Posts Tagged ‘hair loss’

Wig Wisdom: 10 Tips for Buying and Wearing

One of the first questions I asked after being told I had cancer was if I would lose my hair. I quickly processed the news that I would need a radical hysterectomy, chemotherapy, and radiation, but couldn’t quite swallow the reality that I would lose my hair from treatment. Though I never quite appreciated my locks prior to cancer and would often complain about bad hair days, I now treasure each strand and am a firm believer that bad hair days simply do not exist.

They always say you don’t know what you’ve got until it’s gone and let me tell you, they are right. Over the course of these last five years, I’ve lost my hair five times. I was bald for nearly three years straight as I fought cancer over and over again. I’ve worn hats, scarves, and wigs, and sometimes wouldn’t even bother. Because I had no prior experience with baldness, upon diagnosis, I had no clue what to expect. Not only did I feel unprepared to fight cancer, I felt utterly ill-equipped on how to cope with my hair loss. Where was I to start? What type of wig should I buy? Will it look real? Is it going to itch and make me hot? Should I try to match my hair color or try something new? Short or long? Bangs or no bangs? The growing list of uncertainty was overwhelming.

Chemotherapy induced hair loss is common for patients fighting cancer. Unfortunately, many of us have too little information on how to buy or wear hair pieces. This often leads to sadness, fear, and lowered self-esteem. We become afraid to be in public for fear that people will stare at us. We have nightmares of our wig flying off in a sudden gust of wind. We’re unsure if we should even invest in a wig or just stock up on hats and scarves. I tried it all. My scarf collection grew, and though I never enjoyed wearing hats, I soon bought many. I knew I wanted to feel as normal as possible while battling cancer, and felt that wigs may help my self image. Thus, I began my adventure into wig buying and wearing. I went to multiple wig shops, tried on various styles, colors, and hair types, and soon learned all about the wide open world of wigs. Because many of the popular questions I get asked are in regards to wigs, I’ve put together a comprehensive list of what to know before you buy. Below are my top 10 tips for both buying and wearing.

