Posts Tagged ‘young adult cancer’

Every Scar Has a Story

There once was a time when the biggest surgery I had was the removal of my wisdom teeth. Though I grew up wrestling around with my younger brothers and playing competitive sports, I had never broken any bones, suffered any major sprains, or even had a scar to show for my rambunctious childhood. I never needed glasses or braces. In fact, I’ll never forget the day my mom took my two younger brothers and me into the dentist to decide who would need braces. I cried upon receiving the news that I would be the only one who didn’t need corrective devices screwed into my mouth. My brothers looked at me with confusion and envy. I remember feeling left out of the cool club as not only my brothers would have braces, but so would the majority of my friends at school. I remember my anguish as I realized I would be one of the few without. There was something cool about braces, and casts, and scars. They were a rite of passage.

We’ve all heard that scars are cool. The majority of us were soothed by our mothers and fathers after receiving cuts and bruises in childhood by hearing that though we were in pain then, we’d soon receive an awesome scar to tell the story. Many boys were told, “chicks dig scars.” Scars were a sign of maturity and experience as a kid. Remember going to school and showing off every bump, cut, bruise, and scab to your friends? Scars gave us credibility. Scars told our stories. When did that change?

It was until I received my cancer diagnosis that I remained scar-free. Shortly after hearing the news, I was scheduled for my very first major surgery. One of the first questions I asked was, “How big will my scar be?” The transition from adolescence to adulthood transforms perspective on physical beauty. The world explains to us that flaws are to be covered up. We go from believing that scars give us a certain cool factor and should be shown off, to believing that they should be hidden. There are hundreds of creams being sold to reduce fine lines, wrinkles, and blemishes. We live in a society that tells us that beauty is flawless. Therefore, the presence of flaws translates to a loss of beauty. Scars become unwanted because we stop viewing them as stories and begin viewing them as shame.

A couple of years ago, I was in the midst of a conversation with a young woman who had recently had heart surgery when she shared her distaste for the scar that graced the majority of her chest. She expressed feelings of ugliness because of the mark on her body. She shared how often people stared and how self-conscious it made her feel. She said that though she is happy to be alive, she really hates the way she now looks as a result of surgery. She was covered in shame because of her scar. The young woman was stuck looking at the scar instead of reflecting on the story behind it. And she’s not alone. Many of us look at ourselves and are overwhelmed by what we see. We become trapped in the mindset that we are less than and not enough because of the scars that cover our skin. We believe what the world says and view ourselves as flawed.

Take a second to look in the mirror. Look at your body. Carefully examine each scar. What do you see? Are your marks simply rough, jagged, thick, discolored skin? Are they contorted, gross, and ugly? Do you find yourself wearing clothing that hides your blemishes? While viewing each scar, reflect on why that scar graces your body. What happened? What’s the scar’s story? Were you attempting to pop a wheelie on your bike as a kid? Were you in a car accident? Did you have surgery? Scars not only reflect trauma to the skin, but often trauma to our lives. Scars reflect heartache, loss, and pain and that’s why we are trained to hide them. We become transfixed on the trauma instead of the testimony and we attempt to cover them up in order to avoid the painful memories because of our skewed perspectives.

It’s been nearly four years since my initial cancer diagnosis. Since then, I’ve accrued 14 scars from several surgeries and treatments. It’s taken me time to see myself as beautiful again amidst the markings on my body. I’ve learned that the way we view ourselves affects the way we view others. When I noticed the scar on the young woman’s chest, I didn’t see what she saw. I saw strength and survival. I saw her story behind her scar. If we can see strength in others’ scars, we must see it within our own as well. We must choose to see the story instead of the shame.

Each of my 14 scars tell a story. And all of them proclaim healing and survival. Each one represents strength and overcoming. My story shouldn’t be hidden, and neither should yours. Wear your scars proudly. You earned them. You fought for them. They are your testimony.

Don’t let anyone tell you differently… Scars are still cool.

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2 Timothy 4:17 (ESV)

“But the Lord stood by me and strengthened me, so that through me the message might be fully proclaimed.”

