Posts Tagged ‘blood draw’

08
Nov
2012

Bittersweet and Thankful

Matt and Stephanie. (May 2010)

We’ve been waiting for nearly a year to hear the news. Are biological children a part of our story?

You can read about when we first had to make the difficult decision to either proceed with my hysterectomy, or to hold off and harvest my eggs here . Thankfully, we proceeded with the surgery and I am still alive today. Cancer-free, mind you. Because my Oncologist understood our desire for biological children, and because my ovaries had not been touched by this disease, she decided to transpose them to a higher location in my abdomen; she moved them with hopes that they could be protected from the harmful radiation procedures. Three months after my last cancer treatment, we were told I could take a blood test that would determine if my ovaries were still in working condition. I took the FSH/LH/Estrogen test last week and we received the results a couple of days ago.

“Your current FSH (Follicle Stimulating Hormone) is at a 48.8. A normal FSH is less than 10, and an FSH greater than 20 is generally not recommended to use your own eggs to try to get pregnant. At a 48, it’s unfortunately pretty bad news. It looks like your cancer treatments had a very bad effect on your ovaries, which is pretty common. It looks like that is probably not an option now.”

For those who have been close to us through this journey, you know that we just wanted an answer. Is it a yes or a no for “bio-kids?” Regardless of the outcome, we wanted to know what path we needed to further investigate. Although it’s bittersweet, we are very thankful to finally have an answer. And God is still good. We now can focus more on the process of finding our children, and not on the process of personally conceiving our own. Adoption is a life-changing journey for all involved, and we have spoken about this option before we even got married. Adoption has always been on the table. To be honest, we thought it would be just that… an option. However, we have now discovered that God has intentionally called us to this form of parenting. Although our fertility nurse has told us that it’s bad news, we are choosing to see it as a blessing. Our story continues to have chapters that few people experience, and for that not only are we grateful, but we think it’s pretty cool, too.

Being grateful is a powerful thing. When you can look beyond your circumstances and see the gifts you’ve been blessed with, your life will transform. My husband and I are thankful that I am still here on this earth. Because of that, I can continue to be a loving wife and will still have the chance to be a mother someday. We are thankful that God continues to reign over our story and direct our path. We are thankful that we have each other and are confident that our journey to adoption is going to be full of joy. We continue to look forward to uncovering God’s plan for our lives, and we will never cease our praise for the wonderful things He has done and will continue to do. Even though our hearts were set, God knows ultimately what is best for us. And frankly, how awesome is it that we get to go down the road less traveled?!

Alongside our grateful hearts, we are still grieving. Through marriage you learn the differences between men and women, and this adventure has continued to shine light on that. As a woman, I think we generally process things a lot quicker. I have been grieving since the day my reproductive organs were removed. It’s gotten easier as the days and months have gone by, but there are still moments where I am sad that I will never be able to feel my child from inside my womb. Men take a little longer to process change. Matt has held on and believed with great faith that my eggs would still be alive and well. With this news, it has brought a finality to the hope he carried. For him, it’s almost as if the grieving has just begun. We ask that you continue to pray for peace and understanding in this time. We are in this together, and continue to cling to each other on this roller coaster through life. The fact still remains: Matt will be a daddy, and I a mommy; We WILL be parents. No matter if our children come from our bodies or from someone else’s they will still be our own. It’ll be a momentous occasion when we can tell our children how truly hard we fought for them.

Now that we know how we will have children, many are probably wondering when we will begin “trying” for kids. We are blessed to have several friends who have chosen adoption, or who themselves are adopted; therefore, we have many close resources to turn to. We will begin researching, learning, and gathering as much information about adoption that we possibly can. However, we have decided that until I reach my two-year mark clean and clear of cancer, children are going to have to wait a little while. After all, we want to make sure that our children get a healthy mom and not a sick one. Until we decide to be open for placement, we will continue to fill our brains with as much knowledge that can fit. We will attend seminars, information meetings, and read as many articles on adoption that is available to us. We believe that the more knowledge we obtain, the better the journey will be.

We have been praying for our children for years, and look forward to when God chooses to place them into our life. For now, He’s got them…And I feel confident knowing, He’s the best babysitter out there.

