Posts Tagged ‘grief after cancer’

Guilt of Life By Reality of Death

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My heart sinks like a heavy weight in the bottom of my chest. My anxiety pushes through my body, stealing air from my lungs. My pulse quickens and my mind wanders. I don’t want to face this. I don’t want to talk about it. I’d rather lock it inside behind the smile on my face. Yet no matter how much I try to avoid the topic, it bubbles up in my throat like flaming lava searching for an exit. Though I don’t want to address it, I know I must.

The weight of survival is heavier than I was prepared for. Especially when not everyone has the opportunity to live. The guilt of life caused by the reality of death is piercing and painful and unexpected.

Grief has shown itself in different forms throughout my life. Sadness was expressed in anger when my parents divorced in my childhood. Fear was cloaked in avoidance when I was first diagnosed with cancer. And, most recently, guilt hid behind overwhelming and undefinable anxiety. I was anxious, yet unsure why. I felt lost though I knew where I stood. I was burdened by a sadness that haunted the hidden places of my heart. But I was alive and well, surviving, though confused about my sorrow.

Survivor’s guilt is something I knew nothing about prior to entering the gates of Cancerland. It’s a form of grief that I didn’t know existed until years after surviving an often fatal disease. Whenever I had heard the term “survivor’s guilt,” it was always in regards to soldiers returning from war or survivors returning from some form of disaster. I saw news highlights about people overcome with guilt that their fellow passengers did not survive the same accident that they had. Those who were buried in sorrow because they lived when others did not. Those angry, questioning “Why me?!” And here I am now, having survived a diagnosis that continues to claim the lives of thousands around me, sitting in the thick of survivor’s guilt for the very first time.

When I was first diagnosed with a very rare and aggressive, stage 3, metastatic, neuroendocrine cancer in 2012, I never asked why. I didn’t lie awake in bed at night wondering what I had done to deserve the sickness bestowed upon me. I didn’t question my life. I wasn’t angry. I wasn’t depressed. I was simply ready to live and willing to do whatever it took. My eyes were set forward, my posture strong.

During my fight against the third recurrence of my disease, my grandfather was diagnosed with a similarly aggressive type of cancer and ultimately succumbed to the diagnosis. And though I heavily grieved the loss of my dear Papa, survivor’s guilt never showed itself. When one of my close friends entered a surgery that I too had received, only to develop a blood clot and suddenly passed away on the recovery table, guilt never surfaced. I was terribly grief-stricken, but not guilty. With each day, month, and year that goes by, people around me, several of whom I was close with, have died from cancer. Though it wasn’t until the most recent loss of an incredible woman in our cancer community, I never experienced survivor’s guilt.

Melissa was a warrior. She was full of faith and proclaimed her powerful testimony each and every day. She spread hope like wildfire, offering a positive perspective to those of us who knew and loved her. She valiantly fought metastatic breast cancer even when it spread to her spine and brain. She continued to post encouraging messages on social media and consistently clung to Jesus. She was a light to us all. And then, days before Christmas, she took her last breath and left for Heaven.

I was paralyzed in grief. I couldn’t cry. I couldn’t think. I couldn’t be angry. I couldn’t put words to my feelings. While several friends around me posted thoughtful and heartfelt messages of remembrance of a life well lived and taken too soon, I retreated. In fact, when Melissa stopped posting as frequently on social media, so did I. It wasn’t fair. She beat cancer, it was never supposed to return. It wasn’t fair. I couldn’t find words to say. I felt guilty for being alive, for smiling, for laughing, for loving, for living. It wasn’t fair. I was guilty for surviving because she did not.

I am coming to understand that survivor’s guilt is purely an expression of grief. Guilt is birthed in our grief when we lose a loved one to something that we survived. Survivor’s guilt is the “Why me?” when we are cancer-free and they are not. Survivor’s guilt is the “If only…” when reflecting on our relationship with the one who has passed. If only I had talked to her more. If only I had prayed for her more. If only. Survivor’s guilt is feeling like you are wasting the chance you’ve been given. Survivor’s guilt is the burden of life amidst the reality of death. Survivor’s guilt is a comparison of their circumstance and your own. Survivor’s guilt is the “Should have” and “Could not.”

It’s easy to become enveloped in self-punishing thoughts and feelings of guilt. It’s difficult to face these emotions. But until we do, we dishonor the lives cut short. When I made the conscious effort to be still and listen to my feelings, I realized that being trapped in guilt does nothing but punish myself and diminish my own life. I had to step outside of my grief and understand that those we have lost would not want us to live a life buried by guilt and sorrow.

We are alive and we must live. For those who are not, cannot.

Matthew 5:4 (MSG)

“You’re blessed when you feel you’ve lost what is most dear to you. Only then can you be embraced by the One most dear to you.”

