Posts Tagged ‘YACancer’

The Rollercoaster Ride of a Cancer Scan

Stephanie in CT SCAN

Bright and early on Monday morning I walked into the hospital for yet another follow up scan. I’ve received more scans than I can possibly count in these nearly four years of fighting this disease. PET scans, CT scans, X-rays, echocardiograms, and ultrasounds. Though my treatment has ended (which brings its own set of relief and fear), I continue to be checked for malignant cells. It’s a double edged sword, really. While I am frequently awarded with reassurance, I’m also being buckled into the roller coaster of anxiety once more. I cannot remember a time without these scans, and I’m not sure if I’m looking forward to the day when they cease to exist any longer. They are my lifeline and my nemesis.

These scans never get easier, no matter how frequent and routine they have become. Logically, I should be used to them, yet somehow each time feels like the first. I’m comfortable with the technicians and the machines. I am not claustrophobic nor afraid of needles. I’m not allergic to contrast and know exactly what to expect. However, no matter how comfortable I am with my surroundings, I don’t think I’ll ever be comfortable with the reason I am there in the first place. These scans tell me if cancer has again invaded my body or if it has finally given up and has not claimed residency once more. The remembrance of each recurrence floods my senses and can overwhelm me if I don’t keep a tight guard on my heart and mind. The phrase, “Out of sight, out of mind” rings true, but it’s not an easy practice.

Many ask how I feel when scan time comes and to be honest, it’s similar to a rollercoaster ride. Ironically, I used to love rollercoasters before diagnosis, yet now that cancer has entered my world, I have come to loathe them. Blame it on the amount of treatment I’ve had, the fact that I’m menopausal, how I know what true nausea feels like, or that my equilibrium is much different these days… Regardless, it would take a lot for me to willingly jump onto one. Yet, crazy enough, I willingly sit on the rollercoaster of scanxiety every three months.

Upon my regular exam with my gynecologic oncologist and the discussion of an upcoming scan, I am standing in line at the ride. I see others walking before me. Hands sweaty, nervous, and smiling artificially. Some have been on this ride so often that they don’t seem to be phased. For others, it’s their first time. The naivety is obvious, and I want to hug them before they hear the news. I know what to expect. I’ve been on this ride many times, but it never gets easier. This rollercoaster can be fun, but it can also be terrifying.

When I confirm my appointment time with the staff at the hospital, it’s in that moment when I’m buckled into my seat. The attendant pulls on the chest belt to make sure it’s tight enough. He walks to the next person and does the same. I double check. My seatbelt isn’t tight enough, yet I can’t get one more click tighter no matter how hard I try. Thoughts of me slipping out from the confines of the coaster and slamming hard into the pavement below flash through my mind. I’ve been on this ride before, yet I never know how it’s going to end.

Receiving the confirmation call of my appointment time is the beginning of the ride. The coaster slowly clinks up the ramp right before the big drop. Click. Click. Click. The anticipation is equally overwhelming and exciting. I know it will be over soon, but it feels like it’s taking forever.

The days leading up to the scan are the twists and turns of the coaster. One twist may be fun, while the turns can be frightening. My hands are gripped to the safety bars and my eyes are closed. Occasionally I open them to see what lies ahead, but it does me no good. My head is jerked from side to side as my feet dangle below me. In one moment I feel safe, and the next I fear for my life.

The morning of the scan is the point when the coaster reaches yet another upcoming drop. The momentum slows down while the adrenaline quickly courses through my body. My head lashes forward as the speed slows. I can hear my own heart beat. Again, I am being forced upwards. Click. Click. Click. I know this feeling, but I am never fully prepared for it. I’m praying. I’m looking at the other riders. They offer quick smiles and words of encouragement, “You can do this!” I know I can, but I’m still unsure.

Arriving to the appointment is the last drop. I know the ride is almost over, yet my hands are gripped tightly as I know I must free fall without control one last time. I’m excited, scared, and ready. I don’t scream, I try not to cry. I am and always have been a silent sufferer. I tell myself it’s okay. My eyes are closed tight as I begin to fall.

The scan is the wind flowing through my hair as I sail down to the end of the ride. My heart begins to calm as I know the ride is over. I begin to release my white-knuckled grip and my breathing becomes more steady. I never want to get on this ride again, though I know I will have to. Out of sight, out of mind. I will stay in this moment and not look too far ahead.

Awaiting the results is the walk to the kiosk that displays the picture that was taken as the coaster made its final descent. Will I look stoic and strong or fragile and frightened? This picture will determine my fate. Will I be celebrating or lamenting?

As of today, I’m still walking to that kiosk. I have not yet heard the results of my latest scan. I believe it will be good, but there will always be a small portion of me that is prepared for what happens if it’s not. When (not if) this scan shows no evidence of disease, I will have reached 19 months cancer-free. One step closer to the two year mark. One step closer to this being my past. One step closer to the exciting future that is to come.

Will you continue to pray for us as we await the results?