Psalm 113:4-9 (The Message)

“God is higher than anything and anyone, outshining everything you can see in the skies. Who can compare with God, our God, so majestically enthroned, surveying his magnificent heavens and earth? He picks up the poor from out of the dirt, rescues the wretched who’ve been thrown out with the trash, seats them among the honored guests, a place of honor among the brightest and best. He gives childless couples a family, gives them joy as the parents of children. Hallelujah!”

01
Nov
2012

Living Life Scan to Scan

Today’s Check-up! (November, 2012)

I don’t want to be a cancer survivor living my life from one scan to the next.

After a cancer diagnosis it’s hard not to want to rush through the treatment and get to the finish line. It’s difficult to live life for today and not for the three months or two years from now. I would be lying if I told you I had never prayed and asked God to quickly speed up time and allow me to wake up cancer-free and in remission in 2014. I even said, “I don’t care if I miss what happens in these next couple years, just get me to the finish line!” It’s the truth. Like it or not. Now, of course I don’t want to miss out on any part of my life, but there have been times where the future looks so much brighter than the present. But is it really? We have no way of knowing, and that’s what keeps my dependance and reliance on God burning still.

Whenever I get in these little “funks” of wanting to push the fast forward button through life, my husband reminds me that we shouldn’t be living life scan to scan. That if I continue to keep blinders on and only focus on the two-year mark, I’ll be missing out on everything that is happening now. I’ll admit it, he’s right. I don’t want to speed through these next few years, because they are equally a part of my story as my declaration of remission is. As an avid reader, I think of it this way: If a book was missing two of it’s chapters, the story wouldn’t be complete, would it? The middle is just as important as the beginning and the ending. The middle affects the rest of the story, and if I were to speed through these next two years, my ending wouldn’t be the same.

I have begun reciting statements to myself everyday. No, I’m not referring to talking to myself (although, that does happen); I simply mean that I make an internal declaration daily. “Today is going to be a great day. I’m alive. I’m thankful. I’m living life for today, and I am cancer-free.” In good moments these statements are easy to repeat, however when my mind wanders down the “what-if” path, sometimes I have to work hard to convince myself. Remaining positive and truly believing that I am healed takes work but makes a huge difference in how I live my life. I am a believer of many things. Top of the list is Jesus Christ, and right below is that through Him I have been healed. Believing in anything takes a large amount of trust. To declare that I believe my body is cancer-free equally means that I trust that treatment has done it’s job. That I trust in the knowledge my doctors possess. That I trust that the surgery, chemotherapy, and radiation has run it’s course effectively. And ultimately, I trust that God works everything together for my good.

Today I am reminded why I should follow my husband’s advice and live life in the now and not the future. I had my first three month check up since the end of treatment. Now that treatment and doctors visits aren’t a daily or even weekly deal, walking through the halls of the hospital to my doctor’s office brings back a rush of memories, thoughts, and emotions. Because I have a heightened sense of smell and often tie smells to memories, the aroma of the hospital hallway that leads to my oncologist stirs up an avalanche of feelings. Frankly, I don’t like being there. Simply because that’s where I endured my vast hours of cancer-fighting procedures. My brain immediately goes into unsure and anxious mode. Luckily those anxieties diminish once I step foot into the office and am greeted by my wonderful team of nurses. Today’s appointment could not have gone any smoother. I absolutely adore my medical team. They have become a part of my family. Because I don’t see them as often as I used to, every time that I do, it’s like a family reunion. After catching up on the latest in each of our lives, we get down to the nitty gritty. The gloves go on (quite literally) and the games begin.

My oncologist did a pelvic exam, pap smear, overall body check, and blood draw. The blood draw was almost invisible next to the laughter that we were sharing in the tiny exam room; Who says a trip to the gynecologic oncology office can’t be fun? Once the gloves were off, she shared the news… Everything looks and feels wonderful! Not only does my body look and feel healthy, I’ve officially lost twenty pounds since my visit three months ago! She continues to be amazed at my recovery and resilience. What a breath of fresh air, and news that I definitely needed to hear. Another weight was lifted off my shoulders, and I can breathe a little easier now. I think that’s how it’s going to be for the rest of my road to remission…With every good appointment and clear scan, a little more is going to be lifted off my shoulders.

