Posts Tagged ‘patience’

28
May
2015

The Scan I’ve Never Made It To

Have you ever had a prayer so desperate it crashed loudly in the torrential storm of your spirit? A plea so full of depth, it couldn’t be given an audible voice? One equally full of hope and fear? Lately, my prayers have been carnal cries to the Lord. Petitions that bring me to my knees.

Less than three weeks from now will mark one year of clear, cancer-free scans. June 14th is a day I have fervently longed for since the beginning of this journey. While I’ve derailed the statistics of my diagnosis (a less than 20% chance to survive one year), I have yet to make it an entire year without cancer. I’ve hit the three-month mark and have even made it to eight months cancer-free, but I have yet to receive one whole year of clear scans. Within the next week I’ll be laying on the cold, hard, metallic table while a machine takes pictures of my insides from head to toe. And then I must wait, which for me is the hardest; Scanxiety can be quite overwhelming. This is the scan I’ve never made it to.

My prayer life has been brought to new heights since hearing my life is not guaranteed. Not one of my prayers ends without the utterance of a plea to remain cancer-free for the rest of my life here on Earth. My conversations with God are full of asking for dreams to come to fruition. “I’d love to grow old with my husband. Please allow me to experience motherhood. I want to watch my children grow into adults and have their own children. I ask that I live until I’m wrinkled, hard of hearing, and gray.” Some petitions are whispered in my spirit without a voice to convey them. Some are one worded, and I find myself simply saying “Please” quite frequently. Recently, I have found myself showing up at the feet of Jesus with a new sense of urging… Truth be told, I’m desperate.

Desperation is typically frowned upon. It’s a sign of weakness and can be quite pitiful. However, though my spirit desperately calls upon my Savior in this time of need, I know that weakness is not a negative trait in this context. In fact, I know that God wishes for me to be desperate for Him– Putting all of my energy into seeking Him for He knows I can’t do this on my own. I am desperate for life. Desperate for time. Desperate for memories. Desperate for survival. Desperate to hear the words “no evidence of disease.” Desperate for answered prayer. I am desperate to receive yet another clear scan to stamp the one year mark.

The amount of doubt, fear, and uncertainty that can sneakily ease its way into my mind is unmatched. The battle of the mind is often much harder than the physical fight against cancer. I have to constantly and consistently cling to hope that someday I will live a cancer-free life. I must avoid the dark traps and triggers that can send me into pits of despair. I must, with every fiber in my being, believe that I am healed. Though I still experience aches and pains, I must respond rationally rather than place myself in a worst case scenario. I also must surrender my control to the One who holds my life in His hands.

Time moves by slowly and at the speed of light all at once. Some days I wish I was receiving my scan right this minute, and other moments I wish I could put off the inevitable for one more day. This is a scan I’ve never made it to, and the importance sears itself into my heart. I’ve gotten pretty good at avoiding the “what ifs,” but know that I very well could be in a position I’m all too familiar with. Overcoming my worry is accomplished solely by my reliance on God. I can not worry, for worrying only wastes precious time. For now, I desperately cling to my faith in a God who is capable of every impossible hurdle I face. I find encouragement in the fact that He hears my every cry. And I know that He in His love for me, wants nothing more than the achievement of this milestone.

Though this is the scan I’ve never made it to, I’m believing that I soon will.

Mark 11:24 (ESV)

“Therefore I tell you, whatever you ask in prayer, believe that you have received it, and it will be yours.”

24
Sep
2013

Being Still Amidst Scanxiety

Yesterday I made the familiar walk into my second home. The hospital. I hadn’t been through those doors in over three months, and the typically all familiar halls were strangely foreign this time. For nearly two years, the hospital environment had been a weekly sight, yet since my latest cancer-free results, I haven’t needed to visit until my most recent follow-up CT scan. I strolled confidently to the floor of high-tech machines and qualified nurses and technicians, checked in, and began the wait with my most favorite oral iodinated “tropical fruit” flavored beverage in hand… Side note: Whoever markets these oral contrast drinks lies. Perhaps they have lost their taste buds due to the amount of taste tests they’ve had to endure. Perhaps they’ve never experienced the true flavor of fresh tropical fruits. Or, perhaps they slap that description on the bottle in hopes that patients will believe them, knowing full well we won’t. Have you smelled antifreeze? Have you smelled something and immediately been able to imagine it’s taste? “Tropical fruit” flavored oral iodinated contrast tastes like what antifreeze smells like. Now imagine drinking 16 ounces of that. Makes your mouth water similar to the way it does right before you vomit, right? I digress…

Scanxiety will forever exist in my life. No matter how far I get away from treatment and the closer I get to remission, scanxiety, to some degree, will persist. It’s the anxiety experienced before an impending scan. The feeling encountered when the “what if’s” begin. When the unknown has the potential to excite, relieve, and overwhelm, as much as it has the potential to disappoint, stress, and underwhelm. In the beginning of my battle against this beast called cancer (I don’t capitalize it for a reason), scanxiety was at an utmost high. The unknown was so unchartered that my weak physical and mental body could barely defend itself against the “what if” bandits. As I have grown and gathered more armor for this battle, I have been better able to fight off these fearful thoughts. Yet, no matter how strong and confident I am in my Healer, the bandits lurk in the shadows, continuously peeking around corners to make sure I know they have not left. The degree of persistence is varied, and as I get closer to fully annihilating this disease, the scanxiety wanes.