  1. Quality and Type: First, you’ll want to narrow down if you would like a synthetic or human hair wig. Synthetic wigs are made from pre-set fibers that allow the wig to maintain its style after washing. Waves, curls, and volume are set into the strands and remain throughout the life of the wig. Synthetic wigs are great for women who don’t want the fuss of having to style a hair piece. Most can be worn right out of the box. Though they offer ease, because of their pre-set fibers, they lack versatility. Don’t expect to be able to style your synthetic wig in a variety of ways. Human hair wigs are a more natural alternative and offer more customization than their synthetic counterpart by creating a beautifully natural appearance. Human hair wigs offer high versatility and can be cut, styled, and even colored based on your personal preference. Though the superior option, human hair wigs need to be regularly maintained. Expect to wash and style your human hair wig frequently (as you would your own hair) in order for it to last longer.
  2. Cut, Color, and Style: A benefit to wig wearing is the opportunity to try something new. Many women use this time to choose a wig that looks completely different than their natural hair, while others choose wigs based on their usual style. Hair pieces are made in a variety of lengths, and colors, so the possibilities are endless. From deep brunettes to vibrant reds and soft blondes, highlights and lowlights, and even natural grays, you are guaranteed to find the shade your looking for. Maybe you’ve always wondered if blondes really have more fun, now’s your chance to find out! Maybe you’ve been too nervous to cut your long hair into a short bob, or vice versa and have wanted to have long, cascading locks… Try something new! In addition, keep in mind skin tones can often change during treatment, tending to become more pale. Choosing a wig with warmer tones may help you look and feel brighter. If you prefer to find a perfect match between your natural hair and a wig, I suggest wig shopping before you lose your hair. This will allow you to do side by side comparisons and increase your chances of getting a more accurate match. Finally, don’t feel limited to buying one wig. Some women choose two to three wigs in order to change their style periodically.
  3. Customization: While synthetic wigs offer little to no customization, human hair wigs are extremely versatile and can be cut, colored, and styled to your preference. When purchasing your wig, ask yourself if you like it the way it is. If it’s synthetic, your answer should be yes. If it’s human hair, you will have the ability to adjust and customize. If you choose a human hair wig and would like to customize it to fit your needs, make sure you verify that your wig of choice allows for changes. Your wig retailer will be able to give you details about the specific hair type your wig has been made with. Always check with your wig retailer or manufacturer before customizing the color. Some human hair wigs are pre-dyed with low grade hair color that is not meant to be changed, while others are high quality and allow highlights or lowlights to be added. Most importantly, choose a wig with your preferred hair color. Adjusting the overall color from brunette to blonde or blonde to red may not be realistic. Because of their quality, human hair wigs are even more beautiful when trimmed to fit your face shape. Find a professional stylist who has wig styling experience, and ask them to trim your wig for a more tailored and personalized look.
  4. Accessorize: Where will you be storing your wig? Will you be traveling with it? Where will you style your wig? Both human hair and synthetic wigs require specific accessories. First, your wig will need a place to rest when you aren’t wearing it. This is called a wig stand. There are many different types of stands, from mannequin busts to metal tripods. Some are free standing, while others clasp to the end of a counter or tabletop. Mannequin and foam heads both help the wig to maintain its form in times when you aren’t wearing it. If you choose to purchase a head stand for your wig, you’ll need t-pins to hold it in place on the stand. If you are traveling with your wig, mannequin heads can oftentimes be too bulky to bring along, while metal tripods are great travel companions. Metal tripods don’t require t-pins, but often interfere with the set style of your wig by creating unwanted creases in your wig hair. They are perfect for travel but may not be your best choice for everyday use. In addition to a wig stand and t-pins, you will also need to purchase wig caps. These are breathable, thin caps that you place on your bare head prior to putting your wig on. These not only protect your scalp from the wefts of the wig, but create a grip for your wig to hold onto. Wig caps are made from a variety of materials, but a stocking cap is very popular because it’s thin and lightweight.
  5. Maintenance: Like all hair, wigs need upkeep. As previously mentioned, synthetic wigs require much less maintenance than human hair, but you will still need to take special care of each. Make sure you know what type of hair your wig is made from in order to know what products you will need to use. There are wig-specific shampoos and conditioners that will not only properly clean your wig hair, but also extend the life of your hair pieces. Do not use your typical cleansers and styling products on your wigs. This can weaken the bonds of the wig weft and may damage the hair itself. In addition, you will need a brush suitable for wigs rather than your regular brush and comb. Some women opt to take their wig to a professional stylist like they would their own hair for washing and styling. If you choose to maintain your wig yourself, be sure to know how to wash, brush, and style your wig beforehand.
  6. Try before you buy. Wigs are not one size fits all! Some have tighter wefts for smaller heads, while others have wider wefts for large heads. Most have adjustable straps woven into the weft for precise fit, but because of the grand variety of wig manufacturers, types, and styles, you will need to try before you buy. For instance, what may work for me may not be as flattering on you. Lace fronts look natural on some, but on others they never lay flat. Some wefts are itchy, while others are smooth and comfortable. Like you would a pair of shoes, try on wigs until you find your perfect match. A wig should feel comfortable on your head. Not too tight, but not loose enough to fall off if you shake your head from side to side. What may look like a long style on a wig stand may look shorter when worn on a human head. Never purchase a wig if you aren’t certain it’s going to fit correctly and feel comfortable.
  7. Retailers: A quick web search will bring up several sites for wig retailers. By following the above rule of “try before you buy,” you should find a local retailer in order to see, feel, and try on wigs before purchasing one. Most major cities have wig shops, just be sure to call ahead to learn if they carry both human hair and synthetic wigs. Quality wig shops will have private fitting rooms where you can try on a variety of styles discreetly. They should also have highly knowledgeable employees who are willing to help you with any questions or concerns you may have. Once you have tried on various wigs and have narrowed down what type you prefer, you can take note of the brand, style number, and color and possibly order for cheaper online. However, if you fall in love with a wig in store, it may not be worth the risk of hunting online for an identical one. Websites such as wigs.com and hairuwear.com are great online resources.
  8. Cost: The price difference between human hair and synthetic can be tremendous. When it comes to wigs, you truly get what you pay for. Higher quality wigs will cost more than their lower quality counterparts. Because of it’s desirable versatility and beautifully natural look, human hair wigs tend to be vastly more expensive than synthetic wigs. Human hair can cost between $700-$2500, depending on the length of the wig. They will, however, last more than a year with regular maintenance. Synthetic wigs can cost between $30-$500, but will only last up to six months. There are many factors to consider when purchasing a wig, including how long your chemotherapy will last and how long you are expecting to be without hair. If your treatment extends beyond six months, a human hair wig may be a better investment, whereas if you will only experience hair loss for a few months, a synthetic wig might be the preferred choice. Regardless of whether you choose human hair or synthetic, know that purchasing a wig is always an investment. This is something you will be wearing several times a week, if not daily. *Insider tip: Call your insurance provider and ask if they cover the cost of a “cranial prosthesis.” In some cases, insurance companies will offer full or partial reimbursement for the cost of a wig.
  9. Have fun! Shopping for and purchasing a wig can be overwhelming, but it can still be an enjoyable experience. If you’re like me, you’ll encounter a wide range of emotions while searching for the right wig. While I did cry grieving the loss of my treasured locks, I also laughed throughout the shopping process. Allow yourself to be silly and light-hearted. Be adventurous. Try on different styles, lengths, and colors. Step out of your comfort zone. A cancer diagnosis is a heavy burden to carry, and shopping for a wig can be the cherry on your proverbial mud pie, but it doesn’t have to be miserable. Invite your close girlfriends and/or family members and make a day out of it. Start by scheduling a manicure and pedicure, then grab lunch and cocktails before heading to the wig shop. Laughter can be the best cure for an otherwise somber occasion.
  10. My personal favorites: I’ve tested and tried many wigs and have found favorites along the way. I know what works best for me and is most flattering and comfortable. A good wig should be so well camouflaged that everyone assumes it’s your natural hair and, through trial and error, I’ve found just that. Please note that these are not sponsored products, they are simply my personal must-haves. My favorite wig manufacturer is Raquel Welch. I own two — One blonde and one brunette. Both shoulder length. She produces high quality, natural looking human hair and synthetic wigs. They tend to be more costly, but are worth every penny. You can find Raquel Welch wigs at hairuwear.com. In addition, as far as accessories go, I prefer a mannequin head and clamp stand for everyday storing and styling use, and a metal tripod for travel. I’ve also found that stocking caps are more comfortable and lightweight than cotton ones. Remember, what worked for me may not work for you.

image1-2

Proverbs 3:15 (ESV)

“She is more precious than jewels, and nothing you desire can compare with her.”