James 5:15 (ESV)

“And the prayer of faith will save the one who is sick, and the Lord will raise him up…”

#YARally With Cancer Knowledge Network

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A variety of exciting developments have been stirring lately! If you follow me on Instagram or Twitter, I’m sure you’ve seen posts about my recent business trips to New York City, Orlando, and Houston. I am touched that my story is impacting and inspiring so many, and in turn that I am able to travel and share a message of hope and faith around the world. We were never meant to walk alone and I am passionate about walking beside others in their struggles.

Among several recent ventures, I’m honored to officially announce my partnership with Cancer Knowledge Network. CKN is one of the largest cancer communities in Canada, and their goal is to help bridge the gap between young adult patients and oncologists. Because of the work of CKN and other organizations like Stupid Cancer and Livestrong, the YA (young adult) cancer community is growing in knowledge, understanding, and impact. When a young adult is diagnosed with cancer there is no longer a void of community, as many have rallied together to let the world know that we are not alone.

As the spokesperson and partner of the #YARally campaign with CKN, I’ll be writing several articles on a variety of hot topic issues that affect young adults in the cancer community including but not limited to body image, sexuality and relationships, finances, and fertility. Too often, the communication between doctors and patients is muddled and our goal in this project is to facilitate personal narratives combined with clinical resources in order to bridge the gap. We have recently launched our campaign, and I invite you to join this journey with us. Make sure to follow #YARally on Twitter, as well as my Instagram and Facebook pages in order to stay updated as this project develops. In addition, I will be co-leading Twitter chats and would love to talk with many of you on the topics being discussed in this campaign.

“It is my goal that by partnering with CKN, our voices will be heard where often they are overlooked. I invite you to join me in the movement to shine the spotlight on our generation as  we face challenges many simply do not face. Cancer doesn’t define your life, and I hope to rally beside the men and women of my generation to help pave the way for improved care and heightened awareness.” – Stephanie Madsen

Visit Cancer Knowledge Network’s #YARally with Stephanie Madsen to join the movement! I look forward to opening the conversation and raising further awareness for this critically important young adult community.

1 Thessalonians 5:11 (MSG)

“So speak encouraging words to one another. Build up hope so you’ll all be together in this, no one left out, no one left behind.”

 

 

Joy and Happiness Are Not The Same

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Joy and happiness are not the same. Think about what gives you joy; does it also make you happy? If you answer yes, which most of us would, you may then say that they are two in the same. But they’re not. Joy is a decision and happiness is an emotion.

I’m often told that I am a joyful person. I’ve been nicknamed “Sunshine” for nearly a decade. When cancer barged its way into my life I had a choice to make. Would I allow this disease to pull me down, beat me up, and steal my joy? Or would I stand firmly clinging to joy, no matter the twists and turns, pain and grief, sorrow and loss? As difficult as it’s been, I have chosen joy every single day. Whether it was the size of a grain of rice, or as large as the universe itself, I decided on joy. And it hasn’t been easy.

There are more days than I can count that I haven’t been happy. Society tells me that I’m not supposed to say that. I have a wonderful marriage, an idyllic relationship with my siblings, a close family, lifelong friendships, and financial provision. Yet happiness has not been a constant in my life. Whether circumstance reared its ugly head and pushed me over, whether personal issues arose and pulled me down, whether cancer forced its way in and ruined my perfectly pictured life, I haven’t always been happy. And you know what? I’m okay with that. Too often we are told to live happy lives. “Do what makes you happy.” That line makes me cringe. No! Don’t always do what makes you happy, do what makes you grow.

Because happiness is an emotion, it isn’t always attainable. If I watch a gripping movie that makes me cry, I’m not happy. Should I not watch those types of movies anymore? When someone I love passes away, I’m not happy. Should I limit my relationships so as not to feel the sorrow? When an argument arises in my marriage, I’m not happy. Should I subdue my opinions and stay quiet? (Maybe sometimes to that last one, but that’s not the point!) Happiness comes and goes. It’s a reflex to circumstance. It’s automatic. Hearing babies laugh makes me happy. I didn’t choose that, it was a relfex to a sound my heart enjoys. Attending weddings makes me happy. I didn’t choose happiness, it’s a reflex to another emotion… love. Happiness ebbs and flows dependent on what’s going on around us. Joy is dependent on us, no matter our surroundings.

Happiness is an outward expression whereas joy is an inward decision. Joy is choosing to rise above, regardless of our circumstance. Joy is staying positive amidst the most negative news. Joy is gratitude in unsavory situations. Joy is forging a way when there is no way. Joy is a choice. Joy must be chosen, we can’t expect it to simply happen. It’s a conscious decision that requires effort. It’s not easy to be joyful because it takes work. I’ve heard that some people are just born joyful, but I’d disagree. Some are born with more cheerful attitudes, but joy is an acquired trait. To acquire a quality, one must diligently practice. Fortunate for us, we live in a not-so-perfect world and have the ability to practice joy frequently. We are given daily opportunities to develop joy.

Among the innumerable things that cancer has taught me, the number one quality that I have learned is joy. I’ve learned how to look beyond my emotion and embrace joy no matter what tumbles into my life. I’ve learned that I don’t have to be defined by my amount of happiness, because what defines me is beyond an emotion. I’ve learned that a grateful heart is conducive to a joyful one. Seeing life through a lens of gratitude only deepens our joy. Developing joy now will transform how you see the troubles that are guaranteed to come.