More of what needs to be shared is the reason behind the blood draw. Typically at this stage in the game, blood draws aren’t necessary. For me, because I have chosen to keep my port for a little while, I will need to get it flushed every six to eight weeks to prevent clogging. However, because I am out of treatment and resuming my daily life with no “issues,” testing my blood levels is no longer high on the agenda. So why did they take my blood today? They will be testing my fertility. Some of your jaws may drop because you thought that wasn’t even a possibility. And while I still cannot and will never be able to carry my own child, there still is a chance that I might have eggs. During my hysterectomy, my oncologist transposed my ovaries to a higher location so they could be out of the way of radiation, and also with hopes that my eggs could be saved through the brutal treatment. I like to joke and say, “Who knows? They could be in my armpits!” Probably not.

My doctors have informed me that I would notice immediately if my ovaries died or were affected in any way. So far, only a couple months passed where I was having minuscule, dare I say, “hot flashes.” Frankly, they were nothing like what those of you in menopause have shared with me. I was not ripping the sheets off of myself at night, and my body wasn’t being engulfed in sweat. My face would just get slightly flush every now and then. Not every hour. Not every day. These bursts of heat, as I’ll refer to them, have completely disappeared over the last two months. When I shared that news with my oncologist, with a smile on her face she hugged me and shared her enthusiasm. Therefore, because I don’t show any signs of menopausal symptoms, my ovaries could still be alive and well. And if they are, the eggs that are nestled in them could have possibly survived the storm. You can do the math. Eggs+Sperm=Baby. If my eggs are good, Matt and I will then decide if we want to harvest them and go down the In Vitro Fertilization route. Because we don’t have the results yet, I won’t get ahead of myself. But keep checking back for updates on the baby makers! My team has informed me that I should receive the results by tomorrow. For now, please pray that my ovaries are alive and healthy, and that we will find peace in the test results. We put our hope not in a scan or a test, but in Him.

Romans 8:26-28 (The Message)

“Meanwhile, the moment we get tired in the waiting, God’s Spirit is right alongside helping us along. If we don’t know how or what to pray, it doesn’t matter. He does our praying in and for us, making prayer out of our wordless sighs, our aching groans. He knows us far better than we know ourselves, knows our pregnant condition, and keeps us present before God. That’s why we can be so sure that every detail in our lives of love for God is worked into something good.”

12
Mar
2012

What’s Happened These Past 2 Weeks?

(Written on Sunday, 3/11)

Hello to all! I’m sure you’ve noticed that I haven’t posted in a couple weeks. Thank you for being patient with me during this time; I have had many ups and downs. As you know, if you’ve been keeping up with my treatment schedule, I’ve been “enjoying” my two weeks off.  Wait, “enjoying” is not the right word. However, the first week off went by pretty smoothly. I had a few down moments and times of exhaustion, although, for the most part I was feeling pretty good. This second week hit me the hardest. I was astounded at how bad I felt.

My nurses initially told me that because of the two specific chemo drugs I was on, I would experience a lot of vomiting. I can proudly say, to this day I have not yet thrown up! Although I haven’t  barfed, hurled, heaved, or upchucked, I still felt pretty lousy. In fact, this is the first full day that I have felt really good. Genuinely good. Not, “My whole body aches, but I’m fine”. Or, “My stomach is pretty sore, but I’ll be ok”. I’m honestly feeling good. The fact of the matter is, I’m barely a month out from having my radical hysterectomy. I can expect to feel sore. That part won’t go away for a while.  But as for achey, fever, nausea, and other side effects, today I have steered clear of them. Praise God.

Because this was my first round of chemo, I had no idea how my body would react. Like I said before, I went through a multitude of ups and downs. I was on a mountain one moment, and at the bottom of the ocean the next. In addition, because I experienced a gamut of emotions and variety of pain levels, I wasn’t able to sit down and take time to update my blog.  I’ve been “gone” a while so let me recap this past week for you. This will help you better grasp this portion of my journey…

Friday the 2nd, I went in for another blood draw and found out that all of my levels, white and red blood cells included, were extremely low. Out of the normal range, low. So low, that my chemo nurse gave me shots to take home so that I could self inject a special type of medicine. (If I have not yet explained how I dislike self-injections, let me do so now. I strongly detest them. They are never fun. They always hurt. End rant.) This medicine boosted my bone marrow to produce more white blood cells. White blood cells are good, folks. Especially when you are fighting cancer.