Seeing Stephanie: Looking In The Mirror After Cancer

0208

Have you ever looked in the mirror and cried because of what you saw? When I first lost my hair, I would look at my reflection with tears streaming down my face. I would try to utter a word in an attempt to recognize my voice and confirm my identity. I couldn’t believe that it was me, Stephanie, in the mirror. It didn’t look like me. It barely resembled me. But it was still me. For months I saw a weak, sick, and (dare I say) unattractive person looking back. I looked neither feminine nor masculine. I was balder than bald with not more than a few hairs gracing my body. My face was swollen and discolored. I was embarrassed of my appearance. However, after receiving my pro card for fighting cancer not once nor twice, but four times, my perspective of my reflection changed. Rather than seeing a weak girl in the mirror, I saw a strong one. Instead of seeing sickness, I saw survival. I went from trying to hide my bald to embracing it and wearing it as a badge of honor. Bald became beautiful to me in more ways than one, yet I still didn’t quite see myself.

It took months and maybe years to fully embrace my new look. There were days where my reflection wouldn’t affect me at all, and others where I avoided the mirror at all costs for fear of who was looking back. As a woman, my entire life had revolved around beauty. Society told me that I had to wear a certain size, look a certain way, and have gorgeous hair to boot. Not only did my body physically change through treatment, my hair soon began falling from my head, and I felt far from beautiful. I grieved the appearance of who I once was. I felt that I lost her. I tried wigs in an attempt to bring her back, yet it was never the same. I couldn’t find Stephanie. She was no longer there… Or so I thought.

There came a moment when I realized Stephanie wasn’t a look. Stephanie was a person. She was a woman of character and integrity. She had a personality. She was more than a visual. This revelation allowed me to cope with my bald head. I began looking beyond the bald, straight into my eyes. I could still see a faint whisper of Stephanie through the glimmer of blue into the windows of my soul.

Though I accepted my new look, I longed for the day when I would easily find myself in the mirror once again. I impatiently awaited her arrival with each passing treatment. I wanted my hair, brows, and lashes back. I wanted my face to return to normal. Not only was I fighting for my life, I was (silly as it may sound) fighting for my reflection. Cancer has a deep and profound effect on one’s identity. I know I’m not alone when I express my grief over the transition of my appearance. Losing my hair was an outward representation of the war being waged within my body. It was a visual reminder of my mortality. I prayed not only to survive cancer, but also to not die without hair.

After four treacherous, exhausting, and desperate battles against this disease, I have come out on the other side. I dare not say that I have won, for the implications that arise when those who pass away from cancer are far too hurtful. Let me add, those who have died from this disease did not lose. Too often we hear that someone has “lost” their fight against cancer. What a deeply wounding word to place over someone’s life (and death). Please stop saying it. For reasons I may never fully understand, I have survived this disease thus far. I am now fifteen months cancer-free, and my hair has had nineteen months to grow. It’s been emotional seeing Stephanie return to my reflection. Glorious. Sweet. Incredible. Breathtaking. Emotional. As they did when I didn’t recognize myself in the mirror, tears appear on my face again. Not for the loss of something, but for the gain of something greater.

Hindsight is always 20/20. In the midst of our struggles it is difficult to see the entire picture. Due to circumstance, our blinders prohibit us from having a 360 degree view of our life. Not until we walk out of the rubble do we have the opportunity to reflect on the battle. I’ve had time, as each scan returns clear, to see how far I’ve come. Just as I watched Stephanie fade away, I’ve seen her return. My hair is nearly to the length it was when I first heard the words, “You have cancer.” I’m blonde again. My lashes and brows are full. When I look in the mirror, I don’t have to try so hard to find myself. I see Stephanie immediately. But it’s not just Stephanie that I see now. I see strength and victory. I see power and humility. I see joy and unending hope. I see deeply rooted faith. I see a survivor.

Though you may not see yourself right now, know that you are more than just a visual. You are not weak. You are not ugly. You are strong, and much braver than you can possibly comprehend. I encourage you to look beyond your reflection. Your hair will return and you’ll recognize yourself once more. Though your outside reflects your struggle, it also reflects your survival.

2 Corinthians 4:16-18 (MSG)

“So we’re not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without his unfolding grace. These hard times are small potatoes compared to the coming good times, the lavish celebration prepared for us. There’s far more here than meets the eye. The things we see now are here today, gone tomorrow. But the things we can’t see now will last forever.”

Badge of Honor

_MG_8052Losing hair in an already difficult situation is like rubbing salt in an open wound. As if struggling to survive each day through treatments, medications, and poisonous elixirs isn’t enough, going through it bald is the proverbial cherry on top.

_MG_8040When I first lost my hair, I was unsure about venturing out into the public without something covering my smooth, hairless scalp. I remember the first time I stepped out of the house sporting my new look. As freeing as it felt, I also noticed the amount of unwanted stares I began to receive. The questions, curiosities, and expressions of pity in the eyes of strangers were tangible. I felt uncomfortable and embarrassed, but most of all, I was vulnerable. At times I wanted to boldly announce, “I have cancer, alright? Stop staring at me!”

_MG_8089I’ve been baldalicious for the greater part of two years, and have now learned to view it differently than I did in the beginning. My perspective has changed and a pride has emerged in the once desolate space of vulnerability. I am proud to be bald because being bald means I am a survivor. Being bald means I am still here. Still fighting. Still alive! Instead of viewing myself as a patient, I view myself as a strong warrior. Now, when out in public without a wig, I walk with my head high. I have nothing to be embarrassed about. Nothing to hide.

_MG_9187One month after my final chemotherapy treatment, I developed a longing to document my beautiful baldness. As illustrated as my journey has been, there was one thing missing — a gallery highlighting my bald head. I wanted my badge of honor on display, in a way that highlighted the fierce survivorship that I so often feel.