Yesterday, I couldn’t identify what I was feeling. The “what if” bandits were as quiet as a whisper, yet I didn’t feel entirely confident. To clarify, I was neither diffident nor afraid. But there was such an internal battle waging inside my spirit that I couldn’t focus on my feelings. Was I fearful that the monster had taken residency in my body again? No. Was I sure that the results would show no evidence of disease? No. My senses were clouded, as I could not differentiate if I was feeling good or bad about the possible results. Yet, no matter how thick the fog on my prediction was, my spirit was focused on the One bigger than any result.

There are many in-between moments in life. Times when we must wait between our dreams and fruition. I’ve spoken about the gap before. In these moments, our patience is tested. Our faith is tested. During the in-betweens, our character is revealed. Do we make the choice to be impatient and allow the floodgates of worry to envelop us? Or, do we stand firmly, confident that He who has been beside us through it all, will be faithful to carry us to victory? Being still isn’t easy. Being still doesn’t mean not moving. Being still means allowing yourself to fall into the arms of the One who saves. For in His arms, we cannot be influenced. We are safe, un-touched, and protected.

Between the scan and the results, I have choices. I can allow the “what if” bandits to turn up their volume and spread fear, doubt, and worry. I can turn off the volume of negativity, and replace it with a confidence in my ability to beat cancer; confident, sure, and self-reliant that I did it. Or, I can turn off all of the noise around me and be still, awaiting His voice, for my God, my Sovereign Healer, already knows the results. These three choices all have differing outcomes. If I choose to listen to the lurking fear and doubt, I will be catapulted into a pit of despair and worry, completely losing sight on He who holds me in His hands. If I choose to quiet the fear, and inflate my own abilities, I will become self-reliant, independently destructive, and will see no need for God. If I choose to be still, press into Him, and allow Jesus to comfort me in the waiting period, I will find peace, assurance, and rest.

Sometimes these three choices are difficult to decide upon, for we don’t see the outcomes of each. But if we are aware of the outcome, the choice should be simple. Peace, assurance, and rest are what I seek, so I must quiet the noise around me and focus on Him, and Him alone. The “what if” bandits and self-reliance will soon become muddled. Resting in God’s hands blocks all noise.

And so I wait. Being still. Patient. Until I receive the news, I will focus my eyes on He who is greater than any scan result.

Psalm 91:1 (ESV)

“He who dwells in the shelter of the Most High will abide in the shadow of the Almighty.”

CT Scan (September 2013)

CT Scan (September 2013)

29
May
2013

In Tears, There is Strength

Grief: (n) “Keen mental suffering or distress over affliction or loss; sharp sorrow; painful regret.”
Loss: (n) “The state or feeling of grief when deprived of someone or something of value.”

These last two weeks have been particularly full of overwhelming emotions. I’m learning that grief is similar to waves in the ocean. It ebbs and flows. One moment I’m fine, and the next I find myself weeping, unsure of the exact reason for tears to fall so easily from my eyes. My own emotions surprise me. They can quickly appear out of nowhere. Take today, for example. All morning I’ve been productive around the house and even got a good workout in. Yet tonight, I find myself feeling somber, sad, and choked up. I struggle to write.

I’m continuing to grieve the loss of the life I once had.

Grief is a process, I’m discovering. It doesn’t happen all at once. Certain moments can trigger tears as effortlessly as they can laughter. Throughout this past year and a half, I’ve cried more times than I can count. I’ve dropped to my knees in heaving, wailing bursts. Tears have been shed in grocery stores, parks, restaurants, and church. Grief does not have a timeline nor a schedule. It doesn’t require a specific location. It can disappear for days, weeks, and months, and reappear at the drop of a hat.

I don’t enjoy crying. Like many others, I was taught to suck it up and be strong. Yet, no matter how hard I try to remain “strong,” I can’t push away the weak feeling that envelops me. I hate to admit it, but right now I’m sad. Having cancer sucks. Fighting cancer sucks, too. It’s exhausting. It’s tiring. It’s stressful. It’s the hardest thing I’ve ever done. I’ve never felt so weak in my life as I have throughout this battle. This is emotionally and physically draining. While I know that there is purpose in my suffering, I can’t help but grieve the immense loss we’ve experienced. I can’t help but grieve the dreams we had imagined for our future.

Through this, I’m understanding that crying and grieving are essential to my healing. And, that in my tears, there is strength.

In moments like these I focus on something someone bigger than this. I cling to the promise that God is sovereign and faithful. He is here grieving the loss alongside me. He allowed this diagnosis so that my story would be bigger than I ever dreamt it could be. Through these tears, I look forward to the future that God has orchestrated, and the blessings He will pour down over my life. Three things remain… My God, my marriage, and my life. Aren’t those the most important after all? Everything that comes next will be a bonus!