PC: Kim Mitiska Photography

Life Awakened: Five Years Later

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Life after cancer is more confusing than anyone told me it would be. Honestly, they didn’t tell me much of what to anticipate when the disease was gone and the dust settled. Possibly because most didn’t even expect me to survive the first year, let alone the second, third, fourth, and least likely the fifth.

From the moment I was diagnosed and through the subsequent years during treatment, the focus for all of us was to simply get through it. To survive. To make it out somewhat intact. Yet, there was never any conversation beyond survival. Merely congratulatory well wishes upon my last treatment and the classic line, “We hope to never see you in here again!”, as if I were a prisoner released from a lengthy stint behind bars.

No one told me what life would be like back in the “real world.” No one told me that I’d experience post-traumatic stress disorder triggered by sights, smells, experiences, relationships, and even food. I wasn’t aware that I’d feel like I didn’t belong in this seemingly regular, normal, everyday life. I never imagined being more comfortable in a hospital than in a grocery store. I didn’t think I’d be shy about regaining my independence. I had no clue what life was supposed to look like or what I was even supposed to do when I arrived at my destination, when I reached my goal, and when I survived the statistics that labeled me. I didn’t know what to expect because I wasn’t expecting this… Life.

We had conversations about notarizing wills, what items would go to who, if my husband would remarry, and that eventually, grief would settle and everyone left behind would learn to cope with my death. We clung to the hope that maybe, just maybe, this period in time would fade away into the history of my life’s story. That, as a grandmother decades from now, I’d share tales of a battle won with my grandchildren. I never thought I would die from cancer, but as oxymoronic as it may sound, I wasn’t sure if I would live through it either.

I wasn’t prepared for the difficulties that a life almost lost has brought me. It’s been a recurrent struggle, a back and forth tug of war between then and now. Cancer isn’t just a moment in time. It’s not just something that happens and eventually goes away. It doesn’t sit on a timeline nor does it have a beginning or an end. From the moment it physically rooted itself into my anatomy, it also marked my very DNA and soul. Though free of disease, I will forever be marked by it. Though I walk without cancer, I will forever carry it with me. It has changed who I am, and the biggest conflict I now face is rediscovering who that really is.

Today marks five years since I heard those life-altering, fateful words, “I’m sorry, you have cancer.” And Friday marks two years free of this disease. I always thought that time healed all wounds, and though I still believe there is some truth in that, I think that healing requires more than days gone by. If only I could go back to that very moment when life as I knew it was forever changed. If only I could look that Stephanie in the eyes and say, “There is no right way to heal. There is no correct way to grieve. There is no road map nor compass. You will learn as you go, and you must trust that God has given you the grace for each obstacle you will face. Cry when grief falls upon you. Dance when joy is overwhelming. Laugh from the very pit of your soul. And love like your heart knows no bounds. There is no destination to be reached but rather a life to be well-lived. Keep looking forward and never let what happens today steal your joy for tomorrow.”

This new year has been full of incredible abundance and freedom. It’s the beginning of regaining my life. For the first time since diagnosis, I finally feel free. Free to feel. Free to release. Free to let my guard down. Free to really live this life that I’ve been gifted. I feel like I’ve finally awoken to the life that I so longed for after cancer. I think it’s due in part to the fact that I’ve ultimately given myself permission to.

As a cancer survivor, there’s a balance between recognizing and honoring the journey itself and also accepting survival with open arms. Though survival is the one thing I vehemently fought for all of these years, it’s also the one thing I must face head on. I’m alive, now what? It’s easier to live with a victim mindset always focused on what once was and what should have been; It’s more difficult to move forward with victory on my side, accepting that though cancer has forever changed me, it will not define me.

I expected that on this day, my five year anniversary, I would be in jubilant celebration, reflecting in awe of the miraculous road I’ve walked. Without a care, concern, or any hint of grief or sadness. After all, it’s been five years. FIVE. My doctors said I probably wouldn’t even make it to ONE, so this moment in time truly is a milestone. But here I am, and though I absolutely feel elated to be free of the shackles that bound me for years, I’m still coping with the grief that lingers after trauma. And you know what? I’m okay with that.

Though no one told me what life after would feel like, I’m learning that there is no “right” way. I’m learning to embrace what was was, what is, and what will be.

Isaiah 43:18-20 (ESV)

“Remember not the former things, nor consider the things of old. Behold, I am doing a new thing; now it springs forth, do you not perceive it?”

So Long, Brave and Strong

Before and After Cancer Stephanie Madsen

I’ve carried the weight through deep valleys and dark caves. Hunched over, I’ve trudged through quicksand, walked miles through the most desolate of deserts, and clawed my way over the steepest cliffs. Feet worn raw, knees scuffed, fingers bleeding. Sweat stinging fresh wounds. Several times wanting to quit, I didn’t.