_MG_8133As usual, God’s timing is always perfect; Recently I was invited to be the subject in a photo shoot. After discussing my vision for the session, Kimberly met my husband and I at a park and we got to work. I was inspired to showcase the beauty in baldness, and brought along a headpiece that I put together. This photo shoot was such a special, intimate, and celebratory moment in time. Kimberly is a phenomenal photographer, warm and friendly face, and develops an atmosphere of comfort that is so needed in a shoot like this one. What she produced stunned me. She captured my vision to a “t,” and I will forever be grateful to have visual representations of the beauty in my baldness. I hope you enjoy them as much as I do.

_MG_9208Bald should be celebrated, not hidden away in embarrassment. If you are bald from the effects of your courageous fight through cancer, embrace it! It is your badge of honor. You are beautiful! After all, we are survivors … our bald heads say so.

_MG_8101

Isaiah 12:5 (MSG)

“Sing praise-songs to God. He’s done it all! Let the whole earth know what he’s done!”

PHOTO CREDIT: KIMBERLY MITISKA PHOTOGRAPHY

 

Bald is Beautiful: The Message That Got One Young Girl Banned From School

(As appeared in The Huffington Post on 3/26/2014)

Yesterday, I came across an article. It’s a story that gripped me and had me feeling both triumphantly exuberant and downright disappointed. This story is about a little girl who has lost her hair in her ongoing fight against cancer, her friend who decided to stand beside her, and a school who punished them for it. The school chose to send the friend home, because her shaved head violated school dress code policy.

Delaney Clements is a strong 11-year-old girl fighting neuroblastoma, a childhood cancer that develops in nerve cells. Kamryn Renfro is her 9-year-old friend who clearly has a heart of gold and more character than most at her age. Due to her chemotherapy treatments, Delaney has lost her hair. She is baldalicious and exudes such joy with her smile. Recently, Kamryn chose to shave her head as a way to stand by her friend in support. As a way to offer encouragement and to let Delaney know she was not alone. Kamryn made the decision to support her friend, against all odds and no matter the sacrifice.

This act of bravery from such a young girl is extraordinary. How many of us can say that we would do the same?

What happened next left me feeling disappointed and shocked. The school felt that Kamryn’s act of kindness, friendship, and support went against their dress code policy. They informed Kamryn’s family that she would not be allowed to attend school until her hair grew back, or until she arrived wearing a wig. Apparently, her bald head distracted other students. However, was it a negative distraction? I don’t think so. If anything, their fellow peers were given a rare opportunity to see what love really is. This act of solidarity could have been used as a teaching moment. A lesson that could not be explained with flash cards or times tables.

Our world needs to be distracted more often. Our eyes need to be taken away from the meaningless and be redirected to the meaningful. Sometimes lessons cannot be taught through a textbook.

The media has shared this story over and over again, yet the core message seems to get muddled. The debate of whether or not hair should matter in school should not be the focus. This message is not about a girl with a shaved head. This message is about what one girl did for her friend. In an interview, Kamryn stated, “It felt like the right thing to do.” And Delaney responded by saying, “It made me feel very special and that I’m not alone.”

Having lost my hair several times over from the slew of cancer treatments I’ve received over the last two years, I understand what it feels like to be bald. It can be isolating and scary. Many don’t realize the amount of value we place on our hair until we no longer have it. Being bald has often left me feeling vulnerable and different. Being bald is a physical reminder of the battle for survival. I am nearly 20 years older than Delaney, and can’t even fathom what she has had to go through at such a young age.

By punishing Kamryn for her act of kindness, this school has sent a large message. While I understand the importance of rules and regulations in schools, the administration carelessly looked over the benefits of this situation, and reacted improperly. Children should not be punished for doing the right thing. We should instill values into our youth, so that when they grow older, they will treat others with compassion and care. Do we want our children to remember moments like this as an example of what is not allowed, or rather an example of what it means to love? Acts of kindness should not be rebuked.

What Kamryn did for Delaney should not be punished. What she did should be praised. She responded to an urging of compassion in her heart by extending support to another. She stepped out in courage and bravery to do what not many would. She symbolically held her friend’s hand and let her know she was not alone. And I applaud her.

Thank you Kamryn for rallying by your friend and showing her support and encouragement. Thank you for showing her that she is not alone and doesn’t have to be the only one who looks different. Thank you for your courageous spirit and your brave response.

Thank you, Delaney, for your strength and courage. Thank you for showing the world that bald is beautiful. Thank you for inspiring those of us who are fellow fighters and survivors. Thank you for your contagious smile and bravery.

Kamryn and Delaney have defined what courage, friendship, and bravery really mean. Today, I stand with Delaney and Kamryn, and urge you to do the same.

Bald is beautiful.

Update: After all the media attention on the story, the school has since reversed its decision.

Romans 15:1-2

Those of us who are strong and able in the faith need to step in and lend a hand to those who falter, and not just do what is most convenient for us. Strength is for service, not status. Each one of us needs to look after the good of the people around us, asking ourselves, “How can I help?”

BaldIsBeautiful

Hair Hath No Fury

There comes a moment in every cancer survivors life when we realize our hair has returned. My moment was this morning.

After answering emails, continuing the laundry, and catching up on Real Housewives (a guilty pleasure … forgive me), I stepped into the shower. Over the course of these past two years, there are more times than I can recall when I’ve been without hair, and a few fleeting occasions when my locks have made a debut. This past season has been spent as hairless as a naked mole rat. Therefore, showers are quick. It never ceases to amaze my husband how speedily I can take a shower. You’d think we were on water rations or something.

“Are you sure you’re done? That was fast!”
“Yes, I’m sure. I have no hair. Remember? All I have to do is wash my body.”