Seeing Stephanie: Looking In The Mirror After Cancer

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Have you ever looked in the mirror and cried because of what you saw? When I first lost my hair, I would look at my reflection with tears streaming down my face. I would try to utter a word in an attempt to recognize my voice and confirm my identity. I couldn’t believe that it was me, Stephanie, in the mirror. It didn’t look like me. It barely resembled me. But it was still me. For months I saw a weak, sick, and (dare I say) unattractive person looking back. I looked neither feminine nor masculine. I was balder than bald with not more than a few hairs gracing my body. My face was swollen and discolored. I was embarrassed of my appearance. However, after receiving my pro card for fighting cancer not once nor twice, but four times, my perspective of my reflection changed. Rather than seeing a weak girl in the mirror, I saw a strong one. Instead of seeing sickness, I saw survival. I went from trying to hide my bald to embracing it and wearing it as a badge of honor. Bald became beautiful to me in more ways than one, yet I still didn’t quite see myself.

It took months and maybe years to fully embrace my new look. There were days where my reflection wouldn’t affect me at all, and others where I avoided the mirror at all costs for fear of who was looking back. As a woman, my entire life had revolved around beauty. Society told me that I had to wear a certain size, look a certain way, and have gorgeous hair to boot. Not only did my body physically change through treatment, my hair soon began falling from my head, and I felt far from beautiful. I grieved the appearance of who I once was. I felt that I lost her. I tried wigs in an attempt to bring her back, yet it was never the same. I couldn’t find Stephanie. She was no longer there… Or so I thought.

There came a moment when I realized Stephanie wasn’t a look. Stephanie was a person. She was a woman of character and integrity. She had a personality. She was more than a visual. This revelation allowed me to cope with my bald head. I began looking beyond the bald, straight into my eyes. I could still see a faint whisper of Stephanie through the glimmer of blue into the windows of my soul.

Though I accepted my new look, I longed for the day when I would easily find myself in the mirror once again. I impatiently awaited her arrival with each passing treatment. I wanted my hair, brows, and lashes back. I wanted my face to return to normal. Not only was I fighting for my life, I was (silly as it may sound) fighting for my reflection. Cancer has a deep and profound effect on one’s identity. I know I’m not alone when I express my grief over the transition of my appearance. Losing my hair was an outward representation of the war being waged within my body. It was a visual reminder of my mortality. I prayed not only to survive cancer, but also to not die without hair.

After four treacherous, exhausting, and desperate battles against this disease, I have come out on the other side. I dare not say that I have won, for the implications that arise when those who pass away from cancer are far too hurtful. Let me add, those who have died from this disease did not lose. Too often we hear that someone has “lost” their fight against cancer. What a deeply wounding word to place over someone’s life (and death). Please stop saying it. For reasons I may never fully understand, I have survived this disease thus far. I am now fifteen months cancer-free, and my hair has had nineteen months to grow. It’s been emotional seeing Stephanie return to my reflection. Glorious. Sweet. Incredible. Breathtaking. Emotional. As they did when I didn’t recognize myself in the mirror, tears appear on my face again. Not for the loss of something, but for the gain of something greater.

Hindsight is always 20/20. In the midst of our struggles it is difficult to see the entire picture. Due to circumstance, our blinders prohibit us from having a 360 degree view of our life. Not until we walk out of the rubble do we have the opportunity to reflect on the battle. I’ve had time, as each scan returns clear, to see how far I’ve come. Just as I watched Stephanie fade away, I’ve seen her return. My hair is nearly to the length it was when I first heard the words, “You have cancer.” I’m blonde again. My lashes and brows are full. When I look in the mirror, I don’t have to try so hard to find myself. I see Stephanie immediately. But it’s not just Stephanie that I see now. I see strength and victory. I see power and humility. I see joy and unending hope. I see deeply rooted faith. I see a survivor.

Though you may not see yourself right now, know that you are more than just a visual. You are not weak. You are not ugly. You are strong, and much braver than you can possibly comprehend. I encourage you to look beyond your reflection. Your hair will return and you’ll recognize yourself once more. Though your outside reflects your struggle, it also reflects your survival.

2 Corinthians 4:16-18 (MSG)

“So we’re not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without his unfolding grace. These hard times are small potatoes compared to the coming good times, the lavish celebration prepared for us. There’s far more here than meets the eye. The things we see now are here today, gone tomorrow. But the things we can’t see now will last forever.”

I’m Cancer Free. So Why Do I Still Feel Anxious?