Joy and happiness are not the same. Happiness is fleeting. Joy is fulfilling.

Proverbs 17:22 (ESV)

“A joyful heart is good medicine, but a crushed spirit dries up the bones.”

Every Scar Has a Story

There once was a time when the biggest surgery I had was the removal of my wisdom teeth. Though I grew up wrestling around with my younger brothers and playing competitive sports, I had never broken any bones, suffered any major sprains, or even had a scar to show for my rambunctious childhood. I never needed glasses or braces. In fact, I’ll never forget the day my mom took my two younger brothers and me into the dentist to decide who would need braces. I cried upon receiving the news that I would be the only one who didn’t need corrective devices screwed into my mouth. My brothers looked at me with confusion and envy. I remember feeling left out of the cool club as not only my brothers would have braces, but so would the majority of my friends at school. I remember my anguish as I realized I would be one of the few without. There was something cool about braces, and casts, and scars. They were a rite of passage.

We’ve all heard that scars are cool. The majority of us were soothed by our mothers and fathers after receiving cuts and bruises in childhood by hearing that though we were in pain then, we’d soon receive an awesome scar to tell the story. Many boys were told, “chicks dig scars.” Scars were a sign of maturity and experience as a kid. Remember going to school and showing off every bump, cut, bruise, and scab to your friends? Scars gave us credibility. Scars told our stories. When did that change?

It was until I received my cancer diagnosis that I remained scar-free. Shortly after hearing the news, I was scheduled for my very first major surgery. One of the first questions I asked was, “How big will my scar be?” The transition from adolescence to adulthood transforms perspective on physical beauty. The world explains to us that flaws are to be covered up. We go from believing that scars give us a certain cool factor and should be shown off, to believing that they should be hidden. There are hundreds of creams being sold to reduce fine lines, wrinkles, and blemishes. We live in a society that tells us that beauty is flawless. Therefore, the presence of flaws translates to a loss of beauty. Scars become unwanted because we stop viewing them as stories and begin viewing them as shame.

A couple of years ago, I was in the midst of a conversation with a young woman who had recently had heart surgery when she shared her distaste for the scar that graced the majority of her chest. She expressed feelings of ugliness because of the mark on her body. She shared how often people stared and how self-conscious it made her feel. She said that though she is happy to be alive, she really hates the way she now looks as a result of surgery. She was covered in shame because of her scar. The young woman was stuck looking at the scar instead of reflecting on the story behind it. And she’s not alone. Many of us look at ourselves and are overwhelmed by what we see. We become trapped in the mindset that we are less than and not enough because of the scars that cover our skin. We believe what the world says and view ourselves as flawed.

Take a second to look in the mirror. Look at your body. Carefully examine each scar. What do you see? Are your marks simply rough, jagged, thick, discolored skin? Are they contorted, gross, and ugly? Do you find yourself wearing clothing that hides your blemishes? While viewing each scar, reflect on why that scar graces your body. What happened? What’s the scar’s story? Were you attempting to pop a wheelie on your bike as a kid? Were you in a car accident? Did you have surgery? Scars not only reflect trauma to the skin, but often trauma to our lives. Scars reflect heartache, loss, and pain and that’s why we are trained to hide them. We become transfixed on the trauma instead of the testimony and we attempt to cover them up in order to avoid the painful memories because of our skewed perspectives.

It’s been nearly four years since my initial cancer diagnosis. Since then, I’ve accrued 14 scars from several surgeries and treatments. It’s taken me time to see myself as beautiful again amidst the markings on my body. I’ve learned that the way we view ourselves affects the way we view others. When I noticed the scar on the young woman’s chest, I didn’t see what she saw. I saw strength and survival. I saw her story behind her scar. If we can see strength in others’ scars, we must see it within our own as well. We must choose to see the story instead of the shame.

Each of my 14 scars tell a story. And all of them proclaim healing and survival. Each one represents strength and overcoming. My story shouldn’t be hidden, and neither should yours. Wear your scars proudly. You earned them. You fought for them. They are your testimony.

Don’t let anyone tell you differently… Scars are still cool.

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2 Timothy 4:17 (ESV)

“But the Lord stood by me and strengthened me, so that through me the message might be fully proclaimed.”

Seeing Stephanie: Looking In The Mirror After Cancer

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Have you ever looked in the mirror and cried because of what you saw? When I first lost my hair, I would look at my reflection with tears streaming down my face. I would try to utter a word in an attempt to recognize my voice and confirm my identity. I couldn’t believe that it was me, Stephanie, in the mirror. It didn’t look like me. It barely resembled me. But it was still me. For months I saw a weak, sick, and (dare I say) unattractive person looking back. I looked neither feminine nor masculine. I was balder than bald with not more than a few hairs gracing my body. My face was swollen and discolored. I was embarrassed of my appearance. However, after receiving my pro card for fighting cancer not once nor twice, but four times, my perspective of my reflection changed. Rather than seeing a weak girl in the mirror, I saw a strong one. Instead of seeing sickness, I saw survival. I went from trying to hide my bald to embracing it and wearing it as a badge of honor. Bald became beautiful to me in more ways than one, yet I still didn’t quite see myself.