Tonight, I cry. Tomorrow I may not. Grief comes and goes. In these tears, there is strength.

Matthew 5:4 (MSG)

“You’re blessed when you feel you’ve lost what is most dear to you. Only then can you be embraced by the One most dear to you.”

13
May
2013

Disease VS Diagnosis

Trusting in God's path. (May 2013)

Trusting in something bigger. (May 2013)

I have come to the realization that for the last 16 months I have only faced my disease (cancer), rather than coming head on with my diagnosis. This is not necessarily a bad thing, and for me, it has been beneficial to my fight.

Until two weeks ago, I did not want to know the details of my diagnosis. I knew that I had been diagnosed with a gnarly type of cancer called Large Cell Neuroendocrine Carcinoma of the Cervix, but the statistics did not matter to me. I felt that if I knew the ins and outs of my diagnosis, I would be brought to my knees in debilitating fear. After all, what I had been told already frightened me. “Rare. Poor prognosis. Less than 100 women worldwide have ever been diagnosed. Aggressive. Resistant to treatment. Recurrence is probable.” In fact, this diagnosis is so rare, there is only one doctor with any knowledge about it. And admittedly, he doesn’t know much. Those words gave me a sense of what I was up against, and I wasn’t ready to find out what this beast really was. I knew it’s identity, but didn’t care for it’s traits. Some may call this naive, but I assure you, this was my version of coping. I was protecting myself in the midst of the most weakest moments in my life. Had I learned the cold, hard facts about my diagnosis, I might have been crippled in times that I needed to pick up my shield and stand firm.

Recently, I had an overwhelming sense that I was supposed to know more than just this beast’s name. I felt ready. Thus began my search. Previously, I had been told by several doctors that there really is not much research nor information about the specifics of my diagnosis, and that if I was interested, I could look at studies of lung cancers. Apparently they behaved similarly. However, instead of investigating cancers similar to mine, I wanted to know more about LCCC (Large Cell Carcinoma of the Cervix) specifically. I came across a helpful website created by my fellow “sisters” in this fight and the doctor studying it. Upon entering, I felt nervous, apprehensive, anxious… and ready. As I clicked on the “Education and Information” section, I knew I was turning the key to the door of reality. I began reading. What is it? Who gets it? What are the symptoms? How is it diagnosed and treated? And lastly… what is the prognosis? I paused for a moment and told myself, “Stop reading. You don’t need to know.” Yet as I was repeating these cautionary words, I could not stop my eyes from continuing on through the statistics. By the end of the section, I was relieved it was over. Relieved that I finally knew why my doctor cried after giving me this LCCC diagnosis. Everything that I had been told had been confirmed. This cancer is a jerk. Don’t get me wrong, all cancers are, but this one is the bully in the classroom that won’t give up.

My heart still races as I share this experience. My human flesh is fearful and doubting. I’m not ready to die. I have an overwhelming number of things I still have yet to do here on this Earth. I have dreams, desires, and goals.

Yet, with these feelings of fear, my hope is in something much bigger than my diagnosis. Someone exponentially larger than this mere irritant called, cancer. 

From the beginning of this journey, I have stood firmly in the statement that statistics are just numbers. They don’t matter. My life and death will not rely on numbers that people have put together, no matter how much or how little their research shows. My life and death are reliant on my Lord. He has the end say. He directs my paths. He declares when the fight is over. Not the doctors. Not a website. Not a percentage. Not a number. I cling to my God’s statistics, and through Him I can be healed, no matter the prognosis. Statistics didn’t matter 16 months ago, so why should they matter now?

Often we get trapped in what the world is telling us. Labels, titles, and diagnoses. We forget who has the first, middle, and last say of our lives. No matter how vast my doctor’s knowledge is, my God’s knowledge is incomparable. Our hope gets caged in the confines of a statistical box. We think that if a doctor tells us something, it must be true. While my intentions are not to undermine the immense research and knowledge that our incredible doctors possess, I’m simply saying there is someone higher than this. Often, in our flesh, we cling to the circumstance. Instead, we should be clinging to the promise. Clinging to The Creator, The Sovereign Director of our lives. Clinging to the hope for something greater than this. And that is what I’m choosing to do. Since diagnosis, I have committed to standing in faith, having hope, and embracing joy. That doesn’t change now that I have read the statistics. If anything, it has concreted my faith, hope, and joy.

Numbers vs God. Guess who wins that battle?

Standing firm in God's statistics. (May 2013)

Standing firm in God’s statistics. (May 2013)

Jeremiah 15:5-8 (MSG Version)

“Cursed is the strong one who depends on mere humans, who thinks he can make it on muscle alone and sets God aside as dead weight. He’s like a tumbleweed on the prairie, out of touch with the good earth. He lives rootless and aimless in a land where nothing grows. But blessed is the man who trusts me, God, the woman who sticks with God. They’re like trees replanted in Eden, putting down roots near the rivers— Never a worry through the hottest of summers, never dropping a leaf, serene and calm through droughts, bearing fresh fruit every season.”