(As appeared in Everyday Health on April 10, 2015)

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Treatment is over. The poisonous toxins are no longer coursing through my every cell. My body is recovering and my energy is being refueled. My hair is growing. I’m seeing hints of familiarity in the mirror — what I was before this wretched disease took over.

I’m beginning to feel like myself again. My scans are clear and there is no evidence of disease.

A burden has been lifted.

But another one has taken its place.

Those outside the gates of Cancerland believe that life goes back to normal once treatment ends. It’s as if we get to press some universal play button and then proceed on our merry little way.

Life is never the same after cancer. The disease does not pause our lives, it redefines them.

Cancer is like a tornado ripping through a town in middle America. It tears through lives and leaves destruction in its wake. Like trees violently uprooted and thrown aside, so too are dreams and goals. Life doesn’t go back to normal after the dust settles. The survivors are left to survey the rubble and pick up what remains.

Discussing the realities of life after cancer can cause pain, grief, and discomfort. Some struggle to move forward because they are stuck living in fear. The “what- ifs” can be paralyzing. It’s easy to be consumed by thoughts of your own mortality even after you are deemed “cancer-free.” This disease doesn’t just affect your body, it also affects your mind. The battle against debilitating fear and anxiety is real. And can be more difficult to bear than treatment itself.

The slightest presence of pain can deliver thoughts of a recurrence. “I have a headache… Has the cancer spread to my brain?” “My stomach hurts; I wonder if a new tumor is growing there.” This mindset is ingrained. Throughout treatment you are constantly asked if you notice any new pain or experience symptoms. Therefore, like Pavlov’s dogs, you are intuitively trained. Even the smallest change is cause for alarm.

Being cancer-free is bittersweet. On one hand, finishing the treatments that have been wreaking havoc on your body is emancipating. But, on the other, the thought of no longer actively fighting the disease is terrifying. Many people have a love-hate relationship with these life-saving treatments. After saying goodbye to our chemo cocktails, radiation, or other therapies, we are left to pray and hope that cancer will no longer choose our bodies for its residency.

How do we live after cancer? Do we try and fill the shoes we wore prior to our diagnoses? Do we begin a new journey?

Many use their experiences with cancer to help others going through the same battle. Others say that cancer makes them better people and redirects their focus. For those who leave Cancerland, life is much more fragile.

Cancer gives you a new lease on life. As if the multitude of decisions we have made since diagnosis aren’t enough, we now must decide what to do with the rest of our lives. Often, life before cancer seems meaningless compared to the vast experiences and enlightenment we gain afterward.

We have looked straight into the eyes of death, and have come out on the other side. We have been beaten down, knocked around — and yet we have survived. Our faith has been tested and reborn. Hope has emerged from the ashes. Though we have lost much, we have also gained strength we never knew existed.

We are different. We have evolved, developed, and grown. We must acknowledge that even though cancer has affected every area of our lives, we have come out on top. Living every day is a choice. And choosing joy is vital to a healthy and happy existence.

Suffering With Purpose

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A cancer diagnosis is not easy. Neither is the death of a child or divorce. Financial ruin and joblessness aren’t a walk in the park either. Relationships fail, bankruptcy happens, and some of us are stricken with life-threatening illnesses. Catastrophic storms occur and lives are uprooted every year. Depression and anxiety cripple millions. Accidents happen. Death, disease, and disasters are common. These things are the realities of the world we live in and they will continue over and over again so long as we are here on Earth.

John 16:33 — “In this world you will have trouble…”

Biblically, we have been promised to go through hard times. We have been guaranteed to experience suffering. There’s no way around it; We live in a fallen world. For the entirety of our lives, calamity will be around every corner. Many wonder why and begin to question God’s goodness when their lives are stricken with grief and struggle. After all, if God is good and He loves us, why do bad things come our way? And furthermore, if God is strong enough to move mountains, part the ocean, and calm storms, why then does He allow us to experience suffering? He is capable of healing, yet sometimes He doesn’t heal.

Have you thought about what life would be like without suffering? What it would be like if all of our dreams came true and we never experienced loss? I’d venture to say that we would live in permanent infancy, unaware and naive. There would be no need for growth, and we would live stagnant lives. There would be a resounding lack of purpose and no need for God. As one who has suffered greatly, I now find gratitude amid my struggles. No, I am not a sadistic lunatic and I do not enjoy grief one bit. However, in my suffering I am driven deeper and deeper into the arms of the One who loves me the most — my Savior.