From Saturday (3/3) through Monday (3/5), I felt like I had the flu. Complete with a very high fever, body aches, muscle soreness, and skin sensitivity. In fact, I had to call my doctor on one of those nights because my fever went past 100.8, which is, according to my nurses, not good. After following instructions to take 1000 mg of Tylenol, my fever broke, and I began to feel better.  Matt and I made it home, and settled in again. However, by Wednesday (3/7), I was an emotional wreck. When you have cancer, these things happen. You can’t rely on the self-control of emotions any longer. If I feel sad, I must cry. If I feel happy, I laugh. It’s okay. And, it’s extremely acceptable. I mean, come on, I have cancer.  I’m allowed to be crumpled on the floor of the shower sobbing like a 2 year old baby. Oh yes, that definitely did happen. Wednesday, was one of my lowest points thus far. Not only did I experience true, deep, heart wrenching sadness for the first time in my life, I also began losing my hair. That story, I will save for another blog.

As the week progressed, I slowly began to feel a little better. Better, as in, I was able to get out of bed and think of other things, unrelated to cancer. Last night (Saturday, 3/10) I felt pretty good. In fact, I felt good enough to venture out of the house with my adoring husband and attend the performance of wonderful students of my step-dad. They put on a play titled “Resurrection Remixed”. I thoroughly enjoyed it. It was eye-opening, and it really touched my heart. High school kids don’t get enough credit sometimes.

Today was a good day. However, good doesn’t fully define it. It was more like a great day. I woke up and felt good. You know, among the million other things you take for granted before you are diagnosed with a life-threatening disease, one of them includes deciphering if your day is good or bad. That’s my life now. I wake up and have a conversation with myself  in regards to how I’m feeling. (Not out loud, friends… I’m not crazy; I just have cancer.) Prior to my diagnosis and beginning of treatment, I would wake up, like most of you, and decide what I would do that day. Never once did I consciously have to stop and decide if I was feeling good enough to take a shower, let alone go grocery shopping, attend church, hang out with friends, cook a meal, or any other daily activities. That’s my reality now. I base my days on how I’m feeling, and I take it one day at a time. I don’t worry about tomorrow, I worry about today. And a good day involves less worrying. In addition, I now officially suck at making and keeping plans. Don’t take this personally.

Again, I thank you for being patient with me during this dry spell. After all, this past cycle was my very first time receiving chemo. I had no idea what to expect. I didn’t know I would feel this lousy. And I definitely didn’t expect my good moments to only last a few hours at first. Please continue to be patient with me as I will be starting my next round of chemo tomorrow (Monday, 3/12). Unfortunately, not all cycles are the same, and during  my treatment, there won’t be any predicting how I will feel. I may feel the same, I may feel worse. In fact, I might actually get nauseous this time. However, pray that I don’t.

Without going into a life lesson schpeel, I will try to touch your hearts and open your minds in this way: Don’t take your moments for granted. Be thankful when you wake up in the morning and don’t have to worry about how your body is feeling. Be happy in the seemingly mundane moments. Smile when you’re at the grocery store. Smile when you’re at the bank. Smile at the waitress who is taking time out of her life to serve you. Serve someone else. Everyone has a story. And friends, just because I have cancer, does not make me oblivious to life’s smaller troubles. Everyone is going through something rough. Whether it be not getting a close parking spot, receiving a bad grade on a test, arguing with your spouse, searching for a job, or desperately trying to make ends meet, we are all going through something. Keep that in mind when someone cuts you off in traffic. Who knows where they might be racing to.

Isaiah 40:28-31 (Message Version)

“Don’t you know anything? Haven’t you been listening? God doesn’t come and go. God lasts. He’s Creator of all you can see or imagine. He doesn’t get tired out, doesn’t pause to catch his breath. And he knows everything, inside and out. He energizes those who get tired, gives fresh strength to dropouts. For even young people tire and drop out, young folk in their prime stumble and fall. But those who wait upon God get fresh strength. They spread their wings and soar like eagles. They run and don’t get tired, they walk and don’t lag behind.”