12
Apr
2013

Defeated. Triumphant. Confused.

One month before diagnosis. Completely unaware of what was to come. (December 2011)

One month before diagnosis. Completely unaware of what was to come. (December 2011)

It’s been about a week since my very last chemotherapy treatment, and I’m feeling different than I expected. Physically, I’ve rebounded a lot quicker this round, and in fact, was at church only three days after chemo (that’s unheard of for me). I’ve continued to get better and better faster than I ever have before. I’m not sure why that is, but I’ll take it. Emotionally, it’s a whole different story.

I expected to be jumping for joy on the last day of sippin’ chemo cocktails. But, boy was I wrong. I cried that night. I was both happy and sad that this chapter was ending. Sad, unsure, nervous, drained, and exhausted. Happy, anxious, excited, and overwhelmed. My emotions poured out through tears staining my cheeks. I felt both defeated and triumphant. Alongside my husband, I was utterly confused… and still am.

Shouldn’t I be over the moon, swimming in glitter, and running through fields proclaiming that I’m cancer-free? Shouldn’t I be thrilled? Shouldn’t I be proud when I receive congratulatory wishes? I don’t know, but this isn’t streamers and confetti like I expected.

I find myself feeling lost. I feel as though I was dropped down in a land I know very little about. I’m unsure of what path to take and where to find the roads leading to the dreams Matt and I have harbored. I can barely put my right foot in front of my left. I’m lost. My job for over a year has been fighting an epic battle against this potentially fatal enemy called cancer. I am a professional cancer warrior. I know the ins, outs, ups, downs, sides, and in-betweens of this journey. I have more medical knowledge than I ever knew I could possess. Although my identity is not in this diagnosis, it has been a huge part of my life for a long time. It’s been my job, my responsibility, my purpose. And now that it is potentially over, I don’t know where to go or what to do next.

The truth remains- I am thankful. I don’t wish to be in this battle any longer. If I have to, I will, but I am desperately praying and exhaustedly believing that this monster will no longer see my body as it’s residence. I want to live. I want to see our dreams come to fruition. I want to move on. As I think on and analyze my feelings, I can’t help but understand that I must accept this as a part of my life’s story. Of course, I continue to know that this has forever changed our future as we saw it, but I suppose, somewhere deep inside of me, I believed that we could pick up and move on. As if all of this was just a chapter, and we could turn the page. As much as I would like to forget about this diagnosis and continue on my merry way like nothing ever happened, I simply cannot. And I will forever bare the scars as a reminder of what will no longer be.

We ushered in 2012 joyfully and expectant. We were taking action and beginning to see our dreams playing out. Our metaphorical bags were packed and we were ready to move forward with plans for the new year. Then only a few short weeks later, our luggage of life was removed from our hands and spilled all over the floor. Dreams, wishes, and hopes were scattered and put on hold. More than a year later, I find myself looking at all the pieces and wondering which dream to pick up first. Which piece of the puzzle will be our next step? Where do we even begin to put this back together again? What is our life going to look like now?

Change is necessary. Without change, growth would not exist. And I want to grow, learn, and thrive. While I sit here viewing the pieces of our life’s puzzle unsure of how to put it all back together, I also know that the responsibility of starting over is not completely on our shoulders. We have someone much bigger and far more powerful to direct our steps. Although our life has been changed forever, our desires, hopes, and wishes still remain. And we will continue to stand firm on the dreams God has placed in our hearts. He put them there for a reason. God places those dreams into our hearts, and we follow stride, developing goals of how to see them become a reality. Sometimes God allows change so that our dreams birth bigger fruit.

Changing the circumstance can often change the size of the dream… and I have a feeling that through this diagnosis our dreams have become exponentially bigger. We dreamed of children, but only expected to have them the “traditional” way. Now, our future story of children is much bigger and far better than we could have ever imagined. We dreamed of making a difference in other people’s lives, but had no clue of how that could happen. God saw that dream, and drastically enlarged the outcome. I knew I dreamed of having a purpose, and because God knew that, He surprised me in making my purpose something so much greater than I ever knew possible.

Although I am still confused and can’t begin to see the picture of our future, I know our dreams will enter the journey at some point. I don’t know when or how, but my God is faithful, and if I can learn to sit in this gap between dreams and fruition, I know rewards are coming.

Looking drained and tired, but equally as excited on the last day of chemotherapy! (March 2013)

Looking drained and tired, but equally as excited on the last day of chemotherapy! (April 2013)

Lamentations 3:25-27 (MSG Version)

“God proves to be good to the man who passionately waits, to the woman who diligently seeks. It’s a good thing to quietly hope, quietly hope for help from God. It’s a good thing when you’re young to stick it out through the hard times.”

03
Apr
2013

Finishing Strong

My last chemotherapy session is tomorrow, and I can’t tell you how ready I am to be done. This has been a long haul. I’m over it. I’m ready to finish treatment and stay cancer-free forever.