And it’s the truth. I can get in and out of a shower within 5 minutes. I have no legs to shave, no hair to shampoo and condition. My sole duty is to get clean. I’d be lying to say I didn’t enjoy not having to time my morning ritual around how long my shower will take. Oh, the benefits of being follicularly challenged!

As I stepped out of the shower, dried off, and stepped into my wardrobe for the day, I noticed a shadow under my arms. It caused me great pause, as I was unsure what was lurking underneath my biceps. Lifting my hand to the sky, I peered at my underarm. What did I spy with my little eye? Hair! The softest hint had sprouted from an area that had been naked for so long. My first thought was, “Wow. It’s back. I’m officially done with treatment. Now I need to brush up on my shaving skills!”

Hair is a silly little thing we often take for granted. Women are constantly irritated with their manes — fussing, fixing and complaining that it’s not long enough, not short enough, not curly enough, or not straight enough. We buy the latest and greatest products to manipulate it to do things only God Himself could accomplish. We specifically tell our stylists we only want our dead-ends trimmed, and no length to be removed. We try new styles, new cuts, and experiment with how much volume we can achieve. We wax our bodies from head to toe — plucking, primping, and priming our skin to be as smooth as possible. No matter what woman I talk to, we all have a never-ending love-hate relationship with our tresses.

Every time I’ve lost my hair has been different. My first season through treatment two years ago took everything but my eyebrows and eyelashes. My second season, I lost nearly everything right away, but still managed to have two spots on my scalp that maintained about twenty hairs each. As aforementioned, this season I remind myself of a naked mole rat. Bald, pale, and if not for my hot flashes, cold. Because of the changing of each season, I’m never quite sure what to expect my locks to do. Will they all grow back in at the same time? Will my hair be thicker and more luxurious? Will its color and texture change?

The hair on my head has slowly but surely begun to make its debut. About three weeks ago, I noticed a little garden growing up there. Tiny sprouts had begun to make their voyage above the surface, and I was elated. Hair continues to be a reminder that I am no longer in treatment, and that brings me a happiness that I can’t even begin to describe. The second I spot newly established tresses, I make certain that I shampoo and condition it every single day. It’s hair. No matter that it’s one tenth of an inch long, it deserves to be treated as though it reaches my shoulders. I can officially say my showers have expanded from around five minutes to nearly seven.

After discovering what my underarms had been hiding from me, I began to hunt for more. This hair hunting expedition had me laughing to myself, alone in my bathroom. The joy that came from finding more and more pooled up in me, until it overwhelmed my thoughts with the acknowledgement, that I, once again am cancer-free. I looked closely at my face and noticed itty bitty strands making an appearance at my brow line. My lashes have even joined the party and are tap dancing across the edges of my eyelids. Soon, I was touching my legs, inspecting every square inch, gleefully observing hundreds of hairs revealing themselves to me.

I officially have hair again. It’s not much, but it’s here. It’s back. And it has returned with a vengeance. I remember the first time my hair reappeared. My poor, poor legs. It was as if I was a newly pubescent teenager, all over again. Nicks and scratches up and down each leg, and quite a few bandaids to mask my amateur attempt at shaving. I’m excited to brush up on my shaving skills once again, and pretty soon, I’ll go from novice to professional. I’m praying this hair is here to stay, and that it will forever take the place of the one who tried to steal it away.

I suppose it’s time to stock up on razors. I anticipate my shower to be much longer tomorrow, as I’ve got some shaving to do. For today, though, I will enjoy these beautiful reminders that I am alive and cancer-free.

6.5 Weeks From Last Chemotherapy (3/14)

6.5 weeks from last chemotherapy (3/14)

 Isaiah 43:18-21 (MSG)

“Forget about what’s happened; don’t keep going over old history. Be alert, be present. I’m about to do something brand-new. It’s bursting out! Don’t you see it? There it is! I’m making a road through the desert, rivers in the badlands.”

Not So Fast

1

(Guest post by Matt)

Stephanie and I have spent a few days in the hospital, and she seems to have been progressing better than she has after previous surgeries. When they rolled her out of the post-op area, she was already sipping water. In prior surgeries, she wasn’t even allowed to touch but a few ice chips for about a day afterwards. Aside from a furious bout with itchiness last night (which we think was brought on by the hospital bedsheets, soon replaced by soft sheets from home), Stephanie has been able to do everything they want her to in order to go home.

But, as we have learned on multiple occasions during this journey, life can be unpredictable. I noted in the last post that they had to check the removed ovary for microscopic traces of the cancer. Well, the pathology report came back today and MJ gave us the news: there were microscopic cancer cells in the cystic walls of Stephanie’s ovary, nothing that could be seen with the human eye. That’s the thing with this or any other type of cancer. There’s an obvious battle against tumors and what shows up on scans, but there is also the microscopic battle.

So, there will be further treatment.

Stephanie will once again have to undergo chemotherapy treatments after all. She’ll start in a couple weeks after she heals up from her hospital stay. The good news is that these cells were found in the ovary that was taken out. There wasn’t a tumor, and there wasn’t any spreading to other areas of her body. So this chemo season will be an “insurance policy” to fight the microscopic battle. MJ is confident that it’s nowhere else and if there are still cancerous cells, the chemotherapy will prove effective against them. And, tomorrow morning, Stephanie is getting a PET scan, not a CT scan. That is good news.

In hindsight, we were a little spoiled with the immediate post-surgery news that no cancer was seen. Just because it wasn’t seen doesn’t mean that it still wasn’t present (obviously). It’s so small that the doctor who sees cancer every day couldn’t even see it. But we know that God is still good. He has orchestrated this whole story. Nothing about this is a surprise to Him. He is obviously still working in this story to bring glory to Him. Yes, it’s a bummer that Stephanie will lose her hair again and have to get chemo again. But, this is what we were planning before we even got to the hospital on Monday. We were prepared for another season of treatment and we still are.

