to Colorado and have a week-long conference. I was lucky enough to be invited to enjoy a wonderful lunch, and hear incredible testimonies and stories from people who work all over the world.

I arrived at about noon, and within 10 minutes my phone began ringing. I used to never answer calls in which I didn’t recognize the number, however, that’s just one more thing that has changed. I’ve gotten pretty acclimated to stopping whatever I’m doing and answering my phone for any and everyone at this point, because I never know if it’s one of my doctors calling. Well this time it was.

My Oncologist was on the other end, and told me that my PET scan results were back. Remember I had to ingest all of those fun liquids prior to my test? Well, the scan was taken to determine if there were any more cancer cells in my body. They scanned me from head to toe. Results showed that my cancer has indeed spread. Not very far, but still. It has started to attack one of my lymph nodes.

This means, I will be visiting my Radiologist today to get further explanation as to what needs to happen now. My Oncologist and Radiologist need to determine if I’ll need radiation before or after surgery. She didn’t explain too much over the phone, so I’ll have to wait and find out what this all means in a couple of hours. I did learn from the receptionist who made my appointment, that first I’ll meet with the nurse to go over medical history, and then I’ll watch a movie about radiation. Great, a movie date for the man and me. Once we have been knowledged on radiation, we will then meet with the Radiologist. I suppose he’ll fill me in on what we have to do now.

I did mention to ask, if indeed I would need radiation, if I would lose my hair. She said that the type of radiation they would be using will not cause hair loss. Another gift!

2 Corinthians 4:16-18 (Message Version)

“So we’re not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without his unfolding grace. These hard times are small potatoes compared to the coming good times, the lavish celebration prepared for us. There’s far more here than meets the eye. The things we see now are here today, gone tomorrow. But the things we can’t see now will last forever.”

“Bring Your Husband”

On Tuesday 1/24, the day after my colposcopy, I received a call from my Gynecologist’s nurse. I’ll never forget that phone conversation. She simply stated that instead of having my follow-up appointment on Monday, at my doctor’s request I needed to come in tomorrow (Wednesday the 25th). If only she had said to just come in tomorrow… however, she added, “and why don’t you bring your husband with you, so we can talk about treatment.”

Wow.

Here were my thoughts:

  1. My doctor wants me to come in tomorrow instead of Monday? This is obviously urgent.
  2. I can’t go by myself, she wants Matt to come with me. Why? So he can pick me up off the ground, once I hear the news?
  3. This won’t be a fun conversation. Treatment is in my future.

I received that call at 4:30pm, and after informing Matt, we immediately went to my mom and step-dad’s house to process the news. I’m a “worst-case scenario” kind of girl. I let my mind quickly jump to the worst of cases in any and every situation. My thinking behind this is, it’s a way to protect myself from being shocked. And, once I know what the worst case could be, I can dream up a solution.

We soon began the discussion and brainstorms of what could possibly be the diagnosis. Cancer? Ectopic pregnancy? Ginormous fibroid? Although, I did let the idea of cancer enter my mind, I wasn’t ready to figure out a solution for that particular case. If it were to be a fibroid, that would be fine. Solution- surgery to remove it…no biggie.

I now believe that the reason I wasn’t ready to brainstorm solutions for a cancer diagnosis was because God only wanted me to see one thing at a time.

Matthew 6:34 (Message Version)

“Give your entire attention to what God is doing right now, and don’t get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes.”