Tomorrow’s treatment will mark my sixth and final chemo cocktail of this season. Six is enough. It better be enough. But six chemo cocktails isn’t all that it’s taken to fight this relentless beast.

Since diagnosis in January of 2012 and after my chemotherapy tomorrow, I will have received:

  • 30 chemotherapy infusions,
  • 28 external radiation treatments,
  • And, 2 major surgeries (Radical Hysterectomy with transposition of ovaries, and large mass removal from my abdomen including the removal of my left ovary).

Not only am I ready to be done making regular visits to the hospital and doctor’s office, I’m also more than ready to have my hair back. All of it…Lashes, brows, and locks. I’m ready to stop applying false eyelashes, filling in my eyebrows, and throwing on my wig. I’m ready to be me again. Will my hair grow back like it did (HERE) last time? Will it be dark and curly? I sure hope I get those curls back! Regardless, it will be wonderful to have my own locks when the outside temperatures increase. After all, wigs are hot, and they don’t play nicely with summer.

On Air with Angie Austin

On Air with Angie Austin (March 2013)

Like I’ve mentioned before, I have a lot to be thankful for. Without this battle, I wouldn’t have discovered certain blessings along the way. God has truly gifted me even through the lowest points of this journey, and has continued to remain faithful and true to His promises. He has shown me that joy can exist in the midst of heartache. He has used this diagnosis for His glory, and I’m confident He will continue to. There is no greater satisfaction than to know that He has transformed this tragedy into triumph. That He has given me a resonating voice to cut through cancer and reach others facing similar diagnoses. And again, that my story has a purpose… one that I may never be able to wrap my mind around on this earth.

Angie in Action

Angie in Action (March 2013)

A major blessing that I have counted has been the introduction to the lovely Angie Austin. Through her radio show, good news is shared daily. God has gifted her the platform to contagiously spread triumph in adversity. She has graciously invited me onto her show before, and recently invited me back. A couple of weeks ago, she read my latest good news through my Facebook status, and wanted me to share my report on the air. I must tell you, I have fallen in love with radio, and Angie has become a great friend of mine. She is warm, welcoming, fun, hilarious, and full of personality. And, chatting with her is a blast… a bonus. I could do it everyday. For those who missed the latest interview, feel free to listen to it online via podcast.

Stephanie and Angie after a great show on 810 KLVZ The Good News! (March 2013)

Stephanie and Angie after a great show on 810 AM KLVZ The Good News! (March 2013)

Matt and I are excited for this season of treatment to end. We look forward to not being “stuck” anymore, and being able to move forward with our lives. We look forward to the coming summer months when we can enjoy partaking in the activities we so love doing. Rockies games, hikes, trips to the dog park, concerts. I can’t wait to have a cancer-free summer… a cancer-free life.

Ephesians 2:7-10 (MSG Version)

“Now God has us where he wants us, with all the time in this world and the next to shower grace and kindness upon us in Christ Jesus. Saving is all his idea, and all his work. All we do is trust him enough to let him do it. It’s God’s gift from start to finish! We don’t play the major role. If we did, we’d probably go around bragging that we’d done the whole thing! No, we neither make nor save ourselves. God does both the making and saving. He creates each of us by Christ Jesus to join him in the work he does, the good work he has gotten ready for us to do, work we had better be doing.”

20
Mar
2013

Cautiously Optimistic

Scans are scary. And the week before and after are often anxiety-filled whirlwinds.

I received a CT scan a couple of weeks ago. You might remember that directly following my November surgery to remove the softball-sized mass, the tumor was sent to pathology. There, it was cut up into several different pieces and tested with various types of chemotherapy drugs. Results showed that some chemotherapies would work, while others were proven to be ineffective. There’s a catch, though. Three of the drugs shown to effectively eradicate my type of cancer, had already coursed through my body during my first season of treatment. Clearly they worked while swimming through my veins, but once I completed the regimen, the monster came out of hiding and grew once more. One of the drugs proven to be ineffective is what I am currently taking. Apparently several doctors don’t hold tight to the results of these biopsy tests. Therefore, my doctor suggested we stick to this proposed type of chemo and get a scan after four of my six scheduled rounds. So, with these rounds of chemo, it’s been trial and error. Let’s see if it works. If it doesn’t, let’s test something else. The longer I’m in this game, the more I’m learning how common the “trial and error” approach actually is. After all, there are no cures for cancer. I suppose it all really is just a guessing game. Unnerving to say the least.

As always, I was a bit on-edge the week leading up to my scan and the week following, while waiting for results. These scans show exactly what kind of game cancer is playing in my body. It’s not a “pass” or “fail” conclusion. It’s “live” or “die.” Often cancer doesn’t show symptoms and can only be detected through these methods. And considering I was technically prescribed a chemotherapy regimen that pathology showed to be ineffective on my type of cancer, my nerves were shot while awaiting the outcome. I ask for a large dose of grace from my dear husband during these times, as he often gets to experience the roller coaster of emotions that surround these scans. Add being menopausal to the mix, and you’ve got a pretty gnarly version of me. Oh…Menopause. I’ll save that discussion for a completely different post.

