Posts Tagged ‘cancer survivor’

16
Jun
2014

Comfort in Unfamiliarity

(Guest post by Matt)

I write this blog post at Stephanie’s request while sitting in a vast expanse of a waiting room. This is not the usual waiting room I write from on surgery days. In fact, this isn’t even the usual hospital that I write from. Today’s surgery is taking place at a different location than the others, because today’s surgery is in a different part of Stephanie’s body.

To catch up those who may not know, Stephanie’s most recent CT scan revealed something on or near her left adrenal gland. This comes after months of thinking we were out of the woods with surgeries. After getting the results, Stephanie and I consulted a friend from our church who is a pediatric urologist. This led us to a referral to another doctor, who is regarded as the top adrenal surgeon in the state of Colorado. After meeting with him, the decision was made to get into the operating room soon to remove whatever this mass is. As I write, Stephanie’s patient number is still green on the board in the waiting room, which means that she is currently in the operating room having it removed.

Another surgery is not what we wanted. It’s not what we expected. Nerves get heightened with each surgery that happens. We are both over it, and we never want to have to step foot in a hospital again. But at the same time, we know that God is still good. We are still believing in miracles. We’re believing that whatever this thing is that is on or around her adrenal is benign. As scary as it is, we still have faith.

One of our friends from church told us something a couple weeks ago that still resonates with me. She said that God has provided a stage through Stephanie’s story and, because of that, people are watching. It’s one thing for the miraculous to happen when no one is paying attention, but it’s quite another for God to show off when people are paying attention. That’s what we are believing. We believe that no matter what happens, God will show up and show off to proclaim His name to people who may not know who He is.

Thank you all for your prayers and encouragement. Keep them coming, because there is power in prayer. We’re believing.

Mark 5:36 (ESV)

“Do not fear, only believe.”

12
Jun
2014

Pruning What Doesn’t Belong

A fourth surgery in less than three years? No problem. In fact, I told my doctor if he needed to cut me open from my shoulders to my knees, I wouldn’t care. Just get the job done. Remove what doesn’t belong.

Last week Matt and I drove to a meeting with our newly appointed team member. A urologist, who happens to be the top adrenal surgeon in the state. He’s one of the many doctors on our team who helps navigate and combat this dreaded thing called cancer. I currently have a gynecologic oncologist, radiation oncologist, general oncologist, and now a urologist, among the slew of techs and nurses helping as well. Adding a new doctor to the team is always met with some hesitancy (on my part), as I become comfortable with those who have treated me over the last couple of years. My team of doctors and I have grown as a family. The hospital where I have received 99.9% of my treatment is a second home.

Adding a new doctor is like welcoming a new in-law to the family. Will I like him/her? Is he/she going to be able to keep pace in our conversations? Can I see myself spending hours and hours with this person? Can I place my trust in this person’s hands? As my medical team has become family, it’s quite entertaining to see what role each of them falls into. The one who is like an aunt whom you can cry and laugh with, and tell your darkest secrets to, all the while feeling great comfort. The epitome of a distant uncle who awkwardly hits it to you straight and leaves you hanging mid-air wondering what he’ll say next. The sister figure who has your best interest in heart, but doesn’t mind telling you the truth when you need to hear it. The cousins who greet you and play catch-up for the mere minutes you have to see them. Every person on our team fills a role in our medical family. Each one serves a purpose and is vital in my fight against cancer.

Though we’ve only met my new doctor once (on our four-year wedding anniversary, might I add), I can confidently say that I trust him. Matt and I both do. He is smart, professional, and compassionate and, after our meeting with him, we are ready to move forward in the next step. As I’ve mentioned HERE, I have a tumor on my left adrenal gland. The CT and PET show “activity” in the mass, however, based on its location, there is not 100% certainty that it is malignant. From what our doctor discussed with us, we know that adrenal masses happen and are often completely benign. Of course, based on my history, we have to be cautious. Caution and cancer go hand in hand.

Upon having our conversation, my doctor, husband, and I decided it’s best to proceed with surgery to remove this unlabeled mass. Usually, there is talk about doing a biopsy whenever a spot shows up on my scan, but it’s quickly ruled out. This time was no different. For a minute we passed over the idea of taking a biopsy of this tumor, but the risk of spreading the cells (cancer or not) is too great. IF it happens to be malignant, we don’t want  it to spread and wreak havoc elsewhere in my body. This is a disease you don’t want to piss off. Therefore, I’m going under the knife once again.

This will be my fourth major surgery since diagnosis. At this point, I like to consider myself a professional. I’m not concerned. In fact, I would rather be cut open to remove the entirety of the unknown intruder cells as opposed to just peeking through the door, taking a piece, and testing them. My scan is showing something that shouldn’t be there, and although it may not even be cancerous, I don’t like things where they don’t belong.

Pruning is a must in all areas of our existence. While I have undergone surgery to remove malignant masses in my body, likewise I have undergone metaphorical surgery to remove toxicity out of my life. We often hear certain things being compared to cancer. “He is a cancer in the group. He pulls everyone down with him.” Nothing about cancer has a positive connotation. It is the worst of the worst. It will destroy you from the inside out. Ridding ourselves of cancer and its metaphorical meaning is vital to live a healthy life. We prune gardens, cutting back the weeds to allow flowers to blossom, and likewise we should be pruning our lives.

Is there an area of your life that is so full of weeds, it’s taking over your world? Are the weeds drowning out who you really are? Have you ignored the weeds, hoping that they’ll go away on their own? We must cut back what doesn’t belong and rid ourselves of what shouldn’t take residence in our lives. It could be a toxic relationship, hidden addiction, or unhealthy patterns. We all have areas that need to be pruned.

Just as surgery hurts, pruning hurts as well. Removing what doesn’t belong will cause pain, and that’s often why many people avoid it. But once the weeds are removed, the blossoms can thrive. Though we are believing this mass is not cancer, it still doesn’t belong. Therefore, this coming Monday (6/16), Matt and I will venture into the hospital once more to do some pruning. The doctor believes he can perform the surgery laparoscopically. If this is the case, my recovery will be much easier. We are confident in this process, and are expecting wonderful results.

Please be praying for myself, Matt, and our newly added team of medical staff. While I receive all of the fun parts of surgery (sedation, pain medication, and doting nurses), Matt sits in the wings for hours awaiting the results.

While we prepare for pruning, ask yourself what needs to be pruned in your life?

pruning quote for DMD

John 15:2 (ESV)

“Every branch in me that does not bear fruit he takes away, and every branch that does bear fruit he prunes, that it may bear more fruit.”

 

 

29
May
2014

Complicated Results and Abundant Faith

It’s that time of the year again. My three month follow up scan has arrived. If you follow me on Instagram, Facebook, or Twitter, you know that I laid on the hard, metal table one week ago. The results are in…

There’s a spot on my left adrenal gland.

Before you begin jumping to conclusions, let me explain. We aren’t positive that this lesion is even cancer. This is a spot that has lit up on the last few of my scans, and first made it’s appearance in October. Since then, I’ve had several rounds of chemotherapy. Throughout it all, this unknown mass has remained. It has grown slightly in size over the last seven months, but doesn’t seem to be affecting my body’s function.

When I was first told of the news, I didn’t even know what an adrenal gland was. One of our close friends is a doctor in this field and was able to explain to us in non-medical terms what we were dealing with. The adrenal gland is essentially a hat on top of the kidney. It’s purpose is to produce hormones such as stress and adrenaline. Each kidney gets it’s own adrenal gland, so, naturally we all have two. This lesion could potentially be one of three things.

  1. A benign non-functioning tumor. In which case, it’s a mass that serves no purpose and isn’t affecting my adrenal function.
  2. A benign functioning tumor. This is a tumor that is releasing it’s own hormones like stress and adrenaline.
  3. A malignant tumor. Also known as, cancer.

Of course, we won’t definitively know what this spot is until it is biopsied and sent to a pathologist. However, based on my history in Cancerland, we can conjure up an idea of what it may or may not be. Most likely we can rule out it being a benign functioning tumor. If this were the case, I would be experiencing symptoms like heart racing and bloodshot eyes, which I’m not. It would be obvious if this mass was functioning on it’s own, and from what we can see, it’s not doing much.

There is a chance that this could be another recurrence. However, taking my history of malignancies into account, although this lesion has grown, it has not increased as rapidly as my other recurrent tumors. If you recall, my first recurrence was a softball-sized tumor that developed within three months. That mass grew rapidly and aggressively and even began affecting my hormonal functions. In addition to the difference in growth, my body has proven to respond very well to chemotherapy. If this were a malignancy it would be quizzical to have had no response to treatment. For these reasons and more, we believe this is not a malignant tumor.

This leaves the possibility of it being a simple mass that serves no purpose other than to annoy us by showing up around my left kidney. A little pest that has chosen to, for whatever reason, hang out on my adrenal gland. Matt and I strongly believe that a non-functioning tumor is what’s lurking inside of me.

We have abundant faith that this is not cancer.

Arguments can be made for both sides — malignant and benign. Yes, based on these last two years, an unknown mass can lead many to immediately think cancer. However, just as likely, it could be something completely unrelated. Not everything inside of me has to be marked by this disease.

Regardless of what this lesion is, it will need to be removed. Cancer or not, I don’t need something harassing my adrenal gland. Therefore, I will have surgery at some point. Honestly, I am not fazed in the slightest. I’ve already been through three major surgeries in the last couple of years. I’m familiar with the process and recovery. I know all too well about the discomfort and pain. Surgery no longer scares me. I trust that God has my life in His hands; Just as He orchestrated what has been, He orchestrates what will be.

This morning I venture back into the hospital to lay on another hard table while a loud spinning machine takes several images of my insides. This scan will be a full body PET scan and will show all of my internal organs, including my brain. Compared to the CT scans that I receive every three months, a PET goes deeper in it’s imaging and is far more comprehensive. We may or may not learn more information from this scan. This step is necessary to make sure there are no other masses growing elsewhere in my body.

Next week a new doctor will be added to our team, and we will meet with him to discuss surgery. He will go over the hundreds of documents that have chronicled my medical journey and review each scan image that has been taken. He officially has a new patient that comes baring a lot of medical baggage, and it’ll be interesting to hear his opinion on my case.

For now, we hope and pray. As I mentioned, Matt and I are not fearful, but full of abundant faith. We aren’t anxious, nervous, or even the slightest bit afraid. Standing in faith, we believe this growing lesion is not cancer. We believe that I am still cancer free and will remain so for the rest of my life. We believe that the chapter of cancer has closed and we are entering in to the next season of our lives. We are not only believing, but declaring this. God is so mighty in His power, we are calling upon Him to perform a miracle. He beckons us to have faith, to knock so He can answer, and to trust in Him. Therefore, while believing and trusting in Him, we are asking that this mass that has shown itself on my scans for seven months, will not appear on my PET scan. We are praying that whatever this spot is, will vanish. I actually laugh as I pray, because I can picture my team of doctors jaw-dropped as they read the report and view the images, and see the once 2.6cm mass completely gone.

So, while I don’t have the best news to share, I don’t have the worst news either. The results from my CT scan are merely a speed bump on the journey. This is a moment that the enemy is attempting to lead us to question God. I know he is asking us, “Are you sure you’re healed?” He wants to lead us down the path of emotional and spiritual destruction, but we stand against it. We aren’t entertaining the thoughts and fears that try to creep in. We won’t open a door until God tells us to. For now, we are firm in our faith, and believe in healing. We ask that you would stand with us and believe for a cancer free report.

Luke 8:50 (ESV)

“But Jesus on hearing this answered him, ‘Do not fear; only believe, and she will be well.'”

21
May
2014

A Big Thank You

Every week I receive emails from readers sharing how I’ve helped them through their own journeys. Readers that tell me how inspiring, raw, authentic, and brave I am to share my story so openly. Men and women alike express to me their own struggles, spurred on by the openness in mine. Emails stating my writing is unique, clear, true, and often humorous. With every one of these emails, letters, comments, and notes, I am amazed… and grateful.

I’ve always been a writer. Not paid. Not professionally. In fact, I didn’t even go to school for writing. From my adolescent years, I’ve always kept journals — Jotting down my thoughts and emotions as a way to express my life. I’d pass notes in school to dear friends, pour out my teenage heart in puppy-love letters to old high school boyfriends, and send apology notes to my parents in attempts to say, “I’m sorry.” As my husband and I started dating, I kept a journal specifically for him, sharing my dreams and goals for our future. On our wedding day, I gave him this journal and invited him to begin writing our story with me. Writing has been buried within my soul long before I can remember.

A word is the deepest, most powerful and expressive way to convey thought. Words can inspire and help, or hurt and destroy. Words are a delicate tool that we have been gifted, and heed should be taken when using them.

As I’ve grown, writing has presented itself boldly on the forefront of my life. Upon diagnosis, I was called so strongly to share my journey that I don’t think I could have chosen not to. I was meant to write. At the time, I had no understanding of why. No reasons for sharing my little journey through life and cancer. No idea of what publicizing this story would do for me and for others. I obeyed that calling, if only for the fact that I could update friends and family on the latest additions in my treatment. After all, writing on a public blog was significantly easier than spending six hours on the phone like I did the day I was diagnosed.

Little did I know what was to come from an act of obedience. While it’s been natural for me to express my heart in words, it hasn’t always been easy sharing my largest struggle publicly. There have been times when I didn’t feel comfortable sharing how sick I felt. Times when I was fearful of what my readers would think of me if I told them I felt defeated. Moments of uncertainty in sharing my heart on the loss of my fertility. Moments when I didn’t want to write about cancer at all. And great sadness as I’ve had to share of my past recurrences with this dreaded disease. Yet, no matter how hard it has been, it’s been equally as rewarding.

… Because of you, the reader. My support team. The ones who have followed my journey from the beginning and have trusted my process. Those of you who have rallied around me, encouraging me from miles away. Those of you who have cried in your homes for me and for the many others fighting cancer. Those of you who have held my hand and prayed fervently for my healing. The many that I have yet to meet, who are actively standing and believing alongside me. And those who are fighting a battle similar to mine, sharing your stories with me through emails.

Thank you.

Not one of your comments, emails, notes, and even tweets go unnoticed. I read every single one, and try my hardest to respond to them all. I am touched that you take the time out of your busy lives to stop and read my words. To check in with me and see how I’m doing. To pray and encourage me through the high and low points. To notice my husband who is fighting equally as hard beside me. I am humbled that you would find interest in my story, in my process, and in my journey.

Of the hundreds of emails I receive, there are quite a few that stand out and affirm my decision for being so open. A man in Germany explained that he has never been able to put into words what he felt through treatment until he read my posts. A woman who has been struggling with the loss of her daughter finds encouragement through what I write about. A man once shared with me that after the tragic and unexpected passing of his loved one, he physically hadn’t been able to get off the couch until he read my story. Parents have written to me expressing their loss of a child. Women share feelings about their own loss of fertility, and the encouragement and camaraderie that my raw emotions gave them. Many express that, through the words of this blog, they have found their strength and identity in who they are beyond cancer.

Hearing that my willingness to be open about my fight with cancer is encouraging people from across the world, inspires me greatly. The encouragement you receive from me is equally received by me from you. When you write and share what you have learned through your own story, you bless me. When you tell me that you are encouraged to be more than just another statistic, you bless me. When you stand in agreement and believe with me that your diagnosis does not define you, you bless me. When you read my story and keep up with the latest twist in my roller coaster of life, you bless me. When you share my story with your friend or family who is struggling, you bless me. When you celebrate with me in the great times, and weep with me in the dark times, you bless me.

Thank you for following my story, and for inviting me into your homes through your TVs, computers, and radios. Thank you for being patient and understanding of me when I pour out the hidden places of my heart. Thank you for rallying beside my husband and I as we enter into new seasons in life.

Thank you. I look forward to what’s to come!

DMD Thank You

1 Thessalonians 5:11 (MSG)

“So speak encouraging words to one another. Build up hope so you’ll all be together in this, no one left out, no one left behind. I know you’re already doing this; just keep on doing it.”

13
May
2014

The Shadow of Cancer

Cancer has the potential to affect every detail in my life. It can sink into the nooks and crannies, and infiltrate the depths of my existence. It can wedge itself where it doesn’t belong. Cancer is capable of lurking in the very DNA of my own shadow.

Before this disease, I was fairly carefree. Decisions were made based on what my husband and I felt was best for our lives. While living within the “God filter,” there were no other major factors to be taken into consideration. After all, we were young and healthy. It was (at the time) just the three of us: Matt and I, and our pup, Scout. I chuckle as I recall our main concern being who would take care of our dog when we went out of town. Or saving up enough money to spend on Matt’s annual eye appointment and subsequent contacts and eyeglasses purchase. Oh, the simple life.

Upon entering the gates of Cancerland, every thought, decision, and action was then funneled through an additional filter. Cancer. Could I get on an airplane to see my brother graduate college? Only if my white blood cells were high enough to withstand the amount of germs in the air from strangers around me. Could I go on a date with my husband? Only if I was feeling well enough to leave the house, and that was usually not until the second week after a chemotherapy treatment. Could I take a hot shower? Only if I wanted my skin to fall off. (Remember my Hand and Foot Syndrome?) Could I skip some medication? Not unless I wanted to spend hours heaving pathetically over the toilet.

Friends and family soon became aware that any plan we made was only tentative and not set-in-stone. I cancelled on more people than I care to admit. If only it was because I didn’t want to hang out with them. Unfortunately, it was my cancer shadow. The one that followed me everywhere, and still tries to make an appearance on my life as a survivor. Plans were changed, relationships faltered, and life got complicated. With every decision, cancer had to be acknowledged. I couldn’t live carefree. It was no longer just our little family of three. We soon were filtering our lives through the cancer sieve.

Personal and intimate details of our lives weren’t even safe against the shadow. When will we have children? It depends on how long I am cancer free. How will we have children? Unless by immaculate conception, it would be impossible to carry a child with no lady parts. Should we purchase a house? Only if we are willing to take the risk of a recurrence, leaving us unable to pay for said home. Will I have hair by the time I’m a bridesmaid in one of my best friend’s wedding? Depends on how long I’ve been out of chemo.

Nothing was free from the looming dark shadow of cancer. Not even my mind. When I was first diagnosed, I became hypersensitive to the words, “death,” “die,” and “kill.” Hearing, “I would kill for a fill in the blank,” would leave me emotionally reeling. Or, “I could curl up and die,” would often leave my eyes pooled with tears. “I feel like death,” would send me straight to thoughts of my own demise. I would change the TV channel, listen to a different song, or politely excuse myself from a conversation if such words were spoken in my presence. Receiving news about a loved one passing away would instantaneously cause me anxiety and fear. Was I afraid of death per say? No; I know where I’m going. However, I surely didn’t want anything to do with dying just yet.

The shadow of cancer lurks in every vulnerable place of my mind. It’s hiding behind moments of greatness, waiting for me to slip up and fall. It’s whispering and teasing me and attempting to remind me that I can not forget about it. Just like cancer, its shadow is equally as damaging. It takes all that’s within me and more to stop the acknowledgment of my cancer shadow. Cancer doesn’t define me and, though it’s been a large part of my life, it’s not who I am.

We all have shadows. Shadows of our past. Shadows of shame and regret. Shadows of missed opportunities, closed doors, and misfortune. None of us are exempt from having a shadow. Too often many of us are consistently looking at our shadow, as if it’s going to change. We can’t erase what’s done, but we can walk with our eyes forward. Rather than screening our decisions and actions through our past filters, let’s instead push everything through our God filters. Our past comes and goes, but God is never-changing.

What is your shadow? What filter are you living through?

Philippians 4:8 (ESV)

“…Whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things.”

01
May
2014

Raw Faith: What Happens When God Picks a Fight

9781414364780

Not only am I a writer, but I’m also an avid reader. Bookshelves line an entire wall in our home office, and books are found resting from ceiling to floor. 90% of those books have been read by me. I simply can’t get enough. Literature has woven itself into my inner being, and I can’t possibly fathom a world without books, stories, and adventures.

I have recently discovered an author whom I respect and admire. Her latest book, Raw Faith: What Happens When God Picks a Fight has inspired, encouraged and challenged me. Kasey Van Norman is a nationally known Bible teacher, full-time counselor, and bestselling author. She makes her home on a 280 acre ranch in Central Texas, rescuing minors from sex-trafficking and severe neglect. God has given her a story so powerful, Kasey uses it to “ignite a flame of passion in the hearts of believers and unbelievers alike.”

Kasey begins Raw Faith by sharing that she did not want to write this book. “It took God punching me in the gut with cancer to shake off my Christian anesthesia and wake me up from a ‘playing church’… and pacifier kind of faith.” Shortly after the release of her first book, Named by God, Kasey faced a life-threatening cancer diagnosis. One that shook her faith to the core. A diagnosis and subsequent battle that had her wrestling with God Himself.

In Raw Faith, Kasey exposes her heart to the reader in ways many rarely have the courage to do. She challenges us to “face our faith” in moments when pain and suffering come upon our lives and shares that her own personal journey left her faith feeling “like a gaping wound, raw and exposed and tender to the touch.” By asking questions and sharing different perspectives, she encourages us to take an inventory of our own faith condition.

Through a combination of intimate journal entries and solid biblical references, Kasey encourages the reader to allow God to press into our gaping faith wounds. She shares personal moments when she was at her lowest, “bald-headed and weak as a kitten, dry-heaving into a bucket,” and calls us to change our perspective. God has allowed us to endure hardships in order to set us up for His greatness and faithfulness to be displayed in our lives. Our story, just like Kasey’s, has purpose. More purpose than we may ever understand.

Raw Faith confronts the raw issues. Kasey calls them the “toxic D’s”- denial, depression, and discouragement. She expresses a sentiment that I can wholeheartedly understand and agree with: “The most toxic side effect of my cancer diagnosis wasn’t what was happening in my body; it was what was happening in my head and my heart.” She gives the reader tools and references to combat these real life issues, and helps us realize that we are not powerless against them.

Raw Faith is not only for those of us facing a cancer diagnosis. Anyone who has ever encountered hardship, suffering, or difficult circumstances can glean an incredible amount of encouragement and hope through the chapters of this book. This is a memoir that you will not want to put down. You will laugh and cry as Kasey exposes the hardest trials in her life and the lifelong lessons she has learned through them. She tells it like it is– candid, poignant, and unbridled. Her words will evoke thoughts and emotions that you haven’t felt before. Kasey’s candid expressions will inspire you to be candid in your own journey. Your faith, hope, and joy will be redefined as you dive into Raw Faith.

Raw Faith: What Happens When God Picks a Fight is a story about meeting the real Jesus, facing your faith, and confronting your fears. I highly recommend this book for anyone facing illness of the mind, body, or spirit and those who are simply feeling stagnant in their faith life. Keep your eyes peeled for the Raw Faith bible study available this month.

James 1:2-4 (ESV)

“Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing.”

*Book review for Tyndale House Publishers*

 

 

26
Apr
2014

Dream to Reality: Chatting with Ellen DeGeneres

A dream was birthed from the conception of my diagnosis. I had a far-fetched aspiration to go to The Ellen DeGeneres Show. Never once did I think this dream would become a reality. In fact, had you told me that my name would be spoken by the woman herself, I would have probably laughed at you. Sitting next to Ellen and having a conversation with her? Ya right. Out of the millions of viewers that tune into her show daily, who was I to stand out in the sea of inspirational stories?

I have tuned in to The Ellen DeGeneres Show for years. Her candid humor, contagious spirit, and positive message are infectious. She offers uplifting perspective, guttural laughter, and the latest updates on celebrity news. Her generous nature is apparent on every show, as she honors a wide array of everyday heroes. Never once have I watched an episode that I haven’t both laughed and cried in. She’s that good. Throughout my seasons of cancer treatments, Ellen DeGeneres has always been a ray of sunshine in the midst of my dark days. No matter how sick, gross, or pathetic I felt, her show was the perfect remedy. Laughter truly is the best medicine, and Ellen has a doctorate in spreading happiness.

I do not enter contests. I have never won anything. I’ve purchased two lottery tickets in my life and was unsuccessful. However, a few months ago, I serendipitously came across a CoverGirl contest that The Ellen DeGeneres Show was hosting. Ellen herself is an Easy, Breezy, Beautiful CoverGirl and the two joined hands in the recent #bombshelling movement. Among the many variations of the term, bombshelling simply means, “the act of being a bombshell; embracing your inner diva.” The contest invited people to share a selfie and their own inspirational story.

The selfie I sent in to The Ellen Show Without a second thought, I quickly snapped a photo of myself. No wig; Bald in all it’s glory. Light makeup, and a cute chevron scarf. I then drafted a summary of my adventures and lessons through cancer and submitted my entry. Not thinking twice. Quite skeptical in fact, I figured I would never hear back. I don’t win anything, after all. My husband, Matt arrived home from work, and I nonchalantly mentioned that my entry was forging its way among the thousands of others. His response was far from noteworthy, and my news didn’t evoke more than a shoulder shrug. He was all too familiar with my contest history, or lack thereof.

We continued our daily life, and I didn’t give the CoverGirl bombshelling contest much thought. Months later, to my complete and utter shock, I received a phone call from the show. They had sifted through entries and wanted to hear more about my story. At the moment, I couldn’t believe it was happening. A few phone conversations later, and we were invited to sit in the audience at one of Ellen’s tapings. The smile cemented on my face stretched from ear to ear. I could not contain my excitement. Matt and I were elated. My dream was coming true! Ellen Artist Entry Before we knew it, the whirlwind of anticipation and enthusiasm had swept us up and we were walking through the doors of The Ellen Show studio. I felt like a kid in a candy store — grinning and giggling as I was unsure of what to look at, what to take in, and in awe at the wonders of the studio itself. Matt and I found our seats and with the rest of the audience on all sides, were welcomed into a massive dance party. If you have watched Ellen, you know that her show is widely centered around dancing. She moves and grooves. The audience gets jiggy wit’ it. Her guests bust a move. It’s a party, and no one is left out. Halfway through the show, my cheeks were in full-on workout mode from the smile that remained plastered on my face. The energy of being in a studio, clapping, dancing, and laughing with hundreds of others is unparalleled. Happiness was spread like wildfire.

Just as the last segment was underway, Ellen began sharing that she was a CoverGirl. At that point, I firmly grabbed Matt’s leg, and I’m sure my eyes grew twice their original size. With the next blink of my eyelids, a familiar photo was displayed on the back screen. A bald woman, with light makeup and a chevron scarf. Wait, What? I think that’s me. Oh, yes. That’s definitely me. Time jolted forward faster than the speed of light. I heard my name. I heard Ellen say my name. She wanted me to come down to the stage. Is this a joke? Is this real life? Surprisingly, I made it down the steps and onto the stage without tripping and embarrassing myself. I wasn’t however, free from the sight of the camera catching my ugly cry.

After hugging Ellen (yes, I hugged Ellen DeGeneres!), I sat down and chatted with her. The cameras captured my fairly composed responses to her questions, though inside I was a deer in the headlights. We’ve all experienced moments where our dream transforms into a reality, and this was mine. As if having a conversation with Ellen wasn’t enough, she surprised me with a check on behalf of CoverGirl to the tune of ten thousand dollars. At that point, I was astonished, amazed, and flabbergasted. Meeting Ellen DeGeneres, hugging, laughing, and sharing conversation with her would have been enough. However, in true “Ellen style,” she and CoverGirl so generously gifted Matt and I an amount that will help chip away the medical debt that has been accrued from such an arduous journey these past two years.

Copyright: The Ellen DeGeneres Show

Copyright: The Ellen DeGeneres Show

Gratitude doesn’t articulate the depth of thankfulness that my husband and I have experienced. As I stated in an after-show interview, there would never be enough “Thank You’s” to Ellen and CoverGirl for the gift and opportunity they have given me. To be recognized for my message that bald is beautiful is an overwhelming honor. We will forever be grateful for what Ellen and CoverGirl have done for our family.

The response from our surprise on The Ellen DeGeneres Show has been incredible and humbling. The posts on Ellen’s Facebook page and Instagram have received over 90,000 “likes,” and hundreds of comments. What has inspired and humbled me the most are the women who are posting pictures of themselves without wigs on in the comments. To know that my story is touching so many others, is breathtaking. It makes my fight worth it. Thank you all for tuning in and sharing such an exciting moment with us.

Dreams do come true.

CoverGirl Bombshell Shows that Bald is Beautiful
on Yahoo! Shine

Philippians 4:19 (MSG)

“You can be sure that God will take care of everything you need, his generosity exceeding even yours in the glory that pours from Jesus.”

27
Dec
2013

Cancerland

A place where chemo drips freely. Hair is a rare sight to be seen. Tubes, treatment, and trials are common occurrences. Hospital bands are shackles bound to the arms of warriors. And cancer is everywhere.

Welcome to Cancerland.

As I sit here receiving my fourth chemotherapy treatment this season (34th overall), I can’t help but look around, witnessing how cancer has affected the lives of so many. It’s everywhere. Rampant like a rabid monster ferociously feeding on the innocent. Moving its way through the nooks and crannies of both young and old generations. No care that it’s unwelcome. No fear of opposition. No worries in the world.

Once diagnosed, patients, including myself, are immediately propelled into Cancerland. Slingshotted into the abyss, with doctors accompanying us on all sides. Our medical knowledge, once novice, becomes an integral part of our vernacular, and soon we are spouting terms like “hemoglobin,” “neuropathy,” “large cell neuroendocrine carcinoma,” and “CBC.” We become aware what it feels like when our white cells are low, and we equate a shortness of breath to a lack of red blood cells. We become accustomed to aches and pains, leg spasms, and a variety of rare side effects. We ingest pills, supplements, and other magical potions as if they were candy.

This is life. If only we could watch fireworks, eat a chocolate covered frozen banana, and leave the park at the end of the day to crawl into bed outside the gates of Cancerland. However, this disease embeds itself into the pages of our story. It becomes a part of us. A part of our journey. Enveloped in our trials. Overcome in our triumphs. It never leaves us. The shadow of cancer follows us no matter how far we run and no matter how well we hide.

Yet as I am surrounded by my fellow patients, I sense a spirit of camaraderie. We are an army fighting against this horrendous beast. Gathering up arms and standing firm on the hope of success… On the hope of remission. Encouraging one another, exchanging tales of war from seasons past, and dreaming of a bright future. We are more than just patients. We are spouses, children, siblings, parents, and friends. We are people with dreams and goals. Praying to make it through the next year. Hoping for healing. Believing in salvation.

I am touched, moved, and honored to have such an inspiring army of survivors and fighters around me. Everyone who has ever heard the words, “You have cancer,” is immediately part of a unique fraternity. We can say, “nausea,” and as comrades we immediately understand this specific type of sickness. There is something special and deeply personal about the unsaid connection between those who have entered the gates of Cancerland. Some hold their ticket proudly. Some tuck their ticket deep into the crevasse of their pocket. Some try to throw their ticket away, only to find it reappearing every time. No matter if you are proud to be a survivor, in denial of the battle you are in, or not ready to face the fight ahead, we are all a part of this clandestine society.

As for me? I am proud. I have scars, wounds, physical reminders of what I have been through, and what awaits my future. I have aches and pains. I have neuropathy. My insides have been nuked more times than I can recall. My body no longer resembles its form prior to diagnosis. I have been bald, with hair, and bald again several times over. I have lost and gained friends. My life plans have been altered. I am infertile and menopausal. If given the choice on what I wanted my life to look like, cancer would be at the bottom of the list. However, I’m here. There’s no denying it. There’s no getting around it. I have been fighting cancer for the last two years of my life. But I have a choice. One of the largest decisions I have ever had to make and will have to make continuously over the course of my life. Do I want to be miserable? Or do I want to be joyful? Some may think this is not a choice, but I would adamantly challenge that stance. Though oftentimes we cannot choose our circumstances, we can choose our emotions.

I am proud to be a cancer patient…fighter…survivor. I am proud to say that no matter what, cancer will not win because I will never lose. I am proud to belong to this fraternity. My ticket to Cancerland will forever be displayed triumphantly in a frame over my life.

Romans 15:13 (ESV)

“May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.”

WARRIOR. (November 2013)

WARRIOR. (November 2013)

05
Dec
2013

The Question of Depression

I’ll admit it. I’ve been MIA for the past month. My absence was not intentional. I just couldn’t get the words out into my blog. However, it was nothing like writer’s block. It was much deeper. I couldn’t put a finger on it, but whatever it was, it was looming over me like a dark cloud.

Throughout these past few weeks, I have often felt the urge to sit down and write. To pour out my thoughts. To process. To purge. Yet, no matter how much I wanted to, I simply could not.

Recently I discovered the answer, the reason, and the explanation for this sudden halt. For this past month, and frankly since the day I learned of my enemy’s return, I had been carrying an extra burden of emotions. Emotions that lingered. That weighed me down. That tried hard to steal my joy, hope, and happiness. Call it depression. Call it a funk. Call it what you will, I was being buried by it.

Every season of my battle against cancer has contained different emotional responses and physical hurdles. For the better part of my two previous seasons, I had battled more physical hurdles. I had more days where I felt like crap. More days where I had been in pain. Yet, this season has been different from the start. Not a tumor, only microscopic cells. Praise God for that. Not as physically taxing as it has been emotionally. Yet, sometimes working through emotions is harder than working through pain.

“Do you ever get depressed having to go through all of this?”

A few weeks ago, I was asked this simple question. I actually laughed. Not at the friend asking the question, but at the thought. Depressed? “100% YES,” I said. However, not many people see that from me. Though I walk in the strength and grace that God has given me today, I still stumble into the pit of worry, fear, and despair from time to time. I have never lost faith nor hope. I cling tight to the belief that I will be healed here on Earth. But this season, this battle, this fight had brought with it a sadness that I hadn’t been able to shake off.

This question has been asked many times: “Do you ever get sad?” In fact, several people have inquired if I ever have low days. Many have shared that they always see a smile on my face. That if they had no idea about my diagnosis, they wouldn’t guess that I was fighting for my life every single day. I’m thankful that I don’t appear as a cancer patient. I’m thankful that I have beautiful wigs and that I am talented with a makeup brush. But, believe me… fighting cancer sucks. It’s hard. It’s exhausting. It’s hell. When I was initially diagnosed almost two years ago, some even thought I was in denial. Some thought that because I wasn’t crying every second of every day, the reality must not have hit me. The truth is, it hit me from the start. I did cry. A lot. I did grieve. I had to let go of the plans my husband and I had. At 25 years old, my whole world changed. Yet, from the beginning, I chose to not let cancer ruin me. It would take my health, my fertility, my plans, but I refused to let it steal my joy, my hope, and my faith.

This season I have shed more tears. After all, I was just getting used to a cancer-free life. My hair was gorgeous, growing, and curly! I hadn’t had treatment for seven months, and I was nearly a year cancer-free. I thought that was it. I thought Matt and I could begin to forge our way into our new “normal,” healthy, happy, and whole. And because I was living life free of this awful disease, it’s recurrence this time was harder. I cried every single day for a week straight. I, stupidly and regretfully, watched sappy romance movies by myself and went through boxes of tissues. I also noticed something else. Something far more concerning. I wasn’t in The Word as often as I should be. In fact, my emotions were beginning to interfere with my relationship with Jesus. And, now that I’m finding my way out of the dark cloud, I realize that was the enemy’s goal. To sadden me to the point that my focus was no longer on my Savior, but on my grief.

The struggle through cancer is the single hardest thing I have ever had to do. Fighting for my life every single day is exasperating. No matter how tired, weak, and sad that I get, I still put on my shit-kicker boots every day and head to war. The war against the enemy. Not only against the monster that has repeatedly tried to parasitically take my life from the inside out, but also the monsters that wage war inside my mind and spirit. But I am still human, and on my own am incapable of winning this war. Without help, I will surely die. I can’t head to the front lines without armor and supernatural strength. I can’t let my emotions cloud my sight to the Almighty: the One who can and will save me from this battle, the only One who is more than capable of healing me in a matter of seconds.

Often, we allow our emotions in a circumstance to control our reaction, response, and direction. We let the enemy slither his way inside our minds as he spits venom into our spirits. We become blind and deaf to the sight and voice of Jesus. Our victory becomes dull. Our joy is diminished. And that is why it is imperative to stay focused, with our eyes on the One who can offer us hope, freedom, peace, healing, strength, and joy. No matter how different and difficult the seasons may be… No matter the peaks and valleys of our emotions… No matter… God is never-changing. He is consistent. He is who He always has been. He is the same God when I was healthy. He is faithful, and continues to have my back. He wants the best for me. Therefore, I must seek Him first. I challenge you to do the same.

Let’s stand above our emotions, and let His promises, His goodness, and His power reign.