There is purpose in our suffering. There is purpose in our grief, and in our pain, and in our struggle. It’s imperative for us to remember that. If we lose sight of the fact that our difficulties are being used for a bigger purpose, we can soon become bitter and hardened by every blocked road and detour in our journey. We’ve all experienced someone who oozes bitterness. Someone who clearly has been shackled to their situation and, whether by choice or subconcious, exudes an attitude of seething abhorrence for their life. My heart aches for those burdened in strongholds of grief and sorrow, for I know that though life is full of devastating troubles, there is still hope for something better. For someone better.

John 16:33 did not end by simply promising us troubles. There is more — “…but take heart, I have overcome the world.”

Reflect on that. Though we are guaranteed to struggle in this world, we are equally guaranteed a God so powerful that He overcomes our hurdles. Though our circumstances are impossible for us, with Him the possibilities are infinite. He shatters statistics, derails diagnoses, triumphs over tribulations, and overcomes obstacles. Our hope should not lie in our circumstances but in the One who rises above them.

Through our suffering, we have a magnificent opportunity to bring glory to the Lord. When we suffer, people follow our grief. The world watches to see how we will respond. Will we crumble and give up? Will we avoid and ignore? Will we become shackled? Or will we stand strong in faith with hope no matter the trial? Our suffering is a platform, and in our troubles we are on a stage. Your audience may be your immediate family. It may be your school, neighborhood, or community. It may be those you pass by in the grocery store or the stranger down the road. The world is watching. In your suffering, how will you respond? When people follow your grief, will you lead them to Jesus?

Suffering is purposeful. From the daily annoyances to the life-altering circumstances, there is reason in your struggle. Adversity is not encountered by random chance. Your story is not a mistake. My diagnosis of this rare and aggressive cancer was not unintentional. I have been given an opportunity to suffer well and with purpose. To lead others in my grief. To usher those who suffer alongside me to a hope that is bigger than what I face on Earth. There is opportunity in our suffering. Our struggles bring us closer to Jesus, for He suffered the most. We suffer so that we can become more like Him. We suffer so that we may be molded in His likeness. We suffer so that what doesn’t matter is stripped away. We suffer in order to understand what love really means. We suffer so we can stand by others in their grief. We suffer with purpose.

Life isn’t easy and never will be this side of Heaven. Pain is promised. Suffering is sure. Testimonies exist because of the tests that precede them. There is purpose in our grief. Will you suffer well?

1 Peter 4:12-13

“Friends, when life gets really difficult, don’t jump to the conclusion that God isn’t on the job. Instead, be glad that you are in the very thick of what Christ experienced. This is a spiritual refining process, with glory just around the corner.”

Marriage and Cancer: 10 Ways to Maintain Your Relationship After a Diagnosis

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Marriage is hard work. It requires a level of effort, dedication, and commitment unparalleled to other relationships. One of the first pieces of marital wisdom I received from my parents was exactly that— “Marriage takes work. It’s not a stroll in the park.”

Marriage captures the ability of two people to rely on one another through both the good and bad times. It measures one’s character and integrity through the act of caring for another. As with any relationship, most marriages experience high peaks and low valleys. A diagnosis will bring out the best and worst of you and your partner. It has the potential to tear your relationship apart or bring you closer together more intimately than you could have imagined. As the saying goes, it’s not about what happens to you, it’s about how you respond. Upon receiving the news of a diagnosis, you must make the choice to not only fight the disease, but also fight for your relationship. Below are ten ways to help your marriage after a diagnosis.

Commit: Above anything else, you must make the conscious decision to commit — both to your spouse and to the process. Commitment doesn’t automatically happen when you speak your vows. It is a choice that must be repeated over the course of your relationship. Your journey through cancer requires steadfastness and faithfulness to one another. You need to assume that life is going to get extremely bumpy and uncomfortable. Nearly everything you have encountered thus far has been butterflies, fairy dust, and roses and you’re about to endure some of the most difficult moments in your life. Both of you will be pulled in different directions and be influenced in many ways. When things get ugly, complications arise, and grief pours over you both, you need to hold tight to each other. Commit yourself to be there for one another no matter what happens.