Tripping over rocks, my heart whispered, “Brave and strong.” My body aching. Sore and tired and desperate for rest, the wind beckoned, “Brave and strong.” Needing water. My tongue dry and cracked, family shared, “Brave and strong.” My skin burned and tender, friends called, “Brave and strong.” Repeating over and over like a skipped record playing in my mind.

Brave and strong.
Brave and strong.
Brave and strong.
Brave AND strong.
BRAVE AND STRONG!

Though not fully convinced, I started to believe it. Soon, I lived it. There was no other option. When fear arose, I’d be brave. When defeat taunted, I’d be strong. For years, this became who I was. Ingrained in the core of my being, this was my name. Through it all, this was me. Cancer couldn’t compete, for I was far too brave and far too strong.

It wasn’t until the heat of the desert cooled, the sun slipped into the night, and the moon shone bright once again that I realized brave and strong wasn’t all I’d been. The light has a powerful way of illuminating even the darkest places. Behind brave and strong hid terrified and incapable. Afraid, weak, uncertain. Behind the warrior was the wounded. Behind the shield was the flesh. Until now, I didn’t even understand that there was something beyond bravery and strength. I didn’t have the capacity to carry the weight of it all, so for that season, I clung to brave and strong.

Pummeling perspective into my spirit, this realization has been swift and direct. When you hear that you’re brave and strong enough times, you take ownership. You embody the meaning of each word. They transcend from mere words to providential destiny. They grow big and mighty, overshadowing the rest. Though several moments left me shaking in fear, brave and strong took over. There was no time, no energy, no resources, no ability to be less than. But then the sun sets, pushing them off into the horizon. When cancer loomed like an endlessly haunting ghost, I wore the shield. But cancer is further and further away in the distance and I’m learning that there’s more. Behind brave and strong is great vulnerability.

I’m sitting in that vulnerability now. I’ve set the shield down and have noticed my wounds. Oh, the wounds. Burning, searing pain. My guts are all but spilling out before me, and I sit here looking at the carnage of the miles journeyed these last few disease-stricken years. It may sound odd… It sounds odd to me… I didn’t realize how much cancer had hurt me. How many wounds brave and strong covered up. How much fear and desperation the shield shadowed. For so long I denied the pain in order to endure it.

In a battle to the death, I have won. I’ve survived, succeeded, and overcome. Endurance has paid off and now it’s time to rest. Time to recover. Time to unwind. And most of all, time to heal. Looking at these wounds, I’m realizing healing isn’t going to be an easy process. It’s going to bring with it its own level of pain. A pain that must be walked through, not avoided. While the shield of brave and strong allowed me to endure the wounds, healing will force me to clean them. To heal is to pick out the thorns, wipe away the dirt, cleanse the area, and delicately salve. If not properly cleaned, the wound is restricted from healing. Yet, if you allow the healing to begin, but pick the scab each time it develops, ultimate healing cannot occur either.

I can’t tell you that I’m excited to clean my wounds. From what I’m seeing on the surface, it looks messy. Years and years of struggle caked into deep gashes. I also can’t tell you that I even know how to clean this on my own. I’ve never attempted a wound so deep. Like many, I’m going to need reinforcements like counseling, therapy, and support. Of this, I am not ashamed. And neither should you be. I can tell you that I do look forward to the relief healing brings. I know I can’t begin to fathom the debris that rests in my wounds, but I’m ready to scrub it out. I’m ready for the soothing comfort of the salve and the cute design on the bandaid I’ll pick out.

I know I’m not the only one who has carried a shield through the trenches of life. We all do. It’s how we survive. Just as I was brave and strong, so you may be too. But once the battle is over and the dust settles, the shield’s job is done. Shine it up, we’ll need it again someday for a different circumstance. Because… L I F E. It can be terrifying to address your wounds. To look down and see what happened behind brave and strong. But I have faith that healing comes from vulnerability. That redemptive restoration is birthed in the midst of that vulnerability.

It’s time to heal. I’ll grab the bandaids.

Jeremiah 30:17 (ESV)

“For I will restore health to you, and your wounds I will heal, declares the Lord…”

Putting a Bandaid Where It Doesn’t Belong

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Life is not meant to be lived passively, but proactively. I need to remember that. We all do. Instead of allowing life to pass by and just happen to me, I need to stake my claim and walk forward refocused in my purpose.

Recently, my journey has been harder than usual. I often feel like I’m only capable of handling a certain level of difficulty. That level has been reached, and I’ve come to the end of my capabilities. Facing an impossible level, I’ve been given a choice and, unfortunately, I chose wrong.