Prayer-wise, we would appreciate prayers for emotional strength and endurance for the season ahead. Imagine the amount of stress and anxiety that is endured when you spend months and months growing your hair out just to find out you’re going to lose it again. This is difficult (especially for a woman). Just like everyone else, we have been expecting to be able to plan out our lives a little bit. Some people get further along than others before God reveals HIS plan for their lives. We are experiencing this in the time when we would otherwise be thinking about buying our first house and starting a family. Having to put those things “on hold” has been difficult for both of us, so prayers for understanding God’s will for our lives and being able to handle the “holding” gracefully would be especially appreciated. Also, very short-term, I am bouncing between home and the hospital not only to care for our pups, but it is moving week. So, we also request prayers for a smooth move. Big props to the fellas who will be helping us out this weekend with this task, it means more than you know.

We are praying that the “third time’s a charm” with this treatment. We’re keeping positive attitudes and we know that how people handle what comes their way reveals their true character. Thank you for praying with us and standing beside us.

Ecclesiastes 4:9-12 (MSG)

“It’s better to have a partner than go it alone. Share the work, share the wealth. And if one falls down, the other helps, but if there’s no one to help, tough! Two in a bed warm each other. Alone, you shiver all night. By yourself you’re unprotected. With a friend you can face the worst. Can you round up a third? A three-stranded rope isn’t easily snapped.”

Our Plan, His Will

These past few days have been entirely orchestrated by God, of that I am sure.

Tuesday night, our church had it’s monthly women’s event, and I was asked to be a small group leader for the evening. One of my dear friends shared her testimony with all of us, and her message was enriched with His faithfulness. In fact, God’s faithfulness was the theme of the night. I am convinced that both the theme and it’s timing were orchestrated with enormous purpose.

Most of us say that He is faithful. We worship Him with that word. We pray for that characteristic to shine in our lives. But how many of us really know that it is true? God’s faithfulness is not measured by how many prayers are answered. He remains faithful even when our plans aren’t in alignment with His.

As I led my group into discussion, I was given questions to pose to the ladies. Here are a few that stood out to me, and have meaning especially now:

  • “Has there been a time where God has made something beautiful out of your hurt or pain?”
  • “How is our story part of God’s bigger story? Share a time when it was hard for you to see at first, but in the end you realized that God was doing something for a reason that you couldn’t see at the time.”
  • “Why is it sometimes hard to surrender to God’s plan in our lives?”

Notice that not one of these questions mentions an ease to or fulfillment of our plans. Many times God sees our plans and wants something bigger for us. I’m sure He looks at our life goals, plans, and desires and thinks, “That’s it? That’s all you want? My will is far greater that that.”

My follow-up CT scan was on Monday. Our women’s event was Tuesday. And I received the scan results on Wednesday. In the moment, I wanted the results immediately. Why couldn’t I receive them within seven hours like I did last time? I didn’t understand why. But now I do. Tuesday was God’s time to speak to me. To remind me of His faithfulness, regardless of the circumstance. It was His moment to encourage and empower me, and to remind me of His steadfast love. His timing was perfect.

I received the call yesterday morning at 7:03 am. Upon answering the phone, I heard my doctor’s voice. I immediately knew. A tumor had grown near my remaining ovary on the right side of my abdomen. It’s a little smaller than two inches. The cancer has returned for a third time. After listening to the medical details and ensuing plan of action, the conversation ended. My husband slid to the ground with his face in his hands, and began to cry. Tears began to fall from my eyes, as well. Instead of asking “Why?” I uttered, “I don’t understand. What plans do You have for me Lord?” I refuse to question His intentions, but can’t help questioning His plan. The tears of disappointment quickly turned into tears of sadness that I would, yet again, lose my hair. I ran my hands through my thick curls, and continued to express grief over the future loss of my locks. I hate losing my hair. It continues to be the most difficult part of this journey.

From the moment I processed this news, a calm confidence has filled my spirit. Where fear, doubt, and worry could hide, confidence has held residence instead. Large Cell Neuroendocrine cancer is extremely aggressive and, more often than not, fatal. However, this cancer is behaving unusual in my body. Unusually good. Sounds oxymoronic considering it’s return, however, it’s seemingly losing it’s power inside of me. Typically, this disease grows out of control and spreads quickly. Because both my hormonal and nervous system (Neuroendocrine) are under attack, this cancer has no bounds to where it can travel. In fact, in many cases, it heads to the lungs and brain rapidly. Yet, for some reason, it is remaining very localized in my pelvic region. It’s attaching itself to surgically removable organs. It is nowhere else in my body, and is no longer growing out of control. The tumor this time is significantly smaller than the second softball-sized tumor that developed within three months. I have been out of treatment for nearly six months, and was nearing the one year mark for being cancer free. All of these facts are good. They give me great confidence that once we remove this last ovary, the cancer will see nowhere else to grow and will cease residency in my body. I’m not dying from cancer. God has bigger things in store.

On October 6th, Matt and I will be running our very first 5k. We have been training for nearly eight weeks, and have put a lot of sweaty effort into our goal. This race immediately flashed in front of my eyes upon hearing the news that I would need surgery and chemotherapy all over again. “I WILL run this race. We’ll postpone surgery if we have to, but we ARE running this race.” Matt was adamant that I was delusional, but agreed to speak with my doctor. Explaining that this accomplishment would mean so much, I was insistent that cancer not take it away from me. Thankfully my doctor agreed, and smiling, she told us to run the 5k. Thank you, Jesus! Postponing surgery a few more days than expected should not have an impact on my health. If at any time between now and surgery, we feel the need to move forward with the procedure earlier, we can and will. However, my hope and prayer is that my pain will remain at a minimum and that the tumor will neither grow nor spread in this time. Our race is in ten days. Surgery is scheduled in eleven days, on October the 7th.