Communicate: Continue to talk. Grief is expressed in a variety of ways and for some, it shows itself in silence. Though there will be times when you need to process on your own, don’t build a wall between you and your loved one. In an atmosphere of silence, assumptions are birthed and hurt will grow. Communicating can bring healing to your relationship. You will both experience different emotions from the moment you hear the news of the diagnosis, and being on the exact same emotional page will be a rarity. Keeping the lines of communication open will benefit your marriage by drawing you closer to one another and preventing hurt feelings in the future. It’s okay to express your fears and anxieties. And equally so, it’s okay to share your faith and hope. Be vulnerable and loving in your communication, and understand that talking things through will only benefit the bond you have with your spouse.

Prioritize: Life moves quickly upon receiving a diagnosis. Medical decisions will need to be made. You’ll need to find a team of doctors that you feel comfortable with. Treatment will be discussed, and you will need to choose which option is best for you. Eventually you’ll feel in over your head as the chaos circles around you. Keeping a list of priorities will help establish balance. Be aware of what tasks are at hand and stay on the same page as your spouse. Communicate what is most important to your relationship. Is it more important to preserve your fertility before beginning harsh treatments? Do you want to establish a medical banking account to manage expenses? Put yourselves first and be okay saying “no” to those around you. Your health and your marriage are number one.

Be flexible: Plans change… that’s life. When cancer rears it’s ugly head into your relationship, you need to start stretching. Many of your dreams, goals, and desires for your life and family will abruptly come to a halt. Keep a tight grip on your non-negotiables and let insignificant matters go. Change is difficult, but being flexible is more valuable than gold. Go with the flow. Some plans will fizzle and new dreams will come forth. Flexibility allows room for growth.

Stay on the same team: Cancer can bring out the worst in us. Anger is one of the most common emotions that patients and their families deal with. Remember that each of you process things differently, and that no way is better than the other. Allow each other space to grieve and be sympathetic towards one another. Remember that you are fighting cancer, not your loved one. Direct your anger towards the root of the issue, and don’t let your emotions erupt in an attack on your spouse. Though at times you’ll feel your partner doesn’t understand what you are going through, don’t alienate them and turn them into the enemy. You’re on the same team, and you each play a vital position. Work together at working through it.

Pursue: We’ve all heard that we should continue to date our spouse after our wedding day. Whether to keep things interesting or to continue to nurture the bond, pursuing each other is important to your relationship. This shouldn’t stop after a diagnosis. Though it will require a deeper level of intent, consistently seeking each other out will be rewarded. Make time for one another. Go out of your way to make your spouse feel special. Pursue your partner’s heart. Ask questions about how they are doing and be a good listener when they respond. Treatments and the subsequent side effects may get in the way of your typical dinner and a movie date night, but if you are creative you can cultivate new ways to deepen your bond. Remember that dates don’t have to be fancy or extravagant, and most likely won’t be for a while.

Be grateful: Have you ever met someone so full of gratitude that it made you reflect on what you’re thankful for? Having an attitude of gratitude in all circumstances will change your view of the most difficult times. Though you’ll have a large list of things you are angry, upset, and resentful over, make an effort to think of things that you are thankful for. Thanksgiving is one of the quickest ways to heal a hardened heart. Make a list. Whether in your mind or on paper, write down specific items you are grateful for. Be thankful for the details. Be thankful for all things big and little. Be thankful for the life and love you share with one another. An attitude of gratitude will transform your perspective and will strengthen your spirit throughout your battle.

Remain intimate: Intimacy isn’t always about sex. Though sex is one of the fundamental ways to be intimate with your partner, there are other means to stay connected. Unfortunately, cancer robs many people of their sexual function, yet marriages continue to blossom even without intercourse. When biology is thrown off, creativity is born. Adapting to your current situation will benefit you both. Be gentle with one another. Discover new ways to develop a more profound connection. Hold hands. Share secrets. Kiss. Being affectionate will remind your partner that you are invested in them. If you allow it, the intimacy in your relationship can reach new heights after a diagnosis. Vulnerability will welcome intimacy.