Last Thursday , I went in for another dose of chemo cocktails. That morning I knew my doctor would probably discuss the results of the CT scan I had received the week prior (3/8). I felt ready. I was ready. In my heart I was at peace with whatever the outcome. The waiting is the hardest. I just wanted to hear the results…good or bad. Before I was even able to speak with my doctor, my chemotherapy nurse walked over, papers in hand, and opened her mouth to speak. I don’t think I’ve seen my husband so nervous in my life. He was literally at the edge of his seat in anticipation. After a confusing introduction and with all eyes on me at this point, my nurse placed the papers in my hand and asked me to read the bottom line. “Impression: 1. Normal CT of the abdomen and pelvis.” So what? What exactly does that mean? As I asked my nurse these questions, she happily proclaimed that the scan showed no evidence of disease! The sigh of relief that Matt released at that point nearly brought me to tears. Sometimes I don’t realize the enormity of his love for me. At that point it was clearer than ever. What a vivid testament that my husband is in this by my side; From beginning to end. The results don’t just mean something to me. I’m not the only one affected. I know these things, but often I get trapped in my own head. Trapped in my situation. When the truth is, it’s our situation. I’m honored and blessed to have such an incredibly strong, faithful, loyal, and committed partner.

Clear CT scan results! (March 2013)

Clear CT scan results! (March 2013)

A “normal” result is a positive one. We are celebrating this news. However, I have received this outcome on a scan before. In August after my first season of treatments, I was also declared “cancer-free,” and you can read about that HERE. My attitude in receiving good news has changed since then. Afterall, I did have a recurrence three months after a similar declaration. Cancer came back after I had excitedly celebrated it being gone. Therefore, we rejoice in this news differently now. While we are very relieved and elated, we are cautiously optimistic. Just because I received a clear scan, doesn’t mean I’m forever done with this beast. And, it was only a CT scan which is localized to one area of the body; Different from a PET scan that tests your entire body for malignancies. We are optimistic and thrilled, yes. But we are cautious. We don’t expect cancer to show itself in my body again, but according to this disease, we can’t throw the idea completely away. I don’t think I’ll be fully able to relax and rejoice until I hit remission…in five years. And even then, it will be hard work to trust that I won’t have to deal with this diagnosis ever again.

Some cancers can be eradicated with surgery. Some with chemotherapy. Some with radiation. I’ve had all three types of treatment several times, and the monster continued to lurk and cause havoc. For now, it is gone. I’ve only got one more chemotherapy session in a couple of weeks and I’m happy. But to blissfully believe that I am forever done with this season would be foolish and naive. Cancer plays dirty. It doesn’t play according to our rules. It has none. However, to counteract that thinking, I believe in a BIG God that performs BIG miracles. The fact that cancer has no rule-book doesn’t mean that it can’t be righteously defeated. Statistics don’t mean a thing to me. My God writes my life, not statistics that some analyst wrote down. No matter how awful this Neuroendocrine carcinoma diagnosis may be, God can erase all of that. He healed people all throughout stories in the Bible, and continues to perform jaw-dropping healings today. I am believing that I will be another testimony of being healed and cured. I have faith that He will permanently remove any malignant particle from my body. I am believing that He has filled every single microscopic cell and that cancer will no longer reside in my life. While I stand cautiously on the results of this scan, I will continue to stand firmly on my foundation…on my God. I will continue to wait for His results.

James 5:10-11 (MSG Version)

“Take the old prophets as your mentors. They put up with anything, went through everything, and never once quit, all the time honoring God. What a gift life is to those who stay the course! You’ve heard, of course, of Job’s staying power, and you know how God brought it all together for him at the end. That’s because God cares, cares right down to the last detail.”

09
Mar
2013

Time Stands Still

Truth

Truth

It’s been about two and a half weeks since my last post. I typically write an entry once a week, and have found this to be beneficial for both myself and my readers. I’m sure some of you would love for me to post every single day, but I assure you, my life doesn’t have the abundance of fodder to permit daily rantings. You’ve probably been wondering where I went. Fact is, I went on no exotic vacations. I didn’t travel to a warm beach somewhere and sip margaritas. I didn’t fly to the Big Apple and hop on the subway to see a Broadway show. I’ve been here the whole time. But I’ve been feeling like a cancer patient more and more these last few weeks, and it’s as if time is standing still.

While I am an advocate and promoter of living your life as you would without a diagnosis, it’s been difficult for me recently. Side effects from chemo, emotional roller coasters, and the second-by-second battle of the mind have really put a damper on my life. My diagnosis is getting in the way, and it’s quite the annoyance. I’m actually downright pissed… and irritated… and frustrated… and exhausted… and, and, and.