It took months and maybe years to fully embrace my new look. There were days where my reflection wouldn’t affect me at all, and others where I avoided the mirror at all costs for fear of who was looking back. As a woman, my entire life had revolved around beauty. Society told me that I had to wear a certain size, look a certain way, and have gorgeous hair to boot. Not only did my body physically change through treatment, my hair soon began falling from my head, and I felt far from beautiful. I grieved the appearance of who I once was. I felt that I lost her. I tried wigs in an attempt to bring her back, yet it was never the same. I couldn’t find Stephanie. She was no longer there… Or so I thought.

There came a moment when I realized Stephanie wasn’t a look. Stephanie was a person. She was a woman of character and integrity. She had a personality. She was more than a visual. This revelation allowed me to cope with my bald head. I began looking beyond the bald, straight into my eyes. I could still see a faint whisper of Stephanie through the glimmer of blue into the windows of my soul.

Though I accepted my new look, I longed for the day when I would easily find myself in the mirror once again. I impatiently awaited her arrival with each passing treatment. I wanted my hair, brows, and lashes back. I wanted my face to return to normal. Not only was I fighting for my life, I was (silly as it may sound) fighting for my reflection. Cancer has a deep and profound effect on one’s identity. I know I’m not alone when I express my grief over the transition of my appearance. Losing my hair was an outward representation of the war being waged within my body. It was a visual reminder of my mortality. I prayed not only to survive cancer, but also to not die without hair.

After four treacherous, exhausting, and desperate battles against this disease, I have come out on the other side. I dare not say that I have won, for the implications that arise when those who pass away from cancer are far too hurtful. Let me add, those who have died from this disease did not lose. Too often we hear that someone has “lost” their fight against cancer. What a deeply wounding word to place over someone’s life (and death). Please stop saying it. For reasons I may never fully understand, I have survived this disease thus far. I am now fifteen months cancer-free, and my hair has had nineteen months to grow. It’s been emotional seeing Stephanie return to my reflection. Glorious. Sweet. Incredible. Breathtaking. Emotional. As they did when I didn’t recognize myself in the mirror, tears appear on my face again. Not for the loss of something, but for the gain of something greater.

Hindsight is always 20/20. In the midst of our struggles it is difficult to see the entire picture. Due to circumstance, our blinders prohibit us from having a 360 degree view of our life. Not until we walk out of the rubble do we have the opportunity to reflect on the battle. I’ve had time, as each scan returns clear, to see how far I’ve come. Just as I watched Stephanie fade away, I’ve seen her return. My hair is nearly to the length it was when I first heard the words, “You have cancer.” I’m blonde again. My lashes and brows are full. When I look in the mirror, I don’t have to try so hard to find myself. I see Stephanie immediately. But it’s not just Stephanie that I see now. I see strength and victory. I see power and humility. I see joy and unending hope. I see deeply rooted faith. I see a survivor.

Though you may not see yourself right now, know that you are more than just a visual. You are not weak. You are not ugly. You are strong, and much braver than you can possibly comprehend. I encourage you to look beyond your reflection. Your hair will return and you’ll recognize yourself once more. Though your outside reflects your struggle, it also reflects your survival.

2 Corinthians 4:16-18 (MSG)

“So we’re not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without his unfolding grace. These hard times are small potatoes compared to the coming good times, the lavish celebration prepared for us. There’s far more here than meets the eye. The things we see now are here today, gone tomorrow. But the things we can’t see now will last forever.”

Alive and Pinching Myself

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I still wake up pinching myself. I cannot believe that I am done with treatment yet again. I have four major fights against cancer under my belt now, and I feel like a champion. I cannot begin to express how marvelous it feels to not dread each coming week. I’m alive and I feel like it. There are many times during the course of chemotherapy that I didn’t even feel like I was existing. I knew my blood was pulsing through my veins and that my organs were functioning. I knew that my lungs were breathing in air, and that my mind was cognitive. I knew that I was alive, but it was hard to feel life with poison enveloping every cell of my being.

I’ve made it. I have survived once more. And I’m alive. It’s always incredible to me how quickly my body recognizes the absence of chemotherapy. Though my muscles have atrophied significantly over these last six months of treatment, my insides are rejoicing. My mind is coming out of the dark haze and seeing with clarity. Because chemo is a depressant, choosing joy is a purposeful decision to be made, and now that the toxins are no longer attacking my psyche, I am overflowing with happiness. I’m alive and pinching myself.

As if surviving another season of treatment isn’t enough, the results from my PET/CT scan this week are the proverbial cherry on top. On Monday, rather than going to the hospital for chemo cocktails, I made the trek in order to receive my follow up scan. Though much easier physically, these scans are tremendously more harsh on my mental state. I’ve spoken about scanxiety several times before, and the pressure that it entails is incomparable. My whole body winces at the unavoidable anxiety that follows a scan. The waiting period is always the worst. I am vulnerable and out of control. There is nothing I can do but hope and pray… and practice patience, which God knows I need. My faith is put to the test.

