Posts Tagged ‘cancer friendship’

Bald is Beautiful: The Message That Got One Young Girl Banned From School

(As appeared in The Huffington Post on 3/26/2014)

Yesterday, I came across an article. It’s a story that gripped me and had me feeling both triumphantly exuberant and downright disappointed. This story is about a little girl who has lost her hair in her ongoing fight against cancer, her friend who decided to stand beside her, and a school who punished them for it. The school chose to send the friend home, because her shaved head violated school dress code policy.

Delaney Clements is a strong 11-year-old girl fighting neuroblastoma, a childhood cancer that develops in nerve cells. Kamryn Renfro is her 9-year-old friend who clearly has a heart of gold and more character than most at her age. Due to her chemotherapy treatments, Delaney has lost her hair. She is baldalicious and exudes such joy with her smile. Recently, Kamryn chose to shave her head as a way to stand by her friend in support. As a way to offer encouragement and to let Delaney know she was not alone. Kamryn made the decision to support her friend, against all odds and no matter the sacrifice.

This act of bravery from such a young girl is extraordinary. How many of us can say that we would do the same?

What happened next left me feeling disappointed and shocked. The school felt that Kamryn’s act of kindness, friendship, and support went against their dress code policy. They informed Kamryn’s family that she would not be allowed to attend school until her hair grew back, or until she arrived wearing a wig. Apparently, her bald head distracted other students. However, was it a negative distraction? I don’t think so. If anything, their fellow peers were given a rare opportunity to see what love really is. This act of solidarity could have been used as a teaching moment. A lesson that could not be explained with flash cards or times tables.

Our world needs to be distracted more often. Our eyes need to be taken away from the meaningless and be redirected to the meaningful. Sometimes lessons cannot be taught through a textbook.

The media has shared this story over and over again, yet the core message seems to get muddled. The debate of whether or not hair should matter in school should not be the focus. This message is not about a girl with a shaved head. This message is about what one girl did for her friend. In an interview, Kamryn stated, “It felt like the right thing to do.” And Delaney responded by saying, “It made me feel very special and that I’m not alone.”

Having lost my hair several times over from the slew of cancer treatments I’ve received over the last two years, I understand what it feels like to be bald. It can be isolating and scary. Many don’t realize the amount of value we place on our hair until we no longer have it. Being bald has often left me feeling vulnerable and different. Being bald is a physical reminder of the battle for survival. I am nearly 20 years older than Delaney, and can’t even fathom what she has had to go through at such a young age.

By punishing Kamryn for her act of kindness, this school has sent a large message. While I understand the importance of rules and regulations in schools, the administration carelessly looked over the benefits of this situation, and reacted improperly. Children should not be punished for doing the right thing. We should instill values into our youth, so that when they grow older, they will treat others with compassion and care. Do we want our children to remember moments like this as an example of what is not allowed, or rather an example of what it means to love? Acts of kindness should not be rebuked.

What Kamryn did for Delaney should not be punished. What she did should be praised. She responded to an urging of compassion in her heart by extending support to another. She stepped out in courage and bravery to do what not many would. She symbolically held her friend’s hand and let her know she was not alone. And I applaud her.

Thank you Kamryn for rallying by your friend and showing her support and encouragement. Thank you for showing her that she is not alone and doesn’t have to be the only one who looks different. Thank you for your courageous spirit and your brave response.

Thank you, Delaney, for your strength and courage. Thank you for showing the world that bald is beautiful. Thank you for inspiring those of us who are fellow fighters and survivors. Thank you for your contagious smile and bravery.

Kamryn and Delaney have defined what courage, friendship, and bravery really mean. Today, I stand with Delaney and Kamryn, and urge you to do the same.

Bald is beautiful.

Update: After all the media attention on the story, the school has since reversed its decision.

Romans 15:1-2

Those of us who are strong and able in the faith need to step in and lend a hand to those who falter, and not just do what is most convenient for us. Strength is for service, not status. Each one of us needs to look after the good of the people around us, asking ourselves, “How can I help?”

BaldIsBeautiful

Arm’s Length: The Distance Between Friendship and Cancer

(As appeared in The Huffington Post on 1/28/14)

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Cancer scares people. It’s the disease that no one wants to get, no one wants to talk about, and no one has a cure for. It brings the crazies out of the closet, introduces you to long-lost family members, and sabotages even the strongest of friendships. Cancer is the adult version of cooties. Getting it is not cool, and will send some around you scurrying away in search of a large tree to hide behind.