Chemotherapy is cumulative, therefore, it builds up with each dose. This often makes side effects more prominent as time goes by, and in my case there is truth to that. My brain is being affected. I don’t feel like myself. I’m experiencing more and more “chemo brain.” It interferes with my short-term memory, and makes planning things a big task. Even with as organized as I am, some things have been falling through the cracks. Unless I immediately write in my planner what needs to be done, what appointment has been made, or when I plan on getting together with friends, the information just disappears. For some of you this isn’t odd or unusual, it’s a part of your everyday life. For me, this is the farthest from who I am. I like to be punctual. Lately, that’s a hit or miss. I like to remember to-do’s, plans, and appointments. Again, lately a hit or miss. I’m forgetful and indecisive. My brain isn’t registering things as quickly. For instance, I have forgotten whether or not I had already scheduled my next treatment. I have been nearly an hour late to hang out with family. And, when Matt asks where I’d like to go for date nights, I rarely can offer any suggestions.

I feel stuck. I feel like once cancer barged back into my life, everything froze. This second time beating cancer has been more trying. It’s hard to see everyone else’s lives continue on. Jobs, babies, the purchase of new homes, travel. Healing. Though I am genuinely and sincerely happy to see our friends and family continue on through life and in no way am saying “pity us,” it’s a bittersweet feeling. There are so many things that Matt and I want to do in our lives. We look forward to being parents someday, and I ache for that moment often. We look forward to moving to a different state and buying a home. We look forward to being able to travel (anywhere). But, right now I feel stuck. I know that someday these things will happen, but right now it’s as is our future is in a thick fog.

Fighting cancer is hard. And, often people have no clue how hard it truly is. It’s not only a fight for your life, which is difficult enough. It’s staying strong through multiple treatments. It’s standing firm in faith through scans and tests. It’s a one-on-one spiritual war. It’s all the aforementioned, combined with idiotic insurance agents, overwhelming medical bills, and other life drama. It’s not just a fight. My diagnosis has transformed every moment, every nook and cranny, and every aspect of my life. That’s just a fact.

Many of you hate needles. Many of you hate going to the hospital. Many of you hate feeling sick. Imagine getting poked with needles hundreds of times in a year. Imagine having to rush to the ER whenever you experience an unusual symptom. Imagine throwing up so violently you can’t catch your breath. Imagine the worst pain you’ve experienced and multiply it. Cancer sucks. And it pisses me off.

I’ve been asked several times, “How do you do it?!” Most of the time, internally, I am on the floor in hysterical laughter at this curiosity. The answer is, “I have two choices. Life or death. And I choose life.” In addition, I am thankful I have my faith. Without God, I would be dead already. Without my faith, hope would not exist. Without my Savior, I would be weak. But through Him, I am strong. Although cancer is the hardest battle I’ve fought, I refuse to be anything but victorious. It won’t rob me of my dreams and goals. It won’t steal my life.

Time may feel like it’s standing still for my husband and I right now, but one day, the hands on the clock will move once more. However, in the deepest part of my spirit, I know that time isn’t standing still at all. Every day and every moment in this journey is a day and a moment closer to our future. And although I can’t always see how God is working, I know that He is. I’m thankful that he didn’t punch out on His time card, and that He is still moving the pieces in my life.

You know what I look forward to the most? Being a cancer survivor. Looking back and being able to say, “It makes sense. I see how that journey fit together. I see what God was doing.” Until then, I fight to the finish, no matter how hard. Because, after all, I only have two choices.

Psalm 37:5-7 (MSG Version)

“Open up before God, keep nothing back;
he’ll do whatever needs to be done:
He’ll validate your life in the clear light of day
and stamp you with approval at high noon.

Quiet down before God,
be prayerful before him…”

 

09
Sep
2012

Obsessing Over Hair

Tonight, instead of watching the Broncos game (shame on me), I find myself obsessing over my hair. Let’s rephrase…my lack of hair. To be honest, it started coming back a few days ago. For those who are unfamiliar with hair re-growth after chemotherapy, let me use this time to inform you. When I say “it’s growing back”, in no way do I mean, “I have a full head of hair”. I’m not even sure I can legitimately call it “hair”, as it resembles peach fuzz more or less. When hair grows back after falling out from chemo, it comes in very soft and thin. Think: newborn hair. And although mine has started coming in, which I am grateful for, it’s still so very soft and fine. I really miss having a full head of thick, beautiful, long locks.

I realize I haven’t done a detailed post about hair, and haven’t shared many (if any) pictures about my hair loss process. To give you a better idea about my journey losing, regrowing, losing again, and now regrowing my mane, I’ll need to start at the beginning. For those who love pictures: buckle up, you’re in for a full-on illustrated story.

My locks in February 2012

Prior to my chemotherapy treatments, I had been growing my hair out. It was actually the longest it has ever been in my life. Ha! Kind of funny that when it was at it’s longest, it fell out. Let’s just say, I was totally diggin’ my hair seven months ago.