With every scan that comes, God whispers into my spirit, “Do you trust me?” And, as strange as it sounds, I trust Him regardless of the results. I allow myself to play the what-if game for a moment. If results show that the cancer is nowhere to be seen in my body, I trust Him. And even if cancer peeks it’s ugly head out once more, I still trust Jesus. He is faithful, and has proven Himself ten times over in these last three years of my life. I owe it to Him to trust His intentions, for He is always good.

I’ve shared about the process of a scan before. If you follow me on Instagram, this week you got a sneak peek at what it looks like. I shared, “Today I’ll receive another PET/CT scan to confirm that chemo did its job and that my body is free from cancer cells. This is my current view and will be for the next forty-five minutes. I’ve checked in and filled out the same paperwork I have hundreds of times before. My name has been called and I have been escorted into a private waiting room — one all too familiar. My blood has been drawn and I have been injected with radioactive contrast. I’ve ingested the same ‘vanilla’ flavored barium as usual and have chased it down with water. I wait as ‘I’m The Only One’ by Melissa Etheridge is quietly playing over the speakers. I wait for forty-five minutes as the contrast courses through me. And soon I’ll be laying completely still for another twenty minutes as the scanning machine captures vivid pictures of my entire internal body. Later this week I’ll receive a call from my doctor’s office…”

That call came less than twenty hours later. It was Tuesday morning, the day after my PET/CT, and Matt and I were just barely waking up. For some odd reason my phone was turned to vibrate, so I didn’t hear the incoming call. When I looked at my phone, the first thing I saw was the missed call and a voicemail from my doctor. Though I didn’t think it possible, my heart both dropped to the bottom of my stomach in fear and leapt out of my chest in excited anticipation. This voicemail turned out to be one of the very best I have ever heard. As I quietly listened, I began to hear the voices of my doctor and head nurse. Soon I was smiling from ear to ear, and put my phone on speaker so that I could wake Matt up with the great news.

My doctor and nurse were rejoicing over the phone as they shared that my scan was negative and that there were no signs of disease anywhere in my body! I am officially cancer free, and something about this time feels different. I still don’t know God’s plan, and won’t even begin to presume or guess. But my faith is mighty, and I know that He is able to do anything. In fact, my faith and perspective have been strengthened recently as I have come to really understand how infinite His power really is. Our God who can move mountains, part the ocean, and make blind men see also heals the sick. I am declaring that He has healed me. And I am expecting more than I can even fathom for the future.

Psalm 28:7 (MSG)

“Blessed be God— he heard me praying. He proved he’s on my side; I’ve thrown my lot in with him. Now I’m jumping for joy, and shouting and singing my thanks to him.”

Dear Stephanie: A Letter to Myself Before Cancer

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Dear Stephanie of January 2012,

You are both stronger and weaker than you could ever imagine. Life is about to show you that. Though you won’t be sure what she means, take the advice of your friend and “buckle up.” In fact, why don’t you grab the seatbelt next to you and buckle into it as well. You always liked roller coasters, right?

You are young, healthy, vibrant, and full of energy and dreams. You are working hard and thoroughly enjoy your job. You have married the love of your life and are thrilled to come home to him every day. This truly feels like the beginning of an incredible journey, and hand-in-hand you and your husband both feel ready to conquer anything. You’ve found the church you call home, and for once you finally feel like you belong to something far greater than yourself. The friendships that will develop through this church will become family. Trust and embrace them.

You feel ready. Ready for the future. Ready to start pursuing the dreams you and Matt have. Ready to do whatever it takes to achieve your goals. Ready for what God has for you. You think that means a white picket fence and two children. You think that means unending happiness with only minor bumps in the road. You think you know what God wants for you, and though you are certain of His goodness, you don’t know its depth just yet. You feel ready for a reason, but it’s not the reason you think. Stay ready.

You’re really rockin’ that hair. I know how much you love it. Go on with your blonde self — enjoy it. You are in shape and look good. Really good. You don’t believe it, but you are perfectly beautiful as you are. Stop worrying so much about it. Soon you will find that when looks fade, character will remain. Start thinking about your identity.

Your husband adores you. You think you have an understanding of his love and commitment, but you really have no clue yet. You reminisce to your first date, your wedding day, and all of the fun newlywed adventures you have experienced together. It’s been a year and a half, and you both laugh at the words of friends who have married before you: “The first year is the hardest.” You say to each other, “If the first year is the hardest, we’ll be smooth sailing for the rest of our lives because this is easy!” You were right, the first year was the easiest, but it will get harder. The man that stands by your side now will stand by your side through your darkest times. He meant every single word he vowed to you. Cherish him.

You like plans. You like goals. You like lists. You struggle with control. You want things just right. But your version of right isn’t always right. Let your pride take a step back. Though you have perfected the plans of your life story, be ready to erase. God’s plans are far greater than the little ones you have constructed. It’s okay to go with the flow. You’ll need to learn to do that soon. Be open to new things. Surrendering your life and all of the plans you blueprinted is scary, but marvelous.