Remember your vows: Think back to the day you stood in front of your friends and family and made lifelong promises to your spouse. What did you say? More than likely, you vowed to stay by your partner in sickness and in health. While you probably had no idea that sickness meant cancer, you promised your partner you would not leave them when things got rough. You vowed to stand with each other no matter what. You vowed to love one another and cherish one another. There will be moments in your journey after your diagnosis that all you have left is the man or woman standing beside you. Think back to your wedding day. If you knew then what you know now, would your decision be different? True, authentic, raw love knows no bounds. You loved them then… love them now.

Mark 10:9 (NIV)

“Therefore what God has joined together, let no one separate.”

Alive and Pinching Myself

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I still wake up pinching myself. I cannot believe that I am done with treatment yet again. I have four major fights against cancer under my belt now, and I feel like a champion. I cannot begin to express how marvelous it feels to not dread each coming week. I’m alive and I feel like it. There are many times during the course of chemotherapy that I didn’t even feel like I was existing. I knew my blood was pulsing through my veins and that my organs were functioning. I knew that my lungs were breathing in air, and that my mind was cognitive. I knew that I was alive, but it was hard to feel life with poison enveloping every cell of my being.

I’ve made it. I have survived once more. And I’m alive. It’s always incredible to me how quickly my body recognizes the absence of chemotherapy. Though my muscles have atrophied significantly over these last six months of treatment, my insides are rejoicing. My mind is coming out of the dark haze and seeing with clarity. Because chemo is a depressant, choosing joy is a purposeful decision to be made, and now that the toxins are no longer attacking my psyche, I am overflowing with happiness. I’m alive and pinching myself.

As if surviving another season of treatment isn’t enough, the results from my PET/CT scan this week are the proverbial cherry on top. On Monday, rather than going to the hospital for chemo cocktails, I made the trek in order to receive my follow up scan. Though much easier physically, these scans are tremendously more harsh on my mental state. I’ve spoken about scanxiety several times before, and the pressure that it entails is incomparable. My whole body winces at the unavoidable anxiety that follows a scan. The waiting period is always the worst. I am vulnerable and out of control. There is nothing I can do but hope and pray… and practice patience, which God knows I need. My faith is put to the test.

With every scan that comes, God whispers into my spirit, “Do you trust me?” And, as strange as it sounds, I trust Him regardless of the results. I allow myself to play the what-if game for a moment. If results show that the cancer is nowhere to be seen in my body, I trust Him. And even if cancer peeks it’s ugly head out once more, I still trust Jesus. He is faithful, and has proven Himself ten times over in these last three years of my life. I owe it to Him to trust His intentions, for He is always good.

I’ve shared about the process of a scan before. If you follow me on Instagram, this week you got a sneak peek at what it looks like. I shared, “Today I’ll receive another PET/CT scan to confirm that chemo did its job and that my body is free from cancer cells. This is my current view and will be for the next forty-five minutes. I’ve checked in and filled out the same paperwork I have hundreds of times before. My name has been called and I have been escorted into a private waiting room — one all too familiar. My blood has been drawn and I have been injected with radioactive contrast. I’ve ingested the same ‘vanilla’ flavored barium as usual and have chased it down with water. I wait as ‘I’m The Only One’ by Melissa Etheridge is quietly playing over the speakers. I wait for forty-five minutes as the contrast courses through me. And soon I’ll be laying completely still for another twenty minutes as the scanning machine captures vivid pictures of my entire internal body. Later this week I’ll receive a call from my doctor’s office…”

That call came less than twenty hours later. It was Tuesday morning, the day after my PET/CT, and Matt and I were just barely waking up. For some odd reason my phone was turned to vibrate, so I didn’t hear the incoming call. When I looked at my phone, the first thing I saw was the missed call and a voicemail from my doctor. Though I didn’t think it possible, my heart both dropped to the bottom of my stomach in fear and leapt out of my chest in excited anticipation. This voicemail turned out to be one of the very best I have ever heard. As I quietly listened, I began to hear the voices of my doctor and head nurse. Soon I was smiling from ear to ear, and put my phone on speaker so that I could wake Matt up with the great news.

My doctor and nurse were rejoicing over the phone as they shared that my scan was negative and that there were no signs of disease anywhere in my body! I am officially cancer free, and something about this time feels different. I still don’t know God’s plan, and won’t even begin to presume or guess. But my faith is mighty, and I know that He is able to do anything. In fact, my faith and perspective have been strengthened recently as I have come to really understand how infinite His power really is. Our God who can move mountains, part the ocean, and make blind men see also heals the sick. I am declaring that He has healed me. And I am expecting more than I can even fathom for the future.