I have been knee-deep in a murky swamp. Mud, muck, and dark waters have enveloped me. I’ve felt slithering snakes swimming past my legs, taunting me and begging for my attention. The mud between my toes has encased my feet, urging me to stay put. Instead of trudging forward, I chose to sit down. Instead of forging a way to get out of the swamp, I stopped in my tracks. I convinced myself that I was taking a break to gather my strength and to rest. But at some point, breaks end. Eventually, you must get up and keep going.

This wasn’t a break. This was me sitting down, giving up, and not wanting to deal with what I was facing. Like a child not wanting to do something, I metaphorically went limp on the ground.

These past two months have sucked me dry — physically, emotionally, and spiritually. Chemotherapy has been increasingly difficult, and good days have become few and far between. I receive the poisonous toxins once a week, therefore plenty of my days are spent on the couch, pretty useless. My nausea is often overpowering and unbearable, sitting at the base of my throat like a volcano waiting to erupt. I’m tired. There are days when I can’t imagine anything better than the comfort of our bed. Exhaustion is exhausting. Not having energy to live life on my terms is an invitation for sadness to overwhelm. Some days, the harder fight is not against cancer, but against the subsequent emotions.

Beyond the daily battle against this disease, I have faced other obstacles. Difficult hurdles and layers of grief to top off this already bumpy journey. My grandfather, whom I lovingly called, “Papa,” passed away. We were very close throughout my life, especially so in these later years as we fought the same fight alongside each other. Never would I have thought I would be fighting cancer with my Papa, but it deepened our relationship in special ways. We understood each other through each surgery, treatment, and side effect. We lifted each other up on rough days. He fought a good battle, and ultimately won the victory. Boy, do I look forward to seeing him again.

Not only did I lose my grandfather, but only a few weeks later, a close friend of mine went to be with Jesus as well. This time, it was unexpected and sudden. The type of tragedy you can never prepare for. It still doesn’t seem real. A dislodged blood clot after surgery… A mere few hours prior, I was giving her a hug, kissing her on the forehead, and wishing her well as she was to head into the operating room. We joked, laughed, and prepared for how life would look like after the procedure. I lent my words of wisdom (having gone through several surgeries before), and let her know she would be fine. The shock still comes in waves. I just can’t believe she’s gone. How I miss her so.

The combination of grief, stress, frustration, exhaustion, and sickness has weighed me down, and I simply crumbled underneath it. I sat down in the mucky swamp and, instead of resting, I merely existed. I went through the motions each day. Chemo every Wednesday. Nausea pills every six hours. Church on Sunday. Grief, like my nausea, at the surface ready to explode. Yet, I couldn’t deal with any of it.

I covered my grief and uncomfortable circumstances with bandaids. I’ve watched too much TV. I’ve eaten horribly. I’ve been snappy with my husband. I’ve introverted. And, as many of you have recognized, I stopped writing. I just couldn’t bear pouring my reflections out to the world, when my thoughts were jumbled, messy, and self-pitying. Writing is cathartic for me. It helps me process, and in turn, heals my soul. Equally as my words encourage you, they often encourage me. There are more times than I can count when I read back through an entry and know God Himself was speaking through me to me. Yet, for several weeks, I avoided it. I sat down in the swamp and went limp.

It wasn’t until I was removed from my circumstances, and was stuck in a car for thirteen hours with my husband, that I pulled the bandaids off… finally facing the wounds that were hidden underneath. We talked and I cried. Releasing what had been burdening me for weeks. And, in true character, my husband gently led me back to The Lord. I am so grateful for an encouraging husband who holds my hand, understanding and grieving with me, and guides my eyes upwards.

The problem with placing a bandaid on a wound that doesn’t need one, is it doesn’t heal. Some wounds need air for a scab to form and the healing process to take place. My wounds needed air… The refreshing air of Jesus. And instead of reaching for Him, I put a bandaid on, covering myself from healing, and went limp. The bandaids paralyzed me and put me in a passive position.

While the grief, sickness, and emotion has been painful, I have learned from it. When life gets hard and uncomfortable, our human reaction is to give up. But have you thought how your circumstances might change if you were proactive in the midst of trudging through your own swamp? We have all faced difficult seasons in our lives. Many can say that, though our circumstances may not have changed, once we became proactive, our perspectives sure did. Instead of convincing ourselves we need a break and sitting down in our muck, stand strong, be proactive, and pull the bandaid off. Allowing God to touch our wounds and heal them is a powerful act. It’s painful, but so worth it.

What swamp are you sitting in? I challenge you to pull your bandaids off, stand up, and allow God to guide you in healing.

Psalm 119:50 (ESV)

“This is my comfort in my affliction, that your promise gives me life.”