You have experienced pain and loss, but you don’t fully know grief. It’s bitter and refreshing all at once. It comes swiftly and unexpectedly, but can truly heal if you let it. Though you are emotional at times, soon crying will become second nature. It doesn’t mean that you are weak. In tears, there is strength. Allow yourself to feel. Allow yourself to experience the pain and then work through it. Don’t avoid situations because they make you uncomfortable. Dive in.

The faith you have now will soon become the only thing you can hold onto when your dreams, desires, goals, and plans are radically changed. Your faith, though it seems large now, will have the most impact when it is the size of a mustard seed. You’ve hoped for things before, but the hope that will birth inside you will reach magnitudes you can’t even begin to fathom. God is for you. He is on your side. He goes before you. He will protect, encourage, and supply you. Wrestle with Him. Pursue Him. He has never and will never leave you. When He is quiet, be still.

You have a story. The life you live now will soon change to reveal your purpose. The woman you are now will be pruned in order for a new creation to spring forth. At times you won’t recognize the woman you see in the mirror, but she is still there… stronger than before. Though there will be days and even months of painful struggle, the reward for staying steadfast will overwhelm you. Don’t give up. Keep your eyes focused on what matters most, and everything lackluster will fade away. It’s okay to be weak and to allow God to be your strength. He will overcome.

I write to you from a familiar date. You’re a numbers girl, I trust that you’ll understand the importance. On January 25, 2012, you will be diagnosed with cancer. And three years (almost to the day) later on January 26th, 2015, you will complete your final chemotherapy treatment and will be well on your way to a new journey. Be encouraged. Those three years will have an eternal impact. They will be some of the hardest years of your life, but will develop you in ways no other experience could. Be grateful.

You are brave. You are strong. You are fierce. You are a warrior. You are a fighter. You have the tools you need. You can do this. I believe in you.

With utmost expectations and encouragement,
Stephanie of January 2015

 Proverbs 16:9 (ESV)

“The heart of man plans his way, but the Lord establishes his steps.”

 

Putting a Bandaid Where It Doesn’t Belong

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Life is not meant to be lived passively, but proactively. I need to remember that. We all do. Instead of allowing life to pass by and just happen to me, I need to stake my claim and walk forward refocused in my purpose.

Recently, my journey has been harder than usual. I often feel like I’m only capable of handling a certain level of difficulty. That level has been reached, and I’ve come to the end of my capabilities. Facing an impossible level, I’ve been given a choice and, unfortunately, I chose wrong.

I have been knee-deep in a murky swamp. Mud, muck, and dark waters have enveloped me. I’ve felt slithering snakes swimming past my legs, taunting me and begging for my attention. The mud between my toes has encased my feet, urging me to stay put. Instead of trudging forward, I chose to sit down. Instead of forging a way to get out of the swamp, I stopped in my tracks. I convinced myself that I was taking a break to gather my strength and to rest. But at some point, breaks end. Eventually, you must get up and keep going.

This wasn’t a break. This was me sitting down, giving up, and not wanting to deal with what I was facing. Like a child not wanting to do something, I metaphorically went limp on the ground.

These past two months have sucked me dry — physically, emotionally, and spiritually. Chemotherapy has been increasingly difficult, and good days have become few and far between. I receive the poisonous toxins once a week, therefore plenty of my days are spent on the couch, pretty useless. My nausea is often overpowering and unbearable, sitting at the base of my throat like a volcano waiting to erupt. I’m tired. There are days when I can’t imagine anything better than the comfort of our bed. Exhaustion is exhausting. Not having energy to live life on my terms is an invitation for sadness to overwhelm. Some days, the harder fight is not against cancer, but against the subsequent emotions.

Beyond the daily battle against this disease, I have faced other obstacles. Difficult hurdles and layers of grief to top off this already bumpy journey. My grandfather, whom I lovingly called, “Papa,” passed away. We were very close throughout my life, especially so in these later years as we fought the same fight alongside each other. Never would I have thought I would be fighting cancer with my Papa, but it deepened our relationship in special ways. We understood each other through each surgery, treatment, and side effect. We lifted each other up on rough days. He fought a good battle, and ultimately won the victory. Boy, do I look forward to seeing him again.

Not only did I lose my grandfather, but only a few weeks later, a close friend of mine went to be with Jesus as well. This time, it was unexpected and sudden. The type of tragedy you can never prepare for. It still doesn’t seem real. A dislodged blood clot after surgery… A mere few hours prior, I was giving her a hug, kissing her on the forehead, and wishing her well as she was to head into the operating room. We joked, laughed, and prepared for how life would look like after the procedure. I lent my words of wisdom (having gone through several surgeries before), and let her know she would be fine. The shock still comes in waves. I just can’t believe she’s gone. How I miss her so.

The combination of grief, stress, frustration, exhaustion, and sickness has weighed me down, and I simply crumbled underneath it. I sat down in the mucky swamp and, instead of resting, I merely existed. I went through the motions each day. Chemo every Wednesday. Nausea pills every six hours. Church on Sunday. Grief, like my nausea, at the surface ready to explode. Yet, I couldn’t deal with any of it.