Through all of this, God remains faithful. Our plans and His are not in alignment, yet I know that His will for my life is far greater than I can imagine. For that reason, I continue to trust in His healing power, and know that He’s got this all figured out.

Psalm 138:8 (MSG)

“When I walk into the thick of trouble, keep me alive in the angry turmoil. With one hand strike my foes, with your other hand save me. Finish what you started in me, God. Your love is eternal—don’t quit on me now.”

 

 

Faithful Friends and The First Season

Alongside us on this crazy roller coaster through cancer, two of our dearest friends have been planted. They have joined us at appointments, surgeries, chemo cocktails, and numerous cry sessions. They have held our hands as we have ventured into the unknown, and have triumphed with us in the victories. We have worshiped together, prayed for one another, and celebrated several occasions. God brought this passionate, genuine, selfless couple into our lives at the very beginning of this battle, and we can’t imagine having forged our way through it without them standing firm and rallying beside us.

He is a photographer and life-journalist by hobby. He resembles Jesus not only in his physical appearance, but also in his character. Selfless, compassionate, humble, generous, loving, and prayerful. His laugh is contagious and you’d be lucky to catch it. He is a gentleman. A leader. A father. A Christ-like friend. A true blessing.

She is a dancer. Hip-hop, ballet, contemporary, and jazz. A real-life ballerina. She has a heart of pure gold. She is a friend to hold dear for a lifetime. She speaks encouragement, life, and wisdom. Her gentleness, selflessness, and caring demeanor uplifts and offers strength. She is a mother. A hospitable host. A faithful friend. A prayer warrior. A true blessing.

These two have offered shoulders to cry on, words of encouragement, and a multitude of cries to Jesus upon my behalf for healing. They have documented our journey and brought life to a sometimes dark situation. Through photographs, videos, and sound recordings, they tell our story. They have blessed us more than they could possibly know. Today, we share a taste of what they have captured since diagnosis.

Get your tissues ready. If this video doesn’t move you in some way, you might want to check your pulse. This montage captures a glimpse into this battle. It begins at diagnosis in January of 2012, and ends in August of 2012 on the last day of my first season through treatment. At that time, we thought I beat it entirely. Little did we know, we had another year in the trenches. Through hair loss, weight gain, and several firsts… enjoy.

Stephanie Madsen | Cancer Survivor from Mark Nava on Vimeo.

Proverbs 18:24 (MSG)

“Friends come and friends go, but a true friend sticks by you like family.”

No Hair, Don’t Care

Sometimes, as a cancer patient, you want to blend in with the crowd. Blend in with those around you who have hair. Because, after all, being bald attracts attention and unwanted stares. Being bald equates sickness. And no matter how sick I feel, I don’t always want to look it. Sometimes, it’s hard to feel like a woman when the features that amplify your femininity fade away.

No makeup. Little hair.

No makeup. Little hair. (May 2013)

After being diagnosed with cancer in January of 2012 and learning I would lose all of my hair, I was devastated. I had just reached the point where I was obsessed with my locks, so facing the reality that they would be gone in a matter of weeks was calamitous. That was 14 months ago, and since then, I have lost my hair a few more times. But, never once had I grieved my eyebrows or eyelashes. In my second season of treatment, my hair loss became more of an inconvenience rather than devastation. I had gotten pretty used to it. However, this time around, chemo decided to take a little more hair with it. This time, I lost all of my locks… as usual, the new curls on my head and the hair on my legs and arms. But, this season, even my eyebrows and eyelashes disappeared. Everything. The only hairs I hadn’t been used to saying goodbye to were my brows and lashes, and boy did I realize what an adjustment that would be. I had never understood how much I had taken those short little hairs for granted.

What a difference brows and lashes make! (May 2013)

What a difference brows and lashes make! (May 2013)

As a woman, I like to feel beautiful. I like being confident in the way I appear to the world. I had always thought if I were to lose my lashes and brows that I would look like an alien. Or even a hairless rat. Or maybe a hairless rat-like alien. Regardless, I had thought that if my brows and lashes were to fade away, my beauty would soon then follow. After all, I had never had to draw my brows on, and only wore false lashes on few occasions. What was I to do?

I have an aversion to having all eyes on me. I don’t like all the attention. And, I don’t like being the sick girl. The cancer patient. Because of this, I’ve become somewhat of a chameleon. Not many people have been able to see me without my “mask” on. And frankly, because I appear to be healthy, it’s hard for others to see the face of sickness. When I’m made-up, cancer doesn’t shine through. And while that’s the point, it’s necessary to see what the “before” looks like.

Many women share that they don’t feel femininely beautiful after hair loss. I get that. I feel that way, too. But there is hope. And thank the Lord for makeup! Gifted with cosmetic creativity, I have been able to gather my tools and tricks and go to work on the canvas of my face. I am here to testify that as a woman diagnosed with cancer or for those suffering hair loss for other reasons, you can still be beautiful! Losing your hair does not mean you have to look vastly different from your prior furry self. It’ll take effort and creativity, but it is possible.

Makeup complete and hair on! (May 2013)

Makeup complete and hair on! (May 2013)

Cancer tried to take away a lot. And even though it has tried to strip me of my appearance, I will not let it. No hair, don’t care. I’m beautiful, regardless.