Volume…Glorious! February 2012

And then, two weeks to the day of starting chemotherapy treatments, my mop began to drop…literally. To the floor, and all over my pillow, and somehow my strands even found their way into my socks. True story. Hair loss from chemo doesn’t hurt. In fact, when it first happened, it was comical. I could run my hands through my hair, and chunks of it would come out. I even asked my husband to take a turn and pull some out. He was shocked that he could literally rip a fist-full of blonde right out of my head. Hilarious! (I guess you had to be there.) Washing my hair became pointless. In the midst of shampooing, the strands that fell out would mix themselves up in the suds and “left-behinds”, and turn into a knotted, gnarly mess. Check out how much hair I would lose in the shower…

No, that’s not a joke. Hair loss from ONE shower. March 2012

People who lose their locks due to chemotherapy deal with the loss differently. Some shave it off before it begins to fall out, while others wait until they only have a few strands on their head. As for me, I waited until I could no longer deal with having hair all over everything. It became so annoying. Hair on my clothes, in the sheets, on my pillow, in the car, and on my husband. I was very ready to just get rid of it. However, strange as it may sound, I saved all of it. Well, all the strands I could find. Yes, that means I went through the sheets, pillow, and clothes on a daily basis and picked all the hair off to place them into ziploc bags. That sounds so weird, but I really did it. And just to creep you out a little more… I have four bags full of my hair in one of my dresser drawers. Check out Exhibit A-

Smallest bag o’ hair. March 2012

When I had finally had enough, my husband and I had a head-shaving party. He shaved mine, I shaved his. It was one of the most intimate parties I have ever been to. Besides our dear friend (and photographer), it was just the two of us. I was scared, excited, sad, and nervous. Scared, because shaving my head forced me to have a visual reminder every day that I was fighting cancer. Excited, because I couldn’t wait to get rid of my worthless mane. Sad, because deep inside, I really didn’t want to give up my locks. And nervous, because I had never been bald before.

Sadness and grief. March 2012

Shaving my head symbolized me taking control over my situation. I was not going to let cancer continue to take pieces away from me daily. I would grab this ruthless monster by the throat and do things on my terms. When I passed the grief and tears, I became elated. I had conquered my hair loss by taking matters into my own hands, and I would conquer cancer.

Take that, cancer. March 2012

Pretty soon, I was baldalicious. And, frankly, I didn’t mind it. Having no hair meant that many minutes were knocked off my morning regimen. No hair to blow dry, flat iron, or curl. There is a bright side! Plus, I’m sure my husband appreciated that I was spending less time in front of the mirror each day.

First time seeing myself bald. March 2012

Once I completed my first three rounds of chemo and began my radiation adventure, I was put on a different type of chemotherapy. This specific type of chemo didn’t promote hair loss, so during the six-plus weeks of my radiation/chemo regimen, I actually grew hair back. Many of my family and friends were excited for me, however, I knew it wouldn’t be there to stay. As odd as it may sound, I would have preferred to have no hair throughout the entirety of treatment, as opposed to losing it, regaining it, and losing it once more. It sucked seeing my hair grow back, only to know that it would fall out again in a matter of weeks. I did enjoy being able to run my hands through my hair again, though.

Hair regrowth during radiation. July 2012

Again, after ending radiation and beginning my last three rounds of (hair loss inducing) chemotherapy, it was time to shave my head. My husband viewed himself as a head-shaving professional at this point. And I must admit, I agreed with him.

Head shaving party #2. July 2012

Since I ended my treatment last month in August, I have been extremely excited for my hair to come back. This time, I know it’s for real. This time, I know I’ll be able to keep it and not have to give it up again. Compared to how quickly my hair grew back in May, April, and June, it seems to be coming back slower this time around. Maybe I’m wrong. I could just be overly anxious to start growing my locks again. Let’s see. I’ve gotta do some math…It took thirteen weeks for my hair to get to the length it was in the above pictures. I am currently at almost five weeks since my last treatment. Damn. I guess it’s not coming in slower, I am just overly anxious. Can you blame me, though?! Although many would still view me as bald, I know my hair is growing back. Like I said, it’s not much hair right now, more so just peach fuzz, but it still counts. This gorgeous mane has to start somewhere!

The truth is, tonight I’ve been obsessing over my do, or lack thereof. I’m tired of being bald. I’ve spent the majority of my life obsessing over my hair, making sure it was just the right style and color. Now, I’m just obsessing over the fact that there is no do. I even searched “hair growth after chemo” to get some insight as to what my various “hairstyles” will look like as my mane grows out. I’ve watched time-lapse YouTube videos of hair growth. I’ve read other women’s blogs. But, the more I obsess, the more I realize I need to be patient. Not only patient, but proud. I am cancer-free, and my lack of hair is a visual reminder of the battle I have fought to rid my body of the monster. I am proud. Very proud. Just not so patient. Shoot.

It comes down to this: I’d much rather be alive and bald, than dead with a lot of hair. I’m so ready for what He has planned for me next.

Isaiah 43:18-19 (MSG version)

“’Forget about what’s happened; don’t keep going over old history. Be alert, be present. I’m about to do something brand-new. It’s bursting out! Don’t you see it? There it is! I’m making a road through the desert, rivers in the badlands.'”