I covered my grief and uncomfortable circumstances with bandaids. I’ve watched too much TV. I’ve eaten horribly. I’ve been snappy with my husband. I’ve introverted. And, as many of you have recognized, I stopped writing. I just couldn’t bear pouring my reflections out to the world, when my thoughts were jumbled, messy, and self-pitying. Writing is cathartic for me. It helps me process, and in turn, heals my soul. Equally as my words encourage you, they often encourage me. There are more times than I can count when I read back through an entry and know God Himself was speaking through me to me. Yet, for several weeks, I avoided it. I sat down in the swamp and went limp.

It wasn’t until I was removed from my circumstances, and was stuck in a car for thirteen hours with my husband, that I pulled the bandaids off… finally facing the wounds that were hidden underneath. We talked and I cried. Releasing what had been burdening me for weeks. And, in true character, my husband gently led me back to The Lord. I am so grateful for an encouraging husband who holds my hand, understanding and grieving with me, and guides my eyes upwards.

The problem with placing a bandaid on a wound that doesn’t need one, is it doesn’t heal. Some wounds need air for a scab to form and the healing process to take place. My wounds needed air… The refreshing air of Jesus. And instead of reaching for Him, I put a bandaid on, covering myself from healing, and went limp. The bandaids paralyzed me and put me in a passive position.

While the grief, sickness, and emotion has been painful, I have learned from it. When life gets hard and uncomfortable, our human reaction is to give up. But have you thought how your circumstances might change if you were proactive in the midst of trudging through your own swamp? We have all faced difficult seasons in our lives. Many can say that, though our circumstances may not have changed, once we became proactive, our perspectives sure did. Instead of convincing ourselves we need a break and sitting down in our muck, stand strong, be proactive, and pull the bandaid off. Allowing God to touch our wounds and heal them is a powerful act. It’s painful, but so worth it.

What swamp are you sitting in? I challenge you to pull your bandaids off, stand up, and allow God to guide you in healing.

Psalm 119:50 (ESV)

“This is my comfort in my affliction, that your promise gives me life.”

 

“Hi Stephanie, This is Peyton Manning.”

peyton

The Sheriff. 18. PFM.

Peyton Freakin’ Manning.

The Denver Broncos quarterback is referred to by many nicknames. However, after Saturday afternoon, I’d primarily refer to him as genuine, kind, and authentic.

There have been many moments of incredible blessing in my fight against cancer. Abundant and overwhelming amounts of gifts, kind words, and support. The platform to meet with others and share my story. Innumerable opportunities for writing and motivating. Open doors I would have not experienced without this disease barging into my life. Though cancer has brought tremendous grief and loss, it’s also brought with it a wave of encouraging gifts and bright rays of hope.

Through my journey, I have been stripped raw of my previous notions about life. Cancer tends to do that — quickly sloughing off areas that don’t really matter. It cuts down to the marrow and brings an awareness of who we should be and how we should respond to those around us. What car we drive, what house we live in, and how much money we make is trivial in the grand scheme of things. Life is about relationships. Life is about compassion towards each other. Life is about finding joy no matter the circumstance. Life is about uncovering hope and sharing it with those around us.

On Saturday, Matt and I spent time with family. Catching up with his dad and grandparents, chatting about my upcoming season of treatment, and sharing laughter as usual. I’m blessed by his family, and from the moment he brought me home to meet them, they welcomed me with open arms. When I was diagnosed nearly three years ago, they wept with us. They rallied around us and have fervently prayed alongside us for my healing. His grandparents are some of the sweetest people I have ever met. His grandfather, a ninety year old World War II veteran, shared his excitement about his upcoming “honor flight” to visit the memorials in Washington DC. Matt’s grandmother told us how she loves her new iPad and enjoys playing Candy Crush and keeping up to date with her grandkids through Facebook.

Soon, we said goodbye and began the trek back home. Barely ten minutes into the drive, my phone began to ring. Immediately, “No Caller ID” appeared on the screen, and I was left wondering who was on the other end. Considering our adventures through medical bills, I tend to assume it’s someone asking for our money. I answered, “Hi, this is Stephanie,” and was shocked at the voice I heard in response.

“Hi Stephanie, this is Peyton Manning.”

The steady southern drawl behind the five-time NFL MVP and Super Bowl champion was saying my name. Peyton Manning was calling me on my cell phone. Believe me, I’m still in shock. In utter amazement, I asked, “Are you for real!?” only to be answered with a polite, “Yes, it’s Peyton.” Peyton… THE Peyton. Manning. Peyton Freakin’ Manning. Oh my word. My Denver Broncos quarterback was talking to me. He went on to explain that my husband had written him a letter sharing my story and that he wanted to personally reach out to to tell me that he was praying for me and cheering me on. We spoke for a while. He asked about my upcoming treatment, sharing well wishes and telling me to continue to fight strong. He was so nice. Yet nice doesn’t fully describe him. Invested. Peyton was invested in my story, and was genuinely interested in knowing how I was doing.