Psalm 28:7 (MSG)

“Blessed be God— he heard me praying. He proved he’s on my side; I’ve thrown my lot in with him. Now I’m jumping for joy, and shouting and singing my thanks to him.”

Don’t Worry, I’m a Professional

Being a professional is a good thing, right?

I’m no longer a novice, and am far beyond proficient. I’m now an expert at chemotherapy. This upcoming season of treatment will be my fourth go around, after all. In fact, pretty soon I’ll be over the hill with above 50 chemo treatments under my belt. I’m choosing to see this as a positive. I’ve got this chemo happy hour pretty well figured out. Not much can be put past me. Nausea, hair loss, exhaustion, pain, soreness, and aching? No biggie. I’m a pro.

Truth be told, I’m not nervous for my next round of treatment. It could be that I’ve done this for nearly three years and it’s become somewhat of a new “normal” to me or that I have complete peace in my journey knowing that God is sovereign over every detail. Upon learning that I would have to endure more chemotherapy as a result of my latest recurrence, many have asked if I am scared or nervous for this next season. I’m neither. At least, not yet.

I better not be. Happy hour starts next week.

Over these last few days, I’ve had several preparatory conversations with my doctors and nurses in both Houston and Denver. We’re all on the same page, and that in itself is comforting. Our plan goes into effect soon—I will be choosing a recliner in the infusion center next week, and will be ingesting my chemo cocktails in no time.

Each season of treatment is unlike the last, therefore, I’ll be receiving a different type of chemotherapy this time around. Though a self-proclaimed expert in all things chemo, I am still unaware of how this specific prescription will affect me. As a patient, we are given the rundown of possible side effects. Everything from low white blood cells and platelets to extreme tiredness. These are things I should expect with this type of chemo. I may or may not lose my hair… We’re praying for the latter, but won’t be too distraught with the former, however, I do love my curls! Though I won’t know how I’ll react until I receive treatment, I will generally feel as I have felt on chemo these past few years. Gross, tired, and sore.

Side effects may be similar, but the actual regimen called for this time is different than my past experiences. I will be receiving chemo once a week for three weeks in a row, with one week off. I will be doing this six times. Essentially, I will only have one week a month for the next six months where I won’t be getting treatment. It sure does seem like a lot. That equals 18 more sessions, but who’s counting? Yikes.

I’m ready for it. Ready to drive to the hospital every week. Ready to flood my body with copious amounts of poisonous toxins. Ready to feel like crap on a daily basis. Ready to fight. Ready. It’s amazing what you’ll do to try and stay alive.

As always, we will need abundant prayer, support, and encouragement. Remember 10 Ways to Help Someone With Cancer? The tips I provided last year are still very applicable to this journey ahead. We will be needing meals for when I’m feeling too tired, weak, or sick…Though Matt can cook a nice grilled cheese sandwich, his expertise does not reside in the kitchen. He does, however, drive to get take-out far better than anyone I’ve seen before. Gift cards to restaurants help as well. We will need endless support and encouragement, and please keep in mind I am not the only one going through this. My husband is the rock behind the scenes; my guardian standing firmly by my side. He needs as much encouragement as I do. We will also need understanding and grace, as our schedules will firmly revolve around how I am feeling each day. With what you’ve shown us in these last few years, we know you will rally beside us just as strong this time. Thank you for that.

Chemotherapy isn’t fun. It’s not something that I would choose to do had it not been crucial to my recovery. Going through yet another season of treatment doesn’t produce butterflies and rainbows. Instead, it’s brutal and exhausting. Chemo sucks. I love it and I hate it. No matter though, I’m a professional. I’ve got the port to prove it.

Stephanie_Headshot_3

Isaiah 41:10 (ESV)

“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”

Photo: Kimberly Mitiska Photography

Treasures in Texas

MD Anderson Cancer Center

MD Anderson Cancer Center

You know that feeling you get when you’re on your way back home from a trip out of town? The one where, though sad to leave, you are excited to get home and sleep in your own bed? This time I didn’t have it. My trip to Texas was so incredible, I wished I could have stayed longer.