And so are you.

Isaiah 40:8 (ESV)

“The grass withers, the flower fades, but the word of our God will stand forever.”

 

Man-on-Pause

Man-on-pause is happening in our household. Hot flashes, night sweats, irritability. Yes, man-on-pause is definitely here. Of course, I’m referring to the dreaded menopause, but my husband renamed it for obvious reasons. Never did I imagine I would be going through menopause at 26 years old. In fact, I didn’t even give this hormonal life-change much thought. After all, I’m in my twenties, not fifties or sixties.

Baldalicious in a blonde wig. (March 2013)

Trying not to sweat in the hot sun! (March 2013)

After my radical hysterectomy in February of 2012, I experienced a very small number of hot flashes. I didn’t even want to refer to them as full-on hot flashes, and just called them “hot flushes,” as only my face would get very flush. I wasn’t tearing my clothes off in desperation for cooler temperatures. I wasn’t wiping away sweat beads from my brow or upper lip. I wasn’t snapping at my husband for no apparent reason. Then again, I still had two ovaries. And they must have been producing hormones… even slightly. However, after my most recent surgery where the softball-sized monster was found gnawing on my left ovary, it had to go. Today I am left with one ovary on my right side, and it’s starting to give up. This leaves me pissed off, cursing, and sweating. Oh, the dreaded menopause.

Never did I imagine I would find myself typing in the search term “natural menopausal remedies,” nor did I dream of perusing forums filled to the brim with women in their sixties sharing about their experiences. Never did I imagine I would be asking my mother and friends’ mothers if they were tearing their jackets off in the midst of a blizzard just to cool down, like I was. I never thought I would find myself walking through the aisles of a natural grocery store, desperately hunting down magical pills that are claimed to erase most of these symptoms. Never did I think I would apply makeup only to sweat it off mid-application. I never dreamt of watching commercials geared at older menopausal women and finding that we are more alike than not. Never did I think I would open the freezer door and stick my head in. Never. But obviously, I’m not living a “typical” life of a twenty-something woman.

Menopause sucks. If you’ve been through it, you know that, and if you haven’t… well, lucky you. Try to be young as long as you can. Enjoy the days where you can sit under the sun and not turn into a maniacal sweat factory. Enjoy the moments when you can lie in bed and snuggle up to your husband without instantaneously laying in a pool of perspiration. Enjoy being intimate. Seriously. Menopause tries it’s darndest to make you cringe at the thought of sex, as your lady parts don’t work as they used to. (Sorry to the men who don’t want to read about their daughter/sister/granddaughter/friend in that way. It’s the truth. And frankly, you’ve either had a wife go through it, or you will in the future. Better to learn early!) Hot flashes, irritability, dry lady parts, night sweats. Oh, and the infamous flabby stomach. That last one could be due to having two major lower abdominal surgeries, but I’d like to put the blame on my arch-nemesis, Man-on-pause.

Filled-in brows, false lashes, menopausal, yet still Baldalicious. (March 2013)

Filled-in brows, false lashes, menopausal, yet still Baldalicious. (March 2013)

Lately, I’m pissed, irritated, and annoyed. I feel like my femininity is waning. I’m a girly-girl. I adore makeup, clothes, nail polish, and hairspray. I freak out at the sight of spiders. I would prefer to lay on a beach with a margarita in hand, than lay in a sleeping bag under a tent on a camping trip. And I hate to sweat. It is what it is, and I like it that way. But being bald with barely there eyelashes and brows, twenty extra pounds clinging on, the gamut of menopausal symptoms, and the latest nasty nails, it’s hard to feel girly. I overcompensate with a wig, false eyelashes, nail polish, and makeup a lot of the time.  Without all of that, I don’t feel feminine on the outside. I’m ready for my outward body to reflect what’s on the inside again. Girl. Woman. Pretty. ME.

I had been clinging on to one last thing that was truly, naturally, and 100% mine- my fingernails. This past week, I grieved the loss of them, as well. If you know me, I like to keep my nails looking attractive. They are almost always lacquered in color, and glitter makes a frequent appearance. This past week as I was removing the most recent polish, I noticed my nails looked odd. In fact, after they were free and clear of any color, their natural hue had taken on a completely different look. Purples, blues, whites, yellows, and even greens were peering back at me. What? Chemo had already taken my hair, dispensed weight in unwanted areas, and made me feel like crap. And now, it’s decided to take my nails, as well. Nearly all of my fingernails are almost halfway separated from the nail bed. They are bruised and ugly. And the worst part is: I can’t cover them up. Under doctors orders and the advice of many friends who have experienced a similar trial, I have to keep them clean and polish-free. Oh joy. I can’t even cover them up. So here I am, bald and pissed… and sweating.

Chemo nails. Gross. (March 2013)

Chemo nails. Gross. (March 2013)

It’s a good thing chemotherapy does more than tear my outward appearance up. At least it’s tearing up my insides and annihilating cancer, as well. If it weren’t, I can assure you, we would have broken up by now. Although I have a love/hate relationship with chemo cocktails, this year-long relationship has proven to be beneficial to my survival. And as much as I loathe every little side effect that I have experienced, I am grateful to be alive. I will do whatever it takes to live. At the end of the day, I’m still here, and that’s all that matters. And one more thing, the little magical pills that I mentioned earlier, are actually working… in more ways than one!

But, dammit. I still hate menopause.

Proverbs 31:30 (MSG Version)

“Charm can mislead and beauty soon fades. The woman to be admired and praised is the woman who lives in the Fear-of-God.”

1 2