The conversation came to a close, as the team was heading to San Francisco for the upcoming pre-season game against the 49ers. I thanked Mr. Manning for taking time out of his busy schedule to call me. We said goodbye and hung up. Then, I screamed. I stared at my husband wide-eyed, with the largest grin plastered on my face. I could not believe that Matt had written Peyton Manning, and more-so that Peyton Manning had read his letter and personally responded. I cried tears of happiness and disbelief and asked, “Did that really happen?” more times than I can recall.

The man that you see throwing accurately targeted passes to his receivers is more than a great football player. He is a class-act, devoted to more than just the game. Though meticulously focused on the field, he understands with great awareness the impact he has outside the lines of the gridiron. His life displays compassion, and he has always focused on using his platform as a way to bless others. This was no more apparent to me than during our conversation. This man, with arguably the highest profile job in professional sports and a full schedule both on and off the field, took a moment out of his life to reach out to me and share encouragement.

Though a small gesture to some, the lasting impact our conversation will have on my life is unforgettable. Life is about relationships and those around us. No matter his fame and presence in the National Football League, Peyton Manning gets it. He understands that life is found in bringing joy to others. For that, I am grateful.

Thank you, Peyton.

(As a side note, Peyton Manning played a phenomenal game after our conversation, going 12/14 for 102 yards, 1 touchdown, and a rating of 120.8 in just over one quarter of play in a 34-0 Broncos win. That being said, I’ll gladly assume the position of the good luck charm for the Denver Broncos this season.)

Philippians 2:4 (ESV)

“Let each of you look not only to his own interests, but also to the interests of others.”

Don’t Worry, I’m a Professional

Being a professional is a good thing, right?

I’m no longer a novice, and am far beyond proficient. I’m now an expert at chemotherapy. This upcoming season of treatment will be my fourth go around, after all. In fact, pretty soon I’ll be over the hill with above 50 chemo treatments under my belt. I’m choosing to see this as a positive. I’ve got this chemo happy hour pretty well figured out. Not much can be put past me. Nausea, hair loss, exhaustion, pain, soreness, and aching? No biggie. I’m a pro.

Truth be told, I’m not nervous for my next round of treatment. It could be that I’ve done this for nearly three years and it’s become somewhat of a new “normal” to me or that I have complete peace in my journey knowing that God is sovereign over every detail. Upon learning that I would have to endure more chemotherapy as a result of my latest recurrence, many have asked if I am scared or nervous for this next season. I’m neither. At least, not yet.

I better not be. Happy hour starts next week.

Over these last few days, I’ve had several preparatory conversations with my doctors and nurses in both Houston and Denver. We’re all on the same page, and that in itself is comforting. Our plan goes into effect soon—I will be choosing a recliner in the infusion center next week, and will be ingesting my chemo cocktails in no time.

Each season of treatment is unlike the last, therefore, I’ll be receiving a different type of chemotherapy this time around. Though a self-proclaimed expert in all things chemo, I am still unaware of how this specific prescription will affect me. As a patient, we are given the rundown of possible side effects. Everything from low white blood cells and platelets to extreme tiredness. These are things I should expect with this type of chemo. I may or may not lose my hair… We’re praying for the latter, but won’t be too distraught with the former, however, I do love my curls! Though I won’t know how I’ll react until I receive treatment, I will generally feel as I have felt on chemo these past few years. Gross, tired, and sore.

Side effects may be similar, but the actual regimen called for this time is different than my past experiences. I will be receiving chemo once a week for three weeks in a row, with one week off. I will be doing this six times. Essentially, I will only have one week a month for the next six months where I won’t be getting treatment. It sure does seem like a lot. That equals 18 more sessions, but who’s counting? Yikes.

I’m ready for it. Ready to drive to the hospital every week. Ready to flood my body with copious amounts of poisonous toxins. Ready to feel like crap on a daily basis. Ready to fight. Ready. It’s amazing what you’ll do to try and stay alive.

As always, we will need abundant prayer, support, and encouragement. Remember 10 Ways to Help Someone With Cancer? The tips I provided last year are still very applicable to this journey ahead. We will be needing meals for when I’m feeling too tired, weak, or sick…Though Matt can cook a nice grilled cheese sandwich, his expertise does not reside in the kitchen. He does, however, drive to get take-out far better than anyone I’ve seen before. Gift cards to restaurants help as well. We will need endless support and encouragement, and please keep in mind I am not the only one going through this. My husband is the rock behind the scenes; my guardian standing firmly by my side. He needs as much encouragement as I do. We will also need understanding and grace, as our schedules will firmly revolve around how I am feeling each day. With what you’ve shown us in these last few years, we know you will rally beside us just as strong this time. Thank you for that.

Chemotherapy isn’t fun. It’s not something that I would choose to do had it not been crucial to my recovery. Going through yet another season of treatment doesn’t produce butterflies and rainbows. Instead, it’s brutal and exhausting. Chemo sucks. I love it and I hate it. No matter though, I’m a professional. I’ve got the port to prove it.

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Isaiah 41:10 (ESV)

“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”

Photo: Kimberly Mitiska Photography

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