MD Anderson Cancer Center is spectacular. As weird as it may sound, it felt like Disneyland to me. While some may view it as a place where people are dying, I saw it as a place where people are living. The spirit on the campus was breathtaking, and I often had to hold in tears. Walking through the doors of the nation’s greatest center for cancer care was awe-inducing. As if the angels were singing above me, I felt immediately ushered into the community. From the valet attendants and staff, to the doctors and survivors around me, everyone was so kind.

Never did I feel a sense of sadness. Through the view of wheelchairs, bald shiny heads, white coats, and the ever-present ports, I instead felt power, strength, faith, and unwavering hope. We had all shown up that day; a team fighting the same opponent. Arm in arm, mustering up everything within us to defeat cancer. Walking through the halls, I wanted to give everyone passing by a high-five… For all that they have done, and all that they will continue to do.

Among the hope inside it’s walls, MD Anderson is a congregation of camaraderie. A house built to support the strength and determination of people from all over the world. A home to doctors who pour their lives out to help rid our bodies of this disease. A tool for residents and fellows in the shadows of their mentors committed to learning all there is to know about this wretched plague. Survivors. Fighters. Cancer warriors on the front lines. Old and young alike. We were all in it together. Every moment I spent within the campus, I was surrounded by my teammates. My partners in crime. My brothers and sisters facing the same fight I have faced for nearly three years.

There’s something about being aware that everyone around you intimately knows what you are going through. The fears, doubts, and worries are shared. The experiences, surgeries, and treatments are all similar. The prayers, desperation, and pleading is unified. The camaraderie is evident, and though few of us exchanged stories, with a simple meeting of the eyes, we knew. We were walking in similar shoes.

I met with the lead doctor researching my diagnosis, and though I have spoken with him several times over the phone and email, meeting him in person was unlike any encounter I had had before. Upon his entrance into the exam room where I was waiting, I immediately stood up and asked if I could give him a hug. Though a small gesture, It was the least I could do for the one man representing women like me facing such a rare diagnosis. His knowledge astounded me. His passion overflowed. His mission was apparent. He is doing all he can to find a solution to defeat Large (and Small) Cell Neuroendocrine cancer.

After my exam, we sat in an office and went over my case, from diagnosis to the direction of treatment. He told me that he was able to talk for as long or as little as I wanted. This in itself amazed me. He truly is committed to me and my success, and was pouring in whatever I needed while I was there. We spoke about different types of chemotherapy, statistical numbers, the rarity of my specific diagnosis of Large Cell compared to the rare (but more common) Small Cell, the possibility of molecular testing, and maybe even a stem cell transplant.  After our long conversation, we developed a great plan for this fourth adventure. My doctor set up an appointment for a PET scan and contacted the stem cell department to fit me in before I left Houston. I exited his office standing tall and confident in my next steps.

While we are still awaiting results from a few remaining tests, we have chosen a new type of chemotherapy for me to try. After meeting with the stem cell team, we were given a resounding “no” on the idea of a stem cell transplant. There is not enough information to prove that it would be beneficial to my case. Frankly, this is alright by me, as I was simply exploring all of my options and wanted an open door or a closed one, but no in-between. As we expected, my PET scan results came back completely clear and cancer-free. However, though there is no known malignant activity in my body, we must do everything we can to kick it while it’s down. Considering this is my fourth season fighting this stubborn disease, monitoring it is not wise. Therefore, I will be starting a new chemotherapy regimen within the next couple of weeks, and will be back to baldalicious before we know it.

The rest of our trip in Texas was beautiful. The humidity and resounding heat didn’t even bother me! I was too focused on the blessings in my life…The treasures that Texas had to offer. The opportunity to go to MD Anderson. How God worked everything together in His perfect timing. The generosity of those who donated, and the realization that I wouldn’t have been there if it weren’t for my supporters. No matter how hard the trial, blessings continue to come. It’s up to us to see them. Light always overcomes the darkness. Our visit to Houston put a spark in my step and lit a new fire underneath me. I have been refreshed and renewed, ready for this next fight ahead of me.

Whoever said, “Third time’s a charm,” was wrong. I believe four will soon become my lucky number.

Awaiting my PET scan and cancer-free results!

Awaiting a PET scan and cancer-free results!

 2 Corinthians 9:8 (MSG)

“God can pour on the blessings in astonishing ways so that you’re ready for anything and everything, more than just ready to do what needs to be done.”

 

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