(October 2013)

(October 2013)

1 Peter 8-11 (MSG)

“Keep a cool head. Stay alert. The Devil is poised to pounce, and would like nothing better than to catch you napping. Keep your guard up. You’re not the only ones plunged into these hard times. It’s the same with Christians all over the world. So keep a firm grip on the faith. The suffering won’t last forever. It won’t be long before this generous God who has great plans for us in Christ—eternal and glorious plans they are!—will have you put together and on your feet for good. He gets the last word; yes, he does.”

06
Nov
2013

Groundhog Day

The one with Bill Murray, not Punxsutawney Phil.

Getting cancer over, and over, and over again is comparable to the movie Groundhog Day. One season ends and I wake up expecting a new one to begin, only to find myself in the same season I have journeyed twice before. Over, and over, and over again. Much to my dismay, this battle is not complete yet.

As you know (or maybe you haven’t read the latest), surgery went better than we could have imagined. God has repeatedly displayed His power. The scan showed a two-inch tumor near my remaining ovary. However, during surgery, my doctor didn’t find a tumor at all, and in fact stated that I had one of the cleanest abdomens she had ever seen – pink and healthy. Just to be certain, she removed the ovary and sent it off for further review. Pathology reports came back showing microscopic cancerous cells… That, my friends, is a miracle… Did you not catch that? From the size of nearly a golf ball, to microscopic cells. Had there not been a tumor on my scan, my doctor would not have operated, and I would have continued believing that I was cancer-free, when in reality, this disease would have had three more months to grow and possibly travel elsewhere. God allowed a tumor to show up on my scan, in order for us to find the beginning stages of a recurrence. A golf ball size shrinking to microscopic cells. If you don’t call that a miracle, I don’t know what you would.

God calls us to focus on the praises and miracles He has performed in our lives and the lives of those around us. Yet, as humans, when another storm arises, we tend to forget those miracles. We often store them in the back of our minds, only occasionally pulling them forward in our memories. Life gets hard again, and we forget all the good He has done in and for us. By doing that, we aren’t fully recognizing God for who He is. His goodness doesn’t come and go. He is the single most consistent being in existence. We must remember the blessings He has poured over us. It’s as vital as breathing.

Since surgery one month ago, I have already received chemotherapy. About 12 days ago, in fact. It was my 31st chemo cocktail, yet familiarity doesn’t always bring comfort. I’ll never say fighting cancer is easy. No matter if it’s your first time, or your third, fighting cancer takes everything you have and more. Frankly, I can’t believe I’m doing this all over again. Twice… okay, that was hard enough. But three times? After being out of treatment for six months and nearly a year cancer-free. Seriously?

I’ve processed this recurrence different than my initial diagnosis and first recurrence. It’s been drastically more emotional for me. Being that so many of my girlfriends are pregnant now, I’d venture into comparing my emotions with those of an expectant mother. For real. This past week, I’ve cried over the silliest things. On one of my good days, Matt and I ventured into Ikea, and noticed a woman training a service dog. I had to keep walking, or I would have needed a box of tissues. I’ve cried to my husband and by myself. Over everything and over nothing. The tears have found their way out regardless of my will to keep them contained. I know that purging these emotions is a good thing, and a healthy cry session can help with the process.

No matter how much I’d love to say I’m always focusing on the positive, I am here to admit that I, too, am human. I have moments where I allow the blessings to easily slide to the back of my mind, allowing the storm to overwhelm my life. My tears are those of sadness, grief, and exhaustion. I loathe the fact that I am faced with this choice again. The choice to fight or die. Fighting cancer is just that… a choice. And it’s a choice that I must make. However, as always, I choose to fight.

Clinging to God’s blessings in the midst of the storm helps us build up our arsenal of tools to ward off the enemy. The enemy is a thief in the night who wants to steal our joy, hope, and positivity. He knows we are weak and preys on our vulnerabilities; doing whatever he can to push us further into the mud. It’s easy to fall into the pit of despair and continue drowning in the muck that tries to suffocate us.

Last week was full of emotions, sadness, shock, and defeat. I was living in a real-life Groundhog Day. But today, I am standing firm in the promises, miracles, and blessings that God has poured over me. I am calling forth every gift He has given me, and every promise He has spoken to me. I am remembering the moment I woke up from surgery to learn that there was no tumor. I am remembering the many times that God has scheduled divine appointments on my behalf. I am clinging to the goodness of my Savior, because I am blessed.

I’m fighting this again, which only means that I will soon be a three-time cancer survivor. This season will be different. I’m not waking up in the same place as I was twice before. Try as you may, cancer, but this chick is standing firm with spiritual armor so powerful, nothing can penetrate it.

Handling business as usual, chemo-style. (October 2013)

Handling business as usual, chemo-style. (October 2013)

2 Corinthians 12:7-10 (MSG)

“Because of the extravagance of those revelations, and so I wouldn’t get a big head, I was given the gift of a handicap to keep me in constant touch with my limitations. Satan’s angel did his best to get me down; what he in fact did was push me to my knees. No danger then of walking around high and mighty! At first I didn’t think of it as a gift, and begged God to remove it. Three times I did that, and then he told me, ‘My grace is enough; it’s all you need. My strength comes into its own in your weakness.’ Once I heard that, I was glad to let it happen. I quit focusing on the handicap and began appreciating the gift. It was a case of Christ’s strength moving in on my weakness. Now I take limitations in stride, and with good cheer, these limitations that cut me down to size—abuse, accidents, opposition, bad breaks. I just let Christ take over! And so the weaker I get, the stronger I become.”

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