“Am I contagious?” This is a question that I admittedly asked upon hearing the news for the first time. I thought I knew the answer, but I couldn’t be entirely sure. Was I putting my husband, friends, and family at risk? Should I be quarantined?

Silly me. No, cancer is not contagious. Thank goodness. But if this disease is not contagious, what could be the reason for friendships beginning to dissolve and people hiding behind closed doors?

Until recently, I couldn’t quite understand the cause for the sudden shift in my relationships upon diagnosis two years ago. I just had cancer, after all. I didn’t have the chicken pox, diphtheria, or the plague. I was still me… the same ol’ Stephanie. Sure, I’d be bald soon, but did that really affect those around me? Was my bald, shiny head really the issue?

People change in difficult circumstances. Some become fearful and timid. Some hide behind sarcasm and cynicism. Some shy away. None of these reactions are wrong; coping mechanisms can fall on a large spectrum.

Before my diagnosis, I (like many) was afraid of cancer. My grandmother had passed from it, and not knowing much, I became fearful. Choosing to avoid any mention of the disease, I embraced blissful ignorance. Upon hearing reports of celebrities succumbing to their fights against cancer, I would feel sorry, yet would move forward as if it didn’t affect me. Because, did it really? As long as cancer wasn’t a part of my inner circle, I could remain euphorically unaware. Many share this approach, and my diagnosis brought these feelings out of several who surrounded me. An arm’s length became a safe distance.

While avoidance is on one side of the spectrum, artificial involvement is on the other. You know, the appeal of being friends with the “sick girl.” A concept similar to when someone passes away, and multiple people claim best friendship with the deceased. Or when passing by a car accident, we have to look, no matter how invasive it may feel. For as many people who vanished into the shadows upon hearing the news that I had cancer, there were just as many people who spontaneously appeared suddenly interested in the details of my journey… people whom I hadn’t heard from in years. Clearly not wanting to offer support, but rather trying to gather as much information about my newly changed life in order to be someone who could “share” my personal updates with others, as if they had the inside scoop.

Recently, I had an extremely valuable conversation with a dear friend. I shared with her the effects that cancer has had on my relationships. The ups, downs, and in-betweens of friendship after diagnosis. She responded by courageously sharing with me a perspective of hers that was entirely unknown to me. Truthfully, I was surprised at the feelings she expressed having upon hearing the news of my diagnosis, yet ever-so-thankful that she was brave enough to share. Her words have taught me so much.

“Stephanie, honestly, I was afraid to be your friend after I learned you had cancer. I feared that I would lose you. I was afraid that you might die, and I would have to go through the pain of losing someone close to me. I wasn’t sure I wanted to commit to that.”

That day, I learned that avoidance might simply be an overwhelming fear of being close to someone who could possibly die. It has forever changed my perspective and has replaced my questions with grace for those who chose distance over involvement. Like I was before my diagnosis, many are just afraid of cancer. Afraid of what it might do to someone they love. And, whereas it doesn’t make dissolved friendships easier, it does allow me to understand that they may not be able to handle such a risky relationship.

As someone diagnosed with this disease, authentic support, encouragement, and prayers are treasures to receive. All friendships require selflessness. Being a friend to someone with cancer is no different. In fact, a relationship like this often requires more selflessness and can be far more difficult than others. Sometimes your friend with cancer may not be able to reciprocate equally, due to a slew of side effects from treatment. But if you’re willing to understand and accept that, this relationship will challenge and inspire you in ways you couldn’t dream of.

I am blessed to say that among several who slid out of sight and those who artificially tried to insert themselves, I have had numerous true friends stand firmly by my side. Friends who have brought meals when I couldn’t get out of bed. Those who have rearranged their schedules to pray with my husband and I before surgeries. Those who sit with me for hours as I ingest my chemo cocktails. Unwavering friends who offer support to myself and my husband no matter how hard the journey may get. Friends who don’t expect anything in return, and whom I know without a doubt would do anything for us. I am beyond grateful for these relationships.

Though arm’s length may be a safe distance, embracing someone with cancer is far more rewarding in the end. Just think. If it were you whose life just flipped upside down, what kind of friends would you want? … Be that friend.

Matthew 7:12 (ESV)

“So whatever you wish that others would do to